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Chicago Chiari Specialist?

My daughter is having a difficult time getting diagnosed, she has had the flat MRI and is seeing neurologists, but she needs a specialist.  Having all the symptoms, 4 women in our family have already had the brain surgery, we need to find a specialist in Chicago!
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620923 tn?1452915648
COMMUNITY LEADER

  Hi...yes, he does see children, but may also know others in the area...most Drs do know others in the field...so he may be able to refer u.

  Keep us posted : )

   "selma"
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Avatar universal
My daughter is 27.  All the women started having severe signs arounrd this age.  Also ehlers danlos.  She had a CSF collection done yestday and feels normal today because it released some of the pressure.  She is a patient now at Northwestern, but they do not have the capability of doing an upright MRI.  By the time her cousin got help her tonsils had already herniated.  I will call dr frimm, but he does children - we'll see
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

There is a Chiari specialist in the Chicago area...a Dr Frim......his info should be on our Drs list ...be advised this is not a referral nor is the list, it is just a means to help u find Drs and do the research to find the right Dr for ur DD.

Please see our list for more info and other names...scroll to the bottom of this page and click on the Health Pages link....and look for the list of Chiari drs.

   "selma"
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