Hi Lisa and welcome to the Chiari forum.
We do have a list of Drs for your state....the names I will post below are here for you to research and are not intended as a referral nor an endorsement for those on the list.....the names were compiled by members here of Drs they have been to, treated by and liked.....if you find a Dr not on our list... and once treated please send us the name to be added to our list ...
OHIO
Dr. Lisa Lystad-Opthalmologist
Cleveland Clinic
9500 Euclid Ave
Cleveland OH 44195
Dr. John M. Tew, Jr.
Mayfield Clinic
Unv Medical Arts Bldg.
222 Piedmont Ave, Suite 3100
Cincinnati, OH 45219
(513)221-1100
OKLAHOMA
Dr. Caple A. Spence
8121 National Ave Suite 219
Midwest City, OK
Many of us have also had other DX's even after Chiari was found on a MRI....Chiari is not rare but well informed and experienced Drs are....so educate yourself on Chiari and ALL related conditions and find the right Dr.
I too am looking for a good Neurosurgeon in Ohio. I'm only about an hour away from Columbus. I just had an MRI on the 24th of this month and my doctor, well actually my Nurse Practitioner called to give me the results. Luckily he cared enough to have an MRI done. My doctor kept blaming my severe headaches on other things. I have an 8mm Chiari Malformation. I have several symptoms, but didn't realize they was all due to Chiari Malformation until I researched it. Now I'm hoping I can find a Neurosurgeon that will help me because I can't live my life like this. I hope you are able to find one to help you too.
Thank you for the information. That would be great if Dr. Di was coming to OSU. Not sure if any one knows for sure yet where he is going. I will probably have my GP send my info. to Dr. Prevadello and go from there. I'm thankful to have found this site.
I am hearing good things about Dr. Prevadello in relation to Chiari--Also, Dr. Chiocca (who just performed my surgery to remove a brain tumor) and Dr Rezai all at Ohio State Neurosurgery. Good Luck!! I have been thrilled with the NS team at OSU thus far and am hoping Dr Di will be joining them.
I have to agree with u on all accounts...this can be a very frustrating journey...and finding the right dr is key, and having the right support is crucial.
This forum was my God Send....and I pray we can be the same for u : )
"selma"
Thank you for your reply. I am only one of many who are dealing with this condition so I'm glad I found this place while seeking information on the web. It is a challenge to seek the right doctor and to get the help all of us need. It's great to have a forum where we can share thoughts, ideas, our struggles and encouragement.
We do have a list of Drs compiled by the members of the drs they have been to....not all members r currently active, but u can get some names to research from the list.There r 2 that should be good for u to check out.
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483
Dr. Daniel Prevedello,
recently moved from Pittsburgh, PA to Columbus, OH.
Ohio State University
Dr. John M. Tew, Jr.
Mayfield Clinic
University Medical Arts Bldg.
222 Piedmont Ave., Suite 3100
Cincinnati, OH 45219
Happy to have u join us, not happy for the reasons u had to seek us out.
"selma"