Cleveland Clinic

Hello all, just got word that I will be heading to Cleveland Clinc to me with a Dr about my case. My symptoms are a day to day thing, different every day, some days are mild and others is worst. Any suggestions on any advice on the first visit??
thanks
Laura
Chiari 9.4mm

[selmaS]

Hi...congrats on finding a dr to work with you! Take a notepad with questions and symptoms listed and form ur questions from what u already know about ur condition.

Have u been tested for a syrinx or tethered cord?U may want to keep a journal starting now until u go so u can give the dr a better understanding of what u go thru on a daily basis.It is important to list what u did, how bad u hurt use a scale like 1-10....10 being the worst pain.

Read as much as u can on chiari and related conditions so u know what ur dr should be looking at u for and so u have an idea how the visit should go.

Please keep us posted on ur visit

"selma"