Hey I had my second cine MRI yesterday and waiting for my results.last time(6 months ago)I was told I was blocked with mildly diminished flow so I was wondering how much does your flow have to be diminished before it causes problems?I have an 8-11 mm herniation depending on which dr. You listen too!!and daily headaches but no other symtoms
I was wondering this as well. My cine MRI says that I am blocked in the 4'th ventricle, right now I have symptoms but not to the extreme to have surgery yet. I don't know about the future though. I have 11-13mm herniation. Did the doctors tell you that surgery depends on the symptoms more than the blockage, i've been told this.
Hey,great to hear from you I don"t often find messages from people with the same type of issues as me,Thankfully I dont have many symtoms except the headachesWhat problems do you have with your chiari?Still waiting for my CINE results
Hello, My headaches are not as bad as they used to be. About 15 years ago I was suffering so bad with the headaches, dizziness, nausious, i then went for acupuncture and she did magic for my pounding headaches. I never get them like that anymore. But now after my children were born i have more neurological issues, like hand weakness and joint issues and leg/feet weakness, swollen feelings as well. It's been staying pretty much the same the past few months but it's hard to tell what will happen. My shoulders and neck are always stiff but that's something I'm pretty much used to at this point. I also have other issues going on so it's hard to know what's coming from chiari and what is other issues. I have bad degeneration in my neck and scoliosis which could be a cause of some of my problems as well. So right now I'm learning as much as I can about chiari and meeting new doctors. I'm glad to hear that you are only suffering from the headaches, do you have a doctor that is following you that you are happy with?
Hey,finally got my cine mri report back,man am I confused!!My Neurosurgeon says that even though theres very little change from 6 months ago he thinks I should have surgery soon because he believes its going to get worse soon "so lets be proactive not reactive".But the Chiari Dr. I saw 6 months ago told me "You have somewhat low lying tonsils without a true chiari syndrome"I have a hernation of 8-9 mm and my CSF is diminished with a flow velocity of.34cm/sec and.86cm/sec(anyone know what that means!!??)
I do know for certain that I won't be having surgery with anyone who is not a Chiari expert,I think my Neurosurgeon wants to open me up for pratice!!!
I'm glad to hear that you are only having headaches and not anything else. Just
because that doctor wants you to have surgery because he thinks you'll get worse,
doesn't mean that you are. I think if you are able to handle your headaches and arn't
ready for surgery you should probably wait. I have gone to many doctors that some
say to have the surgery and others say to wait. It's pretty much up to you and how you feel. Also, I don't think you want to go to someone that wants to practice on you. Maybe
you should go to an expert and get another opinion.
Thanks I'm kind of of the same mind, think I'll wait and see how my mris go every 6 months unless I feel worse!!!the problem with seeing an expert is that I already did!!he doesn't even believe my headaches are chiari caused!!
Thanks Selma,I really don't think my headaches are migranes I've tried all the meds.and the headaches are more constant then that everyday from the time I wake up and also when they're really bad I feel like my head is going to explode when I strain etc!!dr batzdorf said it was lack of spinal curve in my neck but I tried physical therapy and muscle relaxors and it didn't help at all.my MRIs haven't changed in a year 8-9 mm hern. And partially blocked flow
I'm really doing well with the headaches right now but I seem to be having "dizziness" which I haven't had before,Its a strange feeling almost like when I turn my head my brain takes a second to catch up,if that makes sense to anyone!! Not sure if its a new effect of the Chiari or something else
thanks for your quick reply,It does'nt seem to be worse when I turn one way.I'm off to a headache clinic in Ojai CA tomorrow at the suggestion of my neurologist don't know how that'll go or if there's much point but I'm doing it anyway
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