hmmmm interesting tidbit, this med is banned by the Olympics as it helps control stage fright.....lol....and tremors....oh my....I guess that can enhance a performance if u no longer have stage fright and no tremors...
Please let me know how it works for u.....
The new med is propranolol--a beta blocker. It's normally used for high blood pressure but is FDA approved for migraine.
http://en.wikipedia.org/wiki/Propranolol
I started it yesterday--1 tab for 3 days, then 2 tabs for 3 days, then 3 tabs for 3 days (monitoring vision the whole while)--then 2 tabs 3x/day--if needed. Who knows?!?!?! Certainly hoping it will help as the vision continues to deteriorate and it's been so long since I had 'normal' vision.
Oh my...well at least u r moving forward not backward and if they can get positive results with meds, that is better than more surgery......
May I ask what meds it is ?
Please keep us posted on how the meds work for u, as I pray they do help.
"selma"
I've gotten the official dx of small-fiber neuropathy. The QSART results were abnormal and the NL says that it wouldn't be CM-related b/c it measures the actual small nerves, not the brain's message to them.
But, it doesn't explain the visual symptoms (which I feel are CM)--the NL wants to try treating it as a 15month aura w/out the typical migraine headache...so, the next month or so we are going to give meds a chance. Depending on how the meds effect the vision, it'll help me to know if it's migraine or CM. Then, decompression if needed.
Always another question around the turn, isn't there???????
Please keep me posted on what u find out, I find this all very interesting too : )
"selma"
Selma--Very interesting! My NL had the QSART done since I have numbness in my hands and forearm and unusual feeling in 'pockets' around my body. The QSART is showing that points farthest from my brain/heart (foot, wrist) are not receiving the signal as they should. I am curious to see if he feels that is due to herniation or something else. We shall see!
Well this is interesting as this is something I have yet to figure out...most of my life I felt I never really perspired.....which was not an issue as least not to me at the time...in the last few yrs 3 or so, I had been dx'd with Hashimoto's and noticed I was ice cold but sweating profusely in my underarms....
If this is small fiber neuropathy...I am not sure as I am seeing a change in this too as my symptoms r still changing.....so ...I am open to learn more ....
"selma"