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Electical Implant for Occipital Neuralgia
by Shelly2628, Sep 03, 2009 03:29PM
I was diagnosed with Chiari 1 Malformation of the brain. I have been on this website before and it has been a long time since I have been here. I underwent a decompression surgery with C1 laminectomy in August of 2007. Little did i know that the surgeon was NOT a specialist. Since then I have moved from Wichita, Kansas to Littleton Colorado and visited with a Chiari Specialist named Dr. John Oro. He ran some more tests, MRI, CSF flow study ETC. I have been in SO much pain everyday and I am on medications, but they only help a tiny bit. Dr. Oro is referring me to a Occipital Neuralgia doctor to have a electical implant in my occipital nerves. I read a newsletter that hit home with me at the november 2007 issues where a lady named Kristi Helm had been going through the same issues. It was wonderful to hear her story. I was wondering if anyone else has had this implant done. If so, what can I expect? Any advise would be great!!! ???
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I am so glad to hear the option of this implant is a positive for u.
And many of us here have been told that drs that r not specialists can do the surgery, but do not have the experience to deal with all that may crop up during a procedure.
Dr Oro is one of the best in the country and I am sure whomever he referrs u to will be just as good in his/her field.
Please update us on the method, I have never heard of it.
Good luck collecting info and on the procedure.
"selma"