DO you have a Medical Alert Bracelet for CHIARI?

[selmaS]

I was wondering if neone hear has gotten a medical alert bracelet.

If we are in a MVA or some other incident and con not reply we need to be able to let the ER techs know our condition.

Did you know that Med techs in the ER are trained to check cell phones ICE feature?
A-yes
B- no
Do you wear a medical bracelet
C- yes
D-no
If you have Ice on your cell phone is your chiari dr listed?
E- yes
F-no

[Shelltn]

I'm so sorry for your family's loss, we suffered a similar tragedy in Dec 2008, when my 15 year old niece died in a car accident. She was with a coupleof classmates & she had her sister's cell phone (which wasn't found at the site but come to find out, the girl driving-who caused the accident by driving in excess of 100 mph on a 35 mph rd while taking pics of her speedometer & texting& lost control after going airborne & hit a pick up truck head on, the 2 class mates walked away, my niece did not & the driver has had my niece's phone this entire time. )Oh yea, to this day, the driver has not even received a speeding ticket for the accident, much less been charged with reckless driving or vehicular manslaughter.... My brother is still trying to get justice for his daughter.

Anyway, sorry I kinda went off track, very intense subject matter even after 3 years.... I miss her every day, she was 6 months  younger than my daughter to the very day, so they were very close.  

The Andy card is a great idea... Sometimes we don't have our wallet with us, or we're in a different vehicle, jewelry can be lost or stolen (just like my niece's phone, which another classmate just recently returned it to my exsisinlaw after seeing that the driver is who stole it from the scene &she tiok it from the driver without her knowing it&my exsisinlaw still can't look at it yet. I told her there may be something we need on it for the criminal charges, but she can't do it yet)


Ok,  I gotta get off of  here...

Medalert tattoos with info sound great, too....

[amber1113]

My brother was killed in a car accident in november 2010. He had ICE on his phone but his phone was demolished. It took 4days to find his phone. his wreck happened at 830 in the morning. My family did not find out that he was in a wreck till almost 1 in the afternoon. Since the wreck my mother has started the ANDY card foundation. The andy card is a card to carry emergency contacts on. It is very bright colored and we are working with state troopers and others. State troopers in the NC area know to look for the ANDY card in an  accident. www.andyhovis.org is the website where more information can be found

[selmaS]

I agree with u...and that is y u have to assume the responders may not know and google the conditions...u want the info they find to best describe how u r affected and the best way for them to handle u.

[drewlevas]

Thanks I needed to ask, its not always easy to know which words to put on a medicalert bracellet, so the first responders can help us at their best.

[selmaS]

  If u were dx'd chiari u want to have chiari...not Cerebral tonsil ectopia as  the deff for that is low lying tonsils that do not meet the criteria for chiari malformation.

As for the syringomyelia/hydromyelia if u were dx'd with it add it.....nething the medics can know to aid u when u can not give them the info should be included.

  JMHO

[drewlevas]

I am thinking about getting a medicalert bracelet!

But I was wondering should I write Chiari type 1 malformation on it or Cerebellar tosil ectopia or even both on it! And does I mention hydromyelia/syringomyelia on it. Along with some of my symptomes like heart arythimia?