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Do i have chiari malformation
by Ramzink, Nov 01, 2009 09:45PM
I have an extremely smal chiari malformation. My brain comes out but very minutely....i sent my MRI's to the chiari institute in wisconsin and they said that i do not have one, but could my extreme facial pain and headaches at alarming frequency (daily, 3 times a day migraines) be due to this tiny portrusion....or does the brain have to be coming out significantly?
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There r two camps on this issue there r some chairi specialists that say u can have a minimal herniation and still have chiari and it has been termed chiari 0.
Many others believe that the herniation must be 5mm or larger to be considered chiari.
We have many with chiari 0 that have typical chiari symptoms....getting treatment for larger herniations is really not easy so I can symptahize with those with the very minimal herniations.
It is possible to have migraines in addition to chiari HA's so u deff need to try pain management and keep getting checked...and avoid triggering the chiari to grow.
The othe rquestions I have is...have u had MRI's of the cervical spine, thoracic and lumbar?...this is to rule out a syrinx and or tethered cord...also did u have a CINE MRI to have ur CSF flow checked for a blockage?
The blockage of flow is more of an issues as well as compression on the spine...overcrowding.....and symptoms and quality of life.
Depending where u live u may want to try and get to a NL that understands Chiari to do further testing.
Welcome to the family here : )
"selma"
I alos was told my Dr. H that I do not have one as my herniation is only 4mm. I had a NS at the CC tell me I do have it it is just does not need surgery. make sure you get the help you need to relieve the pain and dont give up.
the support from the friends here will help you through this.
if you ever need to rant or vent please feel free to PM me.