In my head I think I remember hearing that her aunt has chiari? But I could be wrong there!
Yes, I do remember her tweeting about Chiari....not sure how she got involved....but that was great !
I am sure there are others I can not remember right now..
There are groups that raise money for research......and which one is better depends whom you ask,,,,,,
I heard Melissa Joan hart auctioned off a pair of her high heeled shoes for chiari awareness. I thought that was pretty cool
Chiari has been mentioned on several shows...not always true to light on how fast one may recover....or how long one may go unDX'd...but mentioned just the same...House, Dr G., Greys Anatomy,....
George Clooney had a decompression surgery due to an injury with Chiari like symptoms......Rosanne Cash also had decompression surgery.....Tiger Woods ex girlfriend Rachel Uchitel just had surgery last week....and there is a golfer...J.B. Holmes...he also had surgery.
Not sure who you could throw money toward....except during September which is Chiari awareness month....several different orgs run walks for awareness and funds for research.