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Chiari with neuromyelitis ptica

Does anyone have both of these conditions? I had a decompression surgery on 11/1/11 for my Chiari but I have found out that all they did was remove the bone around the brain stem
And shaved c1 my tonsilis are still hurninated to C2 and he didn't open my dura, still many complaints and pains!
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620923 tn?1452915648
COMMUNITY LEADER

  Sounds like u had a bony decompression and did not have a dura plasty, if u r still having issues u may want to have it reviewed....

I am not sure what u mean by NMO?
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Avatar universal
Thank you for your response.  I had no symptoms other than a week before my "emergency" decompress when I became unable to see in one eye.  I felt like I had a blind spot.  Well 2 days before my surgery I was unable to move and had a SEG rate of 22.  I did follow up with a NL and did get a second opinion.  I was dx with NMO on Dec. 15, they started a high dose of immuniosuppersent drugs and I went into what he referred to as "remission", but 6 months later I am experience the symptoms again.  I have see a Chiari Specialist as well, went to Denver to see him.  Was kind of a waste because I was not 6 months post op.. Biggest frustration is people wanting to only focus on my Chiari and not treat my NMO...
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

  Not sure if u meant ptica or optica and if u meant neuromyelitis optica .

Neuromyelitis optica is-an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin (fatty, protective covering of nerves) that almost exclusively affect the optic (eye) nerves and spinal cord. It usually causes temporary blindness, occasionally permanent, in one or both eyes. It can also lead to varying degrees of weakness or paralysis in the legs or arms, loss of sensation, and/or bladder and bowel dysfunction from spinal cord damage.

It appears as though there are two major types of NMO. In the first type, optic neuritis, (inflammation of the optic nerve), and myelitis, (inflammation of the spinal cord), episodes tend to come very close together often within days or weeks, and there is no recurrence after the initial flurry of symptoms. In the second form, repeated episodes of optic neuritis and myelitis occur that are separated by months or years.

I would have to ask if ur NS was a true Chiari specialist and what ur symptoms were b4 surgery and what u r dealing with now..nething new?

Many with Chiari have optic issues....and spinal issues for that matter.Without seeing a true Chiari specialist, it may be a  mute
point to continue this further.....

  U deff need another opinion as u r having issues....as for ur tonsils still being herniated that is pretty typical, as they usually leave them alone and just make room for CSF flow,.

    "selma"
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