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5239720 tn?1365501974
Chiari and MS
I have had Chiari II all my life. My symptoms are so much like MS now, I was wondering if anyone had MS and Chiari. I am just about ready to get the surgery I hurt so bad and my kids are to young to live on medicine all the time . Thank you for your help:)
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

We have had a few that were mis-DX;d with MS and a few that had both Chiari and MS. The symptoms for each are so similar it is hard to be sure just by the symptoms, Lymes and Lupus also have similar symptoms so do get testing to rule out to be sure and make sure u get testing for ALL related conditions as well,

Be advised surgery is not a cure, just a means to restore CSF flow and slow progression,

If u do not have a CSF obstruction many Chiari specialists may not opt to do surgery b4 doing more testing....

Do u have a Chiari specialist?
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5239720 tn?1365501974
Thank you for answering me:)  I've just started going back to a neurologist,(on medicare for disability) she kinda of hints at having the surgery but the neurosurgeon I saw a few years ago didn't,so we are going through a ton of dosages to get this mess manageable and its horrible lol. Cant function w/the med. Cant function w/o it. Sorry to whine I know there are a lot of people out there worse off than me.:)
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620923 tn?1452919248

Vent and whine all u need to, that is y this forum is here, and u know we will understand : )

Chiari can progress so it can be that ur issues and symptoms are now worse off then they were yrs ago.....

Did they do a CINE MRI to check ur CSF flow?
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