Aa
A
A
Close
Avatar_universal
Chiari and Asymmetrical Hearing Loss
Anyone else have asymmetrical hearing loss?  I've lost almost 70% of my hearing in the speech range on my left side.  I was just told last week by a NS at Columbia (NYC) that it IS NOT due to chiari....REALLY?  Then why is everything I'm reading in the liturature (from American Hearing Assoc. to National Institutes of Health) state that this IS related to chiari?  This doc also told me "ya know, eventually your brain will shrink as you age and you won't need surgery"(!!?!!?)  Someone PLEASE TELL ME I'M NOT CRAZY!!
Cancel
5 Answers
Page 1 of 1
620923_tn?1452919248


Hi...I have not had ne actual hearing tests....but I know I do have hearing issues.....
May I ask what Dr u had so the testing to get this %.....

It just amazes me how many Drs will dismiss chiari and what it affects...

  I will tell u I do see improvement with many issues I had pre op ...now at 2 yrs post op...and I am seeing new  things all the time...even from 1 yr post op till now the changes keep coming...and since we r all diff it is possible that this is affecting u more with hearing than most of us....

  U R NOT CRAZY !!!! : )

  And u r not alone

  "selma"
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
Avatar_universal
The hearing tests were done by a Audiology MD...as was my subsequent hearing aid fit.  My loss is right in the speech range.  I noticed the loss immediately after the headaches started....I couldn't hear the birds in the AM when my "good" ear was on the pillow and I couldn't get everything that people were saying...especially women and children.  This is especially troublesome to me as I'm a singer.  I am very concerned that no one seems to share my concern over the hearing loss and I am wondering if this is going to progress to my other ear.  On top of that, my real job is counseling...so I have to listen to others as a main part of my living.  This NS at Columbia referred me to a Neuro otologist...one that he knows...not sure I trust his recommendations as he says I should "wait for the brain to shrink"...(what's 15 to 20 years of headaches, right?).  
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
620923_tn?1452919248


As a singer have u lost ur voice at all?....I did, when in church  I would open my mouth and nothing came out, and I had a strange sensation in my throat...this is not uncommon with chiari so if it does happen, u r aware of it...I had no idea what was going on and I did not have my dx then either.....

The waiting for the brain to shrink is like saying sit and wait for ur spine to shrink for those with spinal  issues...what a dumb thing to say,,,no one will degrade the  same rate as some one else...y suffer if u can get some relieve and if the issue is causing more problems health wise....

   "selma"
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
Avatar_universal
No, no vocal loss.  I am classically trained and love to perform on stage and other venues.  The headaches are what is preventing me from doing the stage stuff now....too hard to remember speaking lines when my head hurts.  Seems, looking back, that I've had symptoms for a long time before the advent of MRI...20+ years ago.  Still, I'm very afraid of this progressing to the other ear.  I am going to keep advocating for myself...I do it professionally in my day job for others (social work) now I'm going to do it for me.  Thanks for your support.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
620923_tn?1452919248

  Please keep us posted on ur progress : )
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Chiari and Asymmetrical Hearing Loss
Submit Answer
A
A
Recent Activity
4760166_tn?1398360913
Blank
gjjl, and The_beat_goes_on commented on gjjl's status
Feb 10
16744917_tn?1451270439
Blank
gjjl I have a leak and now am ha... Comment
Feb 10
Avatar_f_tn
Blank
Georgiag111 commented on photo
Feb 06
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
562511_tn?1285907760
Blank
CA
Avatar_universal
Blank
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
562511_tn?1285907760
Blank
CA
Avatar_universal
Blank
Oxford, MI