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Chiari and pregnancy after surgery.
Hi everyone,
Would really love some advice and info if anyone can help me?
I was diagnosed with chiari type 1 last summer, and was decompressed on the 21st of October last year so i'm just over a year post op now.
I found out a couple weeks ago that i was pregnant and it was a huge shock as i thought i couldn't have children and me and the other half had been trying for years before i got sick and never any luck.
So obviously it was not planned but i am happy about it, but also super nervous!
Iv'e heard so many different things about getting pregnant with chiari that i don't even now whats right or not. And especially only been a year post op and still having some problems with my headaches because the operation has apparently caused me to get sever migraines and tension headaches as well as the ongoing chiari symptoms. And not been able to take any medication now too.
I just wonder if anyone else is in my situation or has been and can help me? I would also like info about the birth too please as i keep hearing you have to have a c-section is this true? i have my first midwife appointment on Wednesday will i have to mention about c-section and having chiari and the risks and that or will she already know about them?
Sorry for the huge paragraph lol just a nervous first time mummy to be who could use some help, im about 7 weeks gone atm.
Thankyou xx
Would really love some advice and info if anyone can help me?
I was diagnosed with chiari type 1 last summer, and was decompressed on the 21st of October last year so i'm just over a year post op now.
I found out a couple weeks ago that i was pregnant and it was a huge shock as i thought i couldn't have children and me and the other half had been trying for years before i got sick and never any luck.
So obviously it was not planned but i am happy about it, but also super nervous!
Iv'e heard so many different things about getting pregnant with chiari that i don't even now whats right or not. And especially only been a year post op and still having some problems with my headaches because the operation has apparently caused me to get sever migraines and tension headaches as well as the ongoing chiari symptoms. And not been able to take any medication now too.
I just wonder if anyone else is in my situation or has been and can help me? I would also like info about the birth too please as i keep hearing you have to have a c-section is this true? i have my first midwife appointment on Wednesday will i have to mention about c-section and having chiari and the risks and that or will she already know about them?
Sorry for the huge paragraph lol just a nervous first time mummy to be who could use some help, im about 7 weeks gone atm.
Thankyou xx
COMMUNITY LEADER
Hi...I missed your reply too....not sure how, but it happens, so to answer one question- where I was in Guatemala, I was in Guatemala City , and near by in Antigua..... we went to the Old Philadelphia Coffee plantation....the entire area we were in were just beautiful.
AS for pregnancy with Chiari, do look for an article/books written by Diane Mueller she is a nurse and co-writes with Dr Oro. and did write about pregnancy with Chiari and Syringomyelia.
Travel to get to the right Dr is well worth it, I did it and would do it again should I ever need to.
I hope you hear back from Dr R.....and do keep us posted on how you are doing.
This thread seems to be pertaining to cduque and then back to you. It has been awhile since your loss and I just wonder if you are feeling any stronger. I was never so sure I believed that time healed you from pain. Just know that we are still thinking about you and hope for you a sense of comfort and peace. I also hope today you are feeling well.
As I am following this thread, I see that you are going to email Dr. Retake. Have you been able to get a response. I know you only mentioned contacting her yesterday. I hope some of your questions and fears can be answered and relived. Definitely stay current so we can continue to help you along. I really hope you are well today.
Hello Selma,
It has been a while since i have logged on. Thank you for replying to my questions. I should probably call Dr. Retake and schedule an appointment with him to follow up with a possible pregnancy, is this something you advice? When i saw him back in September he did not mention anything about those tests. He did tell me that i could email him with any questions, I will do so tomorrow.
It has been a while since i have logged on. Thank you for replying to my questions. I should probably call Dr. Retake and schedule an appointment with him to follow up with a possible pregnancy, is this something you advice? When i saw him back in September he did not mention anything about those tests. He did tell me that i could email him with any questions, I will do so tomorrow.
COMMUNITY LEADER
To reply to a question about why Drs do not all test for related conditions....
1- they may not be a true Chiari specialist and understand the relationship and how it could affect the surgical outcome or recovery
2- Being a NS, they do not do testing, they only treat....they expect you to come to them with a DX and that's it....(not a Chiari specialist)
This is where us, educating ourselves can help us know when we have a Dr that is more experienced and informed to help prevent issues post op and having to select a new NS.....
Even doing that we can still run into post op issues, but it should help cut back on the probability of them happening....JMHO
Hi Nellan12,
Besides the terrible headaches did you have any other symptoms? YES i heard C-section is the way to go and my Gyno told me this will be done, she says given the circumstances they will not allow for me push and delivery naturally. we want to have a child before i decided for the surgery. we have been married going on 3 years this July and together for 6 years and not pregnancies have resulted. I was undergoing the process through RMA to get pregnant when the Chiari type 1 was diagnosed and so my primary doctor recommended we stop the process. But now that i have read through some of the posts i see it takes your body a few years to recover after surgery and so given my age, 32 this June, we want to try to have a child before surgery. Selma told me and she is right i could ask 10 different people and get 10 different answers regarding this, I pray GOD is with me always and that he allows for us to be parents and for me o have a healthy pregnancy and baby. once we have a child i will then consider the surgery. I dont know why but i am so terrified of the surgery, i am not sure if not having the surgery is an option for us, is it? With chiari can we have other procedures too ( maybe i am too paranoid and there arent enough doctors with chiari knowledge) like endoscopy and colonoscopy, dental work? etc? I have a cavity coming in that so i want to make sure that i can have it taken care of, i am too paranoid huh? Also selma has mentioned having everything ruled out prior to surgery like POTS and other tests, but why do doctors not run the tests? Nellann12 did you have all those tests done? a cardiologist has cleared me, they did a heart ultrasound and gave me a heart monitor for 2 weeks December 2013 bc i felt my heart speeding sometimes( i have not felt that in a while now) and i was cleared, my last bloodwork for diabetes ( i was pre-diabetic) came back all "phenomenal" in September, thats what the endocrinologist said. But i have not had any other tests, what do i do about this?
Thanks Nellan12 for your reply, i pray you feel better and recover safely!
Besides the terrible headaches did you have any other symptoms? YES i heard C-section is the way to go and my Gyno told me this will be done, she says given the circumstances they will not allow for me push and delivery naturally. we want to have a child before i decided for the surgery. we have been married going on 3 years this July and together for 6 years and not pregnancies have resulted. I was undergoing the process through RMA to get pregnant when the Chiari type 1 was diagnosed and so my primary doctor recommended we stop the process. But now that i have read through some of the posts i see it takes your body a few years to recover after surgery and so given my age, 32 this June, we want to try to have a child before surgery. Selma told me and she is right i could ask 10 different people and get 10 different answers regarding this, I pray GOD is with me always and that he allows for us to be parents and for me o have a healthy pregnancy and baby. once we have a child i will then consider the surgery. I dont know why but i am so terrified of the surgery, i am not sure if not having the surgery is an option for us, is it? With chiari can we have other procedures too ( maybe i am too paranoid and there arent enough doctors with chiari knowledge) like endoscopy and colonoscopy, dental work? etc? I have a cavity coming in that so i want to make sure that i can have it taken care of, i am too paranoid huh? Also selma has mentioned having everything ruled out prior to surgery like POTS and other tests, but why do doctors not run the tests? Nellann12 did you have all those tests done? a cardiologist has cleared me, they did a heart ultrasound and gave me a heart monitor for 2 weeks December 2013 bc i felt my heart speeding sometimes( i have not felt that in a while now) and i was cleared, my last bloodwork for diabetes ( i was pre-diabetic) came back all "phenomenal" in September, thats what the endocrinologist said. But i have not had any other tests, what do i do about this?
Thanks Nellan12 for your reply, i pray you feel better and recover safely!
I have been reading thru all these post, it's been awile since I have been on because of my surgery..... But I do want you to know I was born with Chiari 1, and I have had headaches as far as I can remember, I am 52 hrs old now and I remember as far back as 12 yrs old saying "my head hurts" but doctors always found excuses... As I told you aand so have Selma, you can have a child, your doctors will be more attentive to you ,actually I think it is a good thing that you found out, so you are more prepared during child birth, I didn't know when I had my 3 kids and they were all dilivered naturally, and back then we did not have epidural, much much more pain than now, trust me I was with my daughter when she was in labor and once she had that shot it made a world of diffence!!!!!
Your doctors are rite you need to make the decision, you need to figure out how bad is the Chiari effecting your life rite now!! Just keep in mind you will need a lot of help in the beginning if you have surgery first, and it takes time to heal,, but also a pregnancy is 9months long so consider that time too, as adding more time to your healing process.. :) keep us posted
Your doctors are rite you need to make the decision, you need to figure out how bad is the Chiari effecting your life rite now!! Just keep in mind you will need a lot of help in the beginning if you have surgery first, and it takes time to heal,, but also a pregnancy is 9months long so consider that time too, as adding more time to your healing process.. :) keep us posted
I Am at a loss for words , I am so so sorry for your loss.... I wish we could get answers from God why things happen, so we would know how to deal with it better... Sorry I didn't see your post till today , I have not been on the forum since my surgery on the 17 of dec... It's still a little hard to read, especially with the headaches and the fact I can't bend my neck...
But I hope that you do not loose faith, my oldest daughter had my grandson and decided to waite a year then have another one, but in the beginning she could not get pregnant, and when she finally did, after a few weeks she went for a routine check up, and it showed on the ultra sound that the baby had no heart beat...I don't know who took it harder her or I.... I was at work when she called me and told me , I was a totale basket case could not stop crying had to go home... At that point she decieded she was not going to try any more and get her tubes tied....I kept asking her to waite a little while but she decided to call her OBGYN and set up an appointment and go on with the decision that husband and wife made.... But just a week before her appointment, she was getting sick in the morning and that she was late that month, she went and took a pregnancy test at home and it was positive... I am telling you this so you don't loose hope....you never know
But I hope that you do not loose faith, my oldest daughter had my grandson and decided to waite a year then have another one, but in the beginning she could not get pregnant, and when she finally did, after a few weeks she went for a routine check up, and it showed on the ultra sound that the baby had no heart beat...I don't know who took it harder her or I.... I was at work when she called me and told me , I was a totale basket case could not stop crying had to go home... At that point she decieded she was not going to try any more and get her tubes tied....I kept asking her to waite a little while but she decided to call her OBGYN and set up an appointment and go on with the decision that husband and wife made.... But just a week before her appointment, she was getting sick in the morning and that she was late that month, she went and took a pregnancy test at home and it was positive... I am telling you this so you don't loose hope....you never know
Hello Selma,
Thank you for the reply, i have to say that i do feel better after your message. I find it hard to settle with this issue and any symptom i feel i get really scared so it helps to have your encouragement.
regarding the pregnancy, after you message i discussed it with my husband and we have agreed to proceed with a pregnancy :) i am scared but we are making an appointment with a high risk doctor and once we have all of our questions answered and they confirm our decision we will return to RMA and proceed with the process. Did you have a hard time sitting up and holding her because if the Chiari or something else? did this pain get better with months?
Oh how nice you went to Guatemala, what part do you remember? My brother renounced his status here and decided to move back and settle down there so it has been 2 years since i saw him, I havent been to Guatemala and i am excited to see him but i was scared because all of my symptoms, i wasnt sure if should leave the country, the state or even my city for that matter. I guess that will be another decision to make before or after the pregnancy and surgery if i decide to.
Regarding work, thank you for the tip. I was let go from a small company in August because they felt my Chiari was causing me great stress, sure it was but not at work. I visited the ER twice at the end of July and missed the company summer party and then August 4th is when they let me go. My work background is all at small companies, prior to this company i was at a small company for 9 years as the customer service manager and before that 5 years at a swingset company as assistant store manager. So me getting let go was a pretty hard blow, i had never been fired before from a job. I was diagnosed but didnt tell them until July. I have always worked and so i want to get back to work but i dont want to end up in the same situation so i want to start part time and build my way back into full time if i can.
So how long were you dealing with Chiairi before you had the surgery? Can i ask what your symptoms were? Mine are dizziness, light headed and nausea and a lot of fatigue. After my ER at end of July i have to admit i was having a lot of symptoms and back to back, I slept a lot, no appetite and a lot of nausea , a lot of dizzy spells and body weakness, I started to feel a bit better around October, November was good besides the headaches and a bad episode i had n Veterans day: i was cleaning my pantry and so i kept looking up a lot, climbed on chair and back down, for about an hour finally my body got weak and i felt faint my entire body was weak and i kept feeling like i was going to faint, thank God i didnt my husband was with me so he laid me down and sat me up and laid me down again trying to make me feel better, i was just so weak, this lasted an hour and a half and then i was exhausted, December consisted of 12 bad days with headaches or the above i mentioned. This month so far i am doing good and it is the 23rd. not alot of headaches besides 3 days and slight nausea but not dizzy spells. flares? if a i appeal for disability, assuming i cant work, does it depend on whether i had surgery or not or must i have surgery to be considered for disability? I have learned on what not to do, i havent cleaned my pantry since that day myself but my husband has :) so little by little i have been learning. i wake up earlier and move slower, not on the go, i dont jog, etc.
Selma thank you for your time and reply. your feedback does make me feel better, i am not as nervous regarding my Chiari and my decisions.
Thank you for the reply, i have to say that i do feel better after your message. I find it hard to settle with this issue and any symptom i feel i get really scared so it helps to have your encouragement.
regarding the pregnancy, after you message i discussed it with my husband and we have agreed to proceed with a pregnancy :) i am scared but we are making an appointment with a high risk doctor and once we have all of our questions answered and they confirm our decision we will return to RMA and proceed with the process. Did you have a hard time sitting up and holding her because if the Chiari or something else? did this pain get better with months?
Oh how nice you went to Guatemala, what part do you remember? My brother renounced his status here and decided to move back and settle down there so it has been 2 years since i saw him, I havent been to Guatemala and i am excited to see him but i was scared because all of my symptoms, i wasnt sure if should leave the country, the state or even my city for that matter. I guess that will be another decision to make before or after the pregnancy and surgery if i decide to.
Regarding work, thank you for the tip. I was let go from a small company in August because they felt my Chiari was causing me great stress, sure it was but not at work. I visited the ER twice at the end of July and missed the company summer party and then August 4th is when they let me go. My work background is all at small companies, prior to this company i was at a small company for 9 years as the customer service manager and before that 5 years at a swingset company as assistant store manager. So me getting let go was a pretty hard blow, i had never been fired before from a job. I was diagnosed but didnt tell them until July. I have always worked and so i want to get back to work but i dont want to end up in the same situation so i want to start part time and build my way back into full time if i can.
So how long were you dealing with Chiairi before you had the surgery? Can i ask what your symptoms were? Mine are dizziness, light headed and nausea and a lot of fatigue. After my ER at end of July i have to admit i was having a lot of symptoms and back to back, I slept a lot, no appetite and a lot of nausea , a lot of dizzy spells and body weakness, I started to feel a bit better around October, November was good besides the headaches and a bad episode i had n Veterans day: i was cleaning my pantry and so i kept looking up a lot, climbed on chair and back down, for about an hour finally my body got weak and i felt faint my entire body was weak and i kept feeling like i was going to faint, thank God i didnt my husband was with me so he laid me down and sat me up and laid me down again trying to make me feel better, i was just so weak, this lasted an hour and a half and then i was exhausted, December consisted of 12 bad days with headaches or the above i mentioned. This month so far i am doing good and it is the 23rd. not alot of headaches besides 3 days and slight nausea but not dizzy spells. flares? if a i appeal for disability, assuming i cant work, does it depend on whether i had surgery or not or must i have surgery to be considered for disability? I have learned on what not to do, i havent cleaned my pantry since that day myself but my husband has :) so little by little i have been learning. i wake up earlier and move slower, not on the go, i dont jog, etc.
Selma thank you for your time and reply. your feedback does make me feel better, i am not as nervous regarding my Chiari and my decisions.
COMMUNITY LEADER
I am sure you could ask 10 of this and get 10 different answers....for me, I did have lower back issues...and seemed to have more issues once my DD was born as I had a hard time just sitting and holding her....
I went to Guatemala one month b4 I got my Chiari DX...so sure...go ...visit your DB and enjoy....I even went on a burrow ride thru a coffee plantation while there...it was not easy getting on one but they helped me....
As long as your job does not having you lifting too much, pulling pushing etc....you should be able to work....thing is trying to locate an understanding employer...as we have good days and bad in addition to possible limitations at work....so, it may be best to look for a small family business to work for....one that understands what is going on.....
Now talking about pregnancy and surgery....if you want a child and are looking at your age...then go for it now...as recovery take take a while and we have to be patient....rushing to meet a goal is not the best thing post op....granted you know about your Chiari and I did not when I was pregnant....this is something to discuss with your DH and family as you may need help....
I am surprised how much more I can do now that I had surgery...for yrs I pushed myself to keep going....and we can do that I just wonder if it can hurt some with other issues....
Disability is not easy to get if you are just DX'd with Chiari....it can take up to 2 yrs to get and most need to appeal with the help of an attorney....
Only you know if you can forge forward with your symptoms....and no one knows how your pregnancy will affect you....it may not do a thing....so, do not look for issues just live your life and if new symptoms occur inform your Dr asap....no one can tell you if or when your symptoms may change....so again look at how your feel and are able to do now...and talk with your DH and family.
SelmaS,
Thank you for your reply. Is the weight and stress of carrying the baby harder on us Chiari patients? I really want to at least have 1 child of our own, my husband and i have openly discussed adoption but we both agree that we would at least like to have 1 child of our own. I have to admit i am scared of getting pregnant and it being bad on my body. There are many Chiairi specialist here in Stamford CT i had to go see Dr. Retake at TCI in NY. He assured me that he highly thought i would be able to have a child before or after surgery but given my age i would much rather have a child now than after surgery, if i decide so. That is another part that scares me Selma, the decision to have surgery. He asked me to score myself and i scored myself at a 70 and he said they didnt recommend anyone above a 70 to have the surgery, which caused me to question the severity of my chiari now and if i should go ahead and have a baby now. My gyno told me it would be a high risk pregnancy and that they would do a c-section, does that sound about right? Thank you for the book tip, i will be sure to get it. Truth is Selma this Chiari issue terrifies me and i just want to live and be here with my husband and family that i love so much. I am not working at this time because i was let go in August, after my ER visits at end of July. That's another thing and im sorry if i am too upfront, can we work? I am looking for a part time job instead of full time, can we get disability? I want to go to Guatemala and visit my brother, can i travel? can i go on a cruise? Thank you for your comments and any advice will ease my nerves.
Thank you for your reply. Is the weight and stress of carrying the baby harder on us Chiari patients? I really want to at least have 1 child of our own, my husband and i have openly discussed adoption but we both agree that we would at least like to have 1 child of our own. I have to admit i am scared of getting pregnant and it being bad on my body. There are many Chiairi specialist here in Stamford CT i had to go see Dr. Retake at TCI in NY. He assured me that he highly thought i would be able to have a child before or after surgery but given my age i would much rather have a child now than after surgery, if i decide so. That is another part that scares me Selma, the decision to have surgery. He asked me to score myself and i scored myself at a 70 and he said they didnt recommend anyone above a 70 to have the surgery, which caused me to question the severity of my chiari now and if i should go ahead and have a baby now. My gyno told me it would be a high risk pregnancy and that they would do a c-section, does that sound about right? Thank you for the book tip, i will be sure to get it. Truth is Selma this Chiari issue terrifies me and i just want to live and be here with my husband and family that i love so much. I am not working at this time because i was let go in August, after my ER visits at end of July. That's another thing and im sorry if i am too upfront, can we work? I am looking for a part time job instead of full time, can we get disability? I want to go to Guatemala and visit my brother, can i travel? can i go on a cruise? Thank you for your comments and any advice will ease my nerves.
I am posting to let you know that you are still in my thoughts. I hope today is a little better for you and that you are caring for yourself. Stay current with this forum. There is great support and encouragement.
COMMUNITY LEADER
Hi....I had a child and it was a natural , normal delivery ...though for a few hours I was told I might need a C-section....this was years b4 I knew I had Chiari....
Most ALL NS's will tell you surgery is your decision.....it was mine and I decided to have it...but as I said it was years after I had my DD....
My pregnancy was considered high risk but not bcuz of Chiari.....do talk to your OBGYN and get a book on Chiari and pregnancy by Diane Mueller.....
So many of us have had children b4 we got our DX and yes, I had symptoms as long as I can remember....so it is not that I never had issues....they did not have MRI's then, so no way to know what was going on.....
When you have surgery will be up to you...but I would think it would be a few years after surgery b4 you would feel up to getting pregnant.
Hello KirstyyPie,
I have read through and im sorry for you loss, my thoughts and prayers go out to you and your fiancee. I am 31 years old and diagnosed with Chiair type 1 back in May of 2014 when my husband and I were trying to get pregnant. We stopped the process ( we were receiving some help from RMA) in July when i got really sick. I have not decided on getting the surgery yet, my local NS said it was my decision to have surgery and Dr. Ratake from the Chiari Institute in NY said the same thing, he said i would not die from this, it was my choice to have surgery depending on how much it affects my life. I share with you ladies the same issue, my husband and i have been together for a 6 years and no pregnancies as of yet which is why last year we decided to get some help and were ready to be parents. given my age, i will be 32 this year, do any of you recommend i have the surgery first or should and can i proceed with a pregnancy before surgery? I was told the same thing KirstyyPie, that a C-section is required and i was told it would be a high risk pregnancy, any thoughts?
I have read through and im sorry for you loss, my thoughts and prayers go out to you and your fiancee. I am 31 years old and diagnosed with Chiair type 1 back in May of 2014 when my husband and I were trying to get pregnant. We stopped the process ( we were receiving some help from RMA) in July when i got really sick. I have not decided on getting the surgery yet, my local NS said it was my decision to have surgery and Dr. Ratake from the Chiari Institute in NY said the same thing, he said i would not die from this, it was my choice to have surgery depending on how much it affects my life. I share with you ladies the same issue, my husband and i have been together for a 6 years and no pregnancies as of yet which is why last year we decided to get some help and were ready to be parents. given my age, i will be 32 this year, do any of you recommend i have the surgery first or should and can i proceed with a pregnancy before surgery? I was told the same thing KirstyyPie, that a C-section is required and i was told it would be a high risk pregnancy, any thoughts?
I am so sorry for your loss. I also miscarried in much the same way you did. It was after my son and before my daughter. They are now 16 and 13. I would like to say that as much as it hurts now... The ache will get better.
Did they do a D&C after? I recommend you ask for one. 1st it helps the body to get back to normal and to make sure nothing was missed that could hinder a successful pregnancy later.
Talk to people, especially women who have gone thru this before. It's ok to feel sad, lost, maybe a little angry. That's part of grief:( I had a very hard time, but a very good friend was there. And she was suffering after the same loss. We were able to help each other thru the years. Of coarse I'm a talker, but I do not believe you could give Tmi:) sometimes you just need to voice it to make it less...
Hope this helps. May God keep you in his embrace!
Did they do a D&C after? I recommend you ask for one. 1st it helps the body to get back to normal and to make sure nothing was missed that could hinder a successful pregnancy later.
Talk to people, especially women who have gone thru this before. It's ok to feel sad, lost, maybe a little angry. That's part of grief:( I had a very hard time, but a very good friend was there. And she was suffering after the same loss. We were able to help each other thru the years. Of coarse I'm a talker, but I do not believe you could give Tmi:) sometimes you just need to voice it to make it less...
Hope this helps. May God keep you in his embrace!
Congratulations!!!!
I had a miscarriage with my first child with awful headaches and we never found out why. My second pregnancy with my daughter who is now about to be 4, ended up being a C-section due to so much pressure at the base of my head an neck while trying to push and then she was stuck at 7cm on my cervix bone. It was a rough C-section after going through labor. My third pregnancy with my son was amazing, and I enjoyed it very much. He was a scheduled C-section as my hospital doesn't allow VBAC's. And my son will be 2 in a week. I just was diagnosed with Chiari the end of November 2014. Now knowing what I know I truly am happy that I ended up needing C-sections. Good luck momma and yes I think you should mention a Csection to your midwife.
I had a miscarriage with my first child with awful headaches and we never found out why. My second pregnancy with my daughter who is now about to be 4, ended up being a C-section due to so much pressure at the base of my head an neck while trying to push and then she was stuck at 7cm on my cervix bone. It was a rough C-section after going through labor. My third pregnancy with my son was amazing, and I enjoyed it very much. He was a scheduled C-section as my hospital doesn't allow VBAC's. And my son will be 2 in a week. I just was diagnosed with Chiari the end of November 2014. Now knowing what I know I truly am happy that I ended up needing C-sections. Good luck momma and yes I think you should mention a Csection to your midwife.
COMMUNITY LEADER
EDS is Ehlers-Danlos Syndrome this is a connective tissue disorder that is related to Chiari...many of us with Chiari have this condition as well. Hyper mobility type of EDS is the most common but there are many types and you should be checked for this condition as it too can affect how you recover from surgery.
BTW- my DD is going on 4 yrs trying and she was DX'd with endometriosis and had surgery to remove some of the scar tissue....endometriosis is related to EDS....and can have an affect on getting pregnant.
Thats what my dad said too about my body not been ready yet.. and yeah my fiance said at least you got pregnant so maybe one day it might happen again.. still heartbraking thou no matter the reason :( isnt it. wow 5 years bless ya! it had been almost 3 we had tried for and then i got sick so left it as i was too poorly its so frustrating isnt it, espech when i know so many people pregnant atm and most of them didnt even wat a baby was an accident :'( .. what is EDS? and aww thats lovely :)
COMMUNITY LEADER
I agree no one should have to go thru it either.....but I think you can look at this as a positive....meaning...it can take your body up to 2 yrs to fully recover from this surgery and it may have been your body's way of saying you are not ready....and that is good bcuz you did get pregnant....I tried for 5 yrs....so I know...and it also brings to mind what I have found out since my Chiari DX...that EDS can play a role in becoming pregnant....so if you have not had this ruled out yet,, do it now...it may help in the long run....BTW I have a wonderful daughter I could not be prouder of....
My prayers continue for you and for some sense of ease (if there can even be any) for the pain you are in. I have no words that could even come close to soothing you. Please just know that you are in my thoughts and continuing prayers.
Thankyou both of you, your kind words mean alot to me.
SelmaS - im so sorry you went thru this too,it is heartbreaking and no1 should ever have to got thru it.
Feel so down- Like i have missed my chance as i thought i could not have children before and we had been trying for years :( .
Was a missed miscarriage too so i had to wait almost 3 weeks knowing my baby had passed and waiting for it to happen :'( .. And then i thought i had passed everything (sorry for tmi) but i had not they called it ongoing and was just over 2 weeks before it stopped.
I also feel like my body is just playing cruel tricks on me its been a month since my miscarriage actually started and i passed thing, and have felt like maybe i was getting af now and my body could return to normal. i have been feeling like it all week and still nothing. had one spot of light blood yesterday thats it. and now last few days i have started to feel like i did when i first got pregnant before, back is aching and very mild pains in pelvic area, cant stop weeing, getting sensitive to smells again and some making me feel sick. but im not pregnant i did a test today just to be sure so feel like my body is punishing me or something :( .. asif im not heartbroken enought! ...
Sorry for the life story and tmi .. just needed to tell someone how i fell.
SelmaS - im so sorry you went thru this too,it is heartbreaking and no1 should ever have to got thru it.
Feel so down- Like i have missed my chance as i thought i could not have children before and we had been trying for years :( .
Was a missed miscarriage too so i had to wait almost 3 weeks knowing my baby had passed and waiting for it to happen :'( .. And then i thought i had passed everything (sorry for tmi) but i had not they called it ongoing and was just over 2 weeks before it stopped.
I also feel like my body is just playing cruel tricks on me its been a month since my miscarriage actually started and i passed thing, and have felt like maybe i was getting af now and my body could return to normal. i have been feeling like it all week and still nothing. had one spot of light blood yesterday thats it. and now last few days i have started to feel like i did when i first got pregnant before, back is aching and very mild pains in pelvic area, cant stop weeing, getting sensitive to smells again and some making me feel sick. but im not pregnant i did a test today just to be sure so feel like my body is punishing me or something :( .. asif im not heartbroken enought! ...
Sorry for the life story and tmi .. just needed to tell someone how i fell.
My prayers for you and your family are to find peace and comfort in God's hands. I am very sorry and sad to hear of your loss. What are the right words to comfort one with your depth of loss? You will be in my prayers for a while, and I wish for you to comforted by God.
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