Chiari Malformation Community
Droopy Brain? Is this Chiari?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Droopy Brain? Is this Chiari?

I have had 2 different MRI's for the headache's I've been having - never got headaches before - but these seem to come on pretty fast and very strong, so I started seeing a Neurologist.

Headaches went away for a little while, and just started coming back - so the Neurologist sent me to get an MRI of my neck (c-spine).  Just got the diagnosis today - but again - as with the other ones - nothing seems to be wrong - spine is fine and aligned - but there was an "observation" that my brain kinda droops.

Is this Chiari? I started looking up "droopy brain" and found this site.  The Dr really didn't go into it much and didn't even give it a name.  I was kinda making fun of myself saying I have droopy brains - but apparently it's not something to laugh at. I guess I need more info on this subject.

Kellye
Related Discussions
2 Comments Post a Comment
Blank
1179332_tn?1297482590
Hello and Welcome,

I have to say, that is a really weird way for them to describe it!! Did they mention anything about crowding or a herniation? If it is Chiari, the Dr that took a look at your MRI pics does not seem to know a lot about Chiari otherwise I think it would be described differently.

There are different options that it could be:

First, you have the crowding in your brain but not a large herniation, this would be called Chiari 0 and will be very hard to get dx'd with unless you see a Chiari specialist. Most NS stand by the criteria that if you herniation is not at least 5mm, they won't do anything about it. The problem with that is, if you have crowding w/blockage of CSF flow, you can have symptoms just as badly as someone with a 10mm herniation. A true Chiari specialist will know the difference.

Secondly, you do have the 5mm or more herniation and it is just not being recognized. This happened to me, no mention was made on my MRI report and I was left for 6 months longer, rapidly getting worse and with no diagnosis.

So, my first question...when do you see this NL to go over your MRI? Be very clear to him/her that you want to address this. NL's are not the right Dr to be making decisions regarding Chiari and if they are good, they will refer you to a NS.

If that doesn't happen, you will need to do it yourself. Here is a list of specialists that other members here have used and liked, be careful to research them on you own too.

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1293483

I can't stress enough how important it is to get a NS to look at your scans if there is any likely hood that it's Chiari!! Unfortunately, with this condition, most of the time we have to fight for ourselves!! This site is a really good place to get support while you are going through this, so please make use of it.

Take care
Carolyn
Blank
620923_tn?1413427272

  Hi and welcome to the Chiari forum.

Carolyn did a great job giving u the info u need....the best thing u can  do  is find a true chiari specialist...use the list to research drs, u may need to travel to get to the right dr for u....but know they r out there : )

We r happy to have u join us, but not happy for the reasons that bring u.

  "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
awesomesauce33 commented on Body Builders, Kidney...
Oct 21
Avatar_f_tn
Blank
ihatechiair added the Pain Tracker
Oct 21
Avatar_f_tn
Blank
ihatechiair joined this community
Welcome them!
Oct 20
Top Neurology Answerers
620923_tn?1413427272
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
Avatar_n_tn
Blank
wonderchiari
1667208_tn?1333111449
Blank
zygy2
NH
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1413427272
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
Avatar_n_tn
Blank
wonderchiari
1667208_tn?1333111449
Blank
zygy2
NH
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN