A lot of us do start that way, noticing throat numbness, swallowing difficulties and for me, I had these weird spasms in my throat. It could be that you are one of the lucky ones who got dx'd before they could progress to other symptoms but in a lot of cases, people do have other symptoms but may not have realized they are part of the condition.
As Pam asked, have you been dx'd with Chiari? Or are you looking as it as a possibility due to your symptoms? I encourage you to read through the site and the health pages which should help you as well.
I have many of the same questions both Carolyn and Pam already asked....and want to stress that u may have other symptoms but do not recognize them as u have always had them and may consider them "normal"...plus, we also naturally compensate for issues like those and we never consider them symptoms.
Once u learn more about chiari u may realize that u have more and more symptoms than u thought.
We r happy to have u join us, but not happy about the reasons that bring u.
Actually, it is my 2 year old son that has the swallowing issues. He has had 4 swallow studies in which he has aspirated thin and thickened liquids. Fortunately he hasn't had aspiration pneumonia. He doesn't have any issues with regular food but does tongue thrust with purees such as yogurt, applesauce, etc. He has been diagnosed with Chiari Malformation 1. We haven't noticed any other symptoms at this point. No developmental delays, good muscle tone, doesn't complain of headaches or any other pain etc. Anyways, we have been to many ENTs and GIs who have basically ruled out all other causes for the swallowing problems. We have scheduled his decompression surgery but are scared that we might put him through the surgery with no results. I have found a some case reports for people who had CM1 with dysphagia as there only symptom. I am hoping this is the case for my little guy!
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