Hello I'm new to this site and I have been reading some stories after surgeries that the symptoms came back months or years after surgery. I was diagnosed at 15 with chiari in oct of '07 and had surgery in nov. I was relieved that I felt my headaches go away at first but I felt them slowly come back about 1-2weeks after surgery and they have been bugging me ever since. I also suffer from depression anxiety and sleep apnea. I live with constant headache and I have gone back to my neurologists and they say everything is okay after surgery and to this day I have had an MRI and a ct scan and a lumbar puncture and everything is normal. Does anyone have a similar problem? If so what do you do for pain?
p.s. i have tried many meds and none seem to work except dilaudid (6 to 8 times as strong as morphine)
Thank you in advance
I feel your pain as I am in the same boat with you. I had surgery in 2009 and am still in pain. My primary doc told me that I had surgery and am now "cured" and my headaches are just stress or depression. She ordered an MRI to prove to me that my tonsils have not herniated and "chiari is not my problem" I went to a neurologist at the University of Michigan and he told me that it's not chiari causing my headaches, its just migraines. I have to take 4 different meds for the pain that still isn't working. (Topamax (2x daily); Cymbalta (2x daily); Naproxen; Vicodin) I have just given up with the medical profession. I don't know where to go next since nobody believes me. Sorry you are going through this too.
i have tried so many meds i cant count anymore and so many for depression and migraines and none have worked at all and now that i cant work at all because of my headaches i cant get ssi wich i dont know why because i cant support myself anymore what do you guys do when you have to work with a headache?
I can't believe so many people have the same problem. I am ten months post op and my depression, anxiety, seizures and headaches have returned and nothing works except natural herbs that are not legal, none of the medications will work except a high dose of depakote 4 times a day that slowly kills your liver....
I had surgery April 2013 and it's difficult to say. They have diagnosed me with epilepsy but I also have permanent brain damage and they also have seen unexplainable white spots on my MRI that the neurologist or surgeon have no idea what they are.
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