I was diagnosed over 2 years ago but never got around to going to the Chiari Institute in NY as suggested by my geneticist, mostly because I also have Ehlers Danlos Syndrome and know so, so many people who have had the decompression surgery and nearly all failed. So they say, it's due to also having EDS. However I have been suffering terribly for over 5 years with severe short term memory loss & was even put on Aricept (usually used for Alzheimer's) about 5 years ago & have become increasingly severly depressed. I seem to be resistant to all or most anit-depressants, years of therapy & more. I have only recently found that all of my symptoms could actually be related to the Chiari & was actually told be a friend who knows more then any doctor I know about EDS & Chiari. I'm also an RN & am a bit embarrased that I haven't gotten myself checked & had to find this out from a friend, after seeing so many Doc's for so long.
Question: Have many of you had the same symptoms & had surgery & done well with the symptoms disappearing afterwards & which Docs have you used? Thanks so much for your help.