Cousins Dr is looking for more info

[jiggle93]

Hoping Chiarians can help us out!  My cousin has been getting a run around of her own. First told she had MS, then they decided Fibro, but as of now the Dr. is looking into Chiari as she and I have many of the same issues.  She is scheduled for a MRI to determine, but the PCP Dr is having her question me further about chiari symptoms.  She has been experiencing lactation and they cant figure out why. I have not had this problem. Thyroid is also being checked, but she wanted me to ask if anyone else has experienced this problem?  She is 34 and had her last child 2 years ago.  

[jiggle93]

Thanks Rylanesmom,
Waiting to hear back from her.  Selma, I will let you know what happens.

[Rylanesmom]

Pseudotumor can cause that.  I have empty sella fom Pseudotumor and chiari.  They said pressure is so high that pituitary is forces out of the sella where it belongs.  She would need an endocrinologist.  I know that lactating is a sign of pituitary not functioning correctly as it was a question I was asked....mine was ok. (pituitary)....just relocated

[selmaS]

  Please keep us posted on how she is doing.

[jiggle93]

Thank You so much!  I will send her all of the info! I'm sure this will ease her mind a little...always good to know someone else is aware of what is happening and its not you "being crazy", so to speak.

[selmaS]

  Sorry noticed that the link did not copy,,

http://www.medhelp.org/forums/search/257?utf8=%26%23x2713%3B&query=house

[lynnbrook177]

Watch the educational video tapes from Dr Balagnese at the New York Chiari Centre.  He explains everything, even the lactation was mentioned, as Selma said, due to the pituitary gland being flattened, when there is too much ICP.  I am so glad I fould these videos -- I have learned so much!...now if I could only get my doctors to watch them!

[selmaS]

  HI...yes this can be an issue for those with Chiari in fact it was one of the issue when Chiari was featured on HOUSE...if the Pituitary gland is being compressed this can happen.

Here is a link to several threads on this topic and the HOUSE episode.