Chiari Malformation Community
Chiari,stroke,possible other dx's
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Chiari,stroke,possible other dx's

I am 5 years post decompression, laminectomy c1- partial c-2 with duraplasty. Came out with really no complications but then migraines started but controlled. Now feels like an elephant sits on the back of my neck and shoulders then extends down to the middle of my back where the real pressure and pain sits on top of my behind.

My NS sent my for 2nd opinion to Pediatric NL who specializes in Chiari. All he told me was my Chiari was acquired and because I had a cerebellar tonsillar stroke, that is what caused mine (never mine I am having symptoms). I need to see a Vascular Neurologist. I need more than just a cervical MRI and I need a Cine MRI.

Let me add...
1. As a child I was told I was to lazy to hold my back up but did not have scoliosis but when I had my child, the anesthesiologist said I had scoliosis.
2. My stroke happened when they found the chiari in 2008.
3. Right arm / shoulder has been hurting since November 2012. I have been through PT and Ortho and stopped. It keeps pulling my neck. I was told " frozen shoulder" but when my neck muscle is not tense it is ok.

I guess my questions are: how do I get those tests, what do I do about the scoliosis, don't mention work. The NL said have the NS or PCP do it. Te NS says if he wants it done then he needs to order it.  WHAT? Patient Care here?
Tags: Chiari, Stroke
620923_tn?1405964489

  Hi and welcome to the Chiari forum,

Post op care is minimal at best...once we heal form the surgery we r no longer a patient of the Drs that know and understand Chiari....so we r set adrift alone without a paddle...scary and sad.

May I ask did ur Drs rule out ALL related conditions to Chiari b4 ur surgery, and if so what ones do u have?

Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
4487186_tn?1362148262
Blank
ambyj commented on ambyj's status
11 hrs ago
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
18 hrs ago
620923_tn?1405964489
Blank
selmaS commented on photo
23 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Avatar_n_tn
Blank
wonderchiari
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Avatar_n_tn
Blank
wonderchiari
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN