Run ur mouse over the name of the person u want to PM (the blue name is a hyper link) u will see a list pop up or u can click to go to the profile page to find it listed there too....
Sorry how do you PM again? lol I'm not too bright.
I told u...it is when u have low lying tonsils, like in chiari...but see it does not meet their "criteria" so they want to call it something else....
ec·to·pi·a (k-tp-)
n.
An abnormal location or position of an organ or a body part, occurring congenitally or as the result of injury.
cer·e·bel·lum (sr-blm)
n. pl. cer·e·bel·lums or cer·e·bel·la (-bl)
The trilobed structure of the brain, lying posterior to the pons and medulla oblongata and inferior to the occipital lobes of the cerebral hemispheres, that is responsible for the regulation and coordination of complex voluntary muscular movement as well as the maintenance of posture and balance.
PM me who this Dr is again, sorry I forget who it is.....this is bugging me.
I have no idea either Selma. I just want to cry. I can't find anything that tells me what cerebellar ectopia is. I've tried to google it and am coming up empty. I don't know why he's told me to do this. I guess I'm going to try acupunture to see if they can help releive some of the pressure in my head. It's constantly there on a daily basis. Maybe he's just trying other things first. IDK but I can't take this anymore. I need answers. Thanks selma for being here to help.
Y traction, do u have cerviocranial instability?....I am as confused as u....
He is a chiari specialist and he said that he trained with the Dr's that did the research on chiari. So I don't know what to do now. He said that I need to do cervical taction 4lbs 1 hour daily and increased my Gabapentin. Then follow-up with him in 6 weeks. This is that Dr. I was telling you about. He is a chiari specialist. But maybe I should get another opinion.
It means ur cerebral tonsils are herniated...this happens with chiari....
The criteria in most Drs eyes is a 5mm herniation, however, it is not the only thing they should be looking at, unless u have a true chiari specialist u will only get frustrated.
U may have to travel, I went out of my state to go to a chiari NS....the ones here have no idea.....
Did they do a CINE MRI?...Check for overcrowding?...check for syringomyelia?
Deff get another opinion...get copies of all MRI's and u can send them for a review by many chiari NS's...some charge a minimal fee, some do it for free....but it is well worth the efforts to go to a chiari specialist.
"selma"