Chiari Malformation Community
Chiari Symptoms
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Chiari Symptoms

Hello All,

I was diagnosed with Chiari Malformation in 2011 after years of pain. I had an 11mm herniation and a syrnix that was through out my entire spine. I had decompression surgery 2 weeks after and felt great even though the numbness in my face, arm, and hand never went away. Recently the symptoms have returned I am extremely fatigued, my neck and back are in severe pain, I have has a few headaches, and the numbness is very intense. Any idea what could be happening? Is it possible for the symptoms to return?
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620923_tn?1416285879

  Hi and welcome to the Chiari forum.

Yes, it is possible for symptoms to return as the Chiari does not go away with surgery, Surgery is a means to restore CSF flow and slow progression.

have u had post op MRI's to see if ur syrinx shrank? That can be ur issue too.

Do u know if ur Dura was opened ? Did u have a lamenectomy?

There are diff types of decompression....some are not invasive and may need to be redone...so knowing what was done will help.Did u go to a true Chiari specialist at all...seems it went fast from DX to surgery....

U may want to see one now and see how they may be able to help u.
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Avatar_m_tn
I have searched the internet and have not been able to locate a specialist is Dallas do you know where I can obtain a list? My dura was opened and part of my c1 or c2 was removed.
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620923_tn?1416285879

  We compiled a list of the Drs the members here have been to and liked, there may not be one in Dallas but u can see if there is one nearby u feel is qualified as u do have to research the Drs, the list is a tool and acts as a starting point....but it is not a referral or endorsement of the Drs on the list,.

Here is a link to the Health Pages...there is other helpful info in there as well as the list.- http://www.medhelp.org/health_pages/list?cid=186

Do u know what kind of patch was used?
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