Chiari Malformation Community
Desperate Need of NS
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Desperate Need of NS

I am writing because I am trying to find a dependable NS. I was going to go to the Cleveland Clinc and see Dr. Mark Lucino but the Clinic does not take out of state Medicaid any longer. I am having extreme issues and need an MRI soon as Possible I live in Indiana...and really don't trust any Doc's around here...Any Suggestions..anyone know of a specialist in the Chicago area?
5 Comments Post a Comment
Blank
620923_tn?1404844667

  Hi...have u looked at our list? I know there is a Dr Frim in Chicago.....but there may be more on the list.....http://www.medhelp.org/health_pages/list?cid=186

Sorry u could not go to CC.....another possibility would be the clinical trials?
Blank
Avatar_f_tn
Thank you, I am going to check the list out and hopefully find someone that I trust, you know this is our life and I want a NS that completely understands my condition. And what are the clinical trials never heard of it?
Blank
620923_tn?1404844667

  There is a group of Drs that do surgery and record the results as a way to get data...many that can not afford to get to a Chiari specialist go this route as it is fully paid for...if u r accepted into the trial..they may monitor u for some time afterward....they may want someone with Chiari and syringomyelia, or with EDS...to see what the effects of certain dura patches are etc.....

  It is a well respected Chiari Dr that heads this up in MD.....

http://www.clinicaltrials.gov/
Blank
Avatar_f_tn
Thank you for the info..I learn something new everyday...I'm going to check this out.
Blank
620923_tn?1404844667

  We have a few members that have participated in the trials so if u post about that u may get more info as to how it worked for them.....

  Good Luck : )
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
9673424_tn?1405211680
Blank
NeuroGoth joined this community
Welcome them!
Jul 12
1823499_tn?1370093889
Blank
Sexybare craniocervical fusion done ... Comment
Jul 12
510038_tn?1398389277
Blank
oops1990 =] Comment
Jul 11
Top Neurology Answerers
620923_tn?1404844667
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
This is Driving Your Emotional Eati...
Jul 02 by Roger Gould, M.D.Blank
5856747_tn?1403352282
Blank
Sleep Apnoea
Jun 28 by Andrew John Rynne, MDBlank
Top Neurology Answerers
620923_tn?1404844667
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH