I wondered if any of you with Chiari (and related illnesses...i.e. POTS, etc...) who have a handicap parking placard get looks when you get out of your car and walk to the building/store you are at?? We got looks/whispers the other day and well many other times bc I have one. One time someone said something outloud. Well I walk with a limp now and so it is worse, so I have to use it. I don't use it bc I want a close parking spot!! Ppl make me mad. I remember reading the information for getting a card (from my doctor) and it said for neurological, heart problems and more....! I guess people think that you have to be in a wheelchair, on crutches, a cane (I should use one but I try to just use my husband - I hate using it), or old to have a placard!!!
So anyway, I was reading on the local newspaper's website awhile ago about someone complaining that people who don't look handicap should not be allowed to have them and that it is fraud! Oh well you better believe I said my peace on the issue to them. She said that next time she sees someone who is not using a wheelchair or cane (something like that) who do not look handicap that she was going to call and report them (by license plate)!!!! I said you don't have to "look handicap" to use one that people with breathing difficulties, heart problems, and neurological are allowed to have them, etc.. well they ignored me, evidently they think I am wrong about that. Someone told me that next time I get looks to say outloud: "Can you sayyyy BRAIN SURGERY"!!!
I just wondered if you have any advice on this subject or what would you do? Also how do you feel about it and have you got looks/whispers?
I am at my wits end with people. Can you tell? ha ha. We have so many symptoms with our condition that some of us just can't take all the walking and we need to rest after some walking steps. I myself have so many symptoms and they have become worse and I have the breathing difficulty, POTS (although that is not what he called it but I know what he said it is that: The Tachycardia, Low BP, and blood pooling to the legs...plus all my other horrible symptoms (long long list).
Well talk to you all later,
Melissa