Chiari Malformation Community
Excessive Thirst
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Excessive Thirst

Hey everyone, i spoke with a professional last week who advised me to drink lots and lots of water.  do any of you guys suffer from excessive thirst? the dr said that not having alot of spinal fluid makes you very thirsty so it is important to take water with you wherever you go...
just a heads up, i know i cant live without lots of water.
p.s. i am new to the site and it is helping so much, a big hello to everyone :)
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13 Comments Post a Comment
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1388357_tn?1280193093
Welcome to our expanding group, jessbee!

I won't leave the house without a bottle of water!  I keep a glass on my nightstand every night, and a couple times in the past week, I've actually had to get up and refill it...

Another symptom to add to the increasing list?

Lisa
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1375148_tn?1323170521
I would agree, my partner was the first to notice this in me, i can go through 2 bottles of juice or about 4-5 pints of water in an evening,  i kept calling him up when he was on his way home from work and was like can you pick up some squash please, he actually said it to me 3 days ago. I was like, mmmm i know but i don't know why.

But oddly i don't need to go to the toilet as often, i literally only go 2-3 times a day at the most.
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979826_tn?1389039958
I drink a ton! And am currently having urination issues and can hardly go. It *****!
Molly
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1179332_tn?1297482590
I get that too and l am post op...in fact it got a little worse after the surgery. Interesting, considering that I should have enough CSF now...

When the thirsty feeling gets really bad I get a really burning, tingling tongue and even if I hold water in my mouth, it still doesn't soothe it. Does anyone else get that?

I have been looking for an answer for so long about this..

Carolyn
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1375148_tn?1323170521
Saying that, in June, i had an ultrasound of my kidneys and they were seen to be retaining urine, and not emptying them out properly, went back 6 weeks later and they were fine, started to get the same sort of pain on and off for the past few weeks, fully expecting it all again.
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620923_tn?1413427272
Hi and welcome to the chiari forum.

I am a big water drinker too....I think we naturally compensate for what we r lacking...could be  the reason, but I drank so much water when I was working my DH bought me a mini fridge to keep it cold and right in my office : )

"selma"
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1144229_tn?1293440682
I drink around 2 1/2 gallons of water a day...
   I always have a liter of water with me at all times....
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1446980_tn?1286842138
Does anyone's lips peel from the excessive thirst?
My lips have been peeling like crazy for 4 weeks now, couldn't imagine what it might be? I just got checked for allergies.  It is the turn of the season and I am allergic to grass - - I have never had peeling lips like this before so I can't imagine it is the grass allergy.
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620923_tn?1413427272
Hi mine peel...I always thought it was lipstick or lip gloss....never really had an idea or knew I had chiari....and it is one of those "symptoms" no on an official list.

"selma"
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1144229_tn?1293440682
I also have odd lip peeling as well......no lip gloss though...;)
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620923_tn?1413427272
Aww come on I'll bey u use chap stick...huh?...LMAO
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1388357_tn?1280193093
Mine don't peel, but I use lip gloss during the day, and Carmex at night!  ; )

Seriously, I mentioned it on another thread - when you brush your teeth, use your toothbrush to give one gentle swipe around your lips.  Don't scrub or brush the lips, just do it gently every day & before you know it - they'll be good as new!  (Lip exfoliation, I guess.)

Lisa
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Hi I am new to this community.  I was very happy and suprized to see your post.  I have a 1 year old that was just diagnosed.  He has an incredible thirst.  He seems to be thirsty ALL the time..  The pediatrician told me to switch him to a cup and he would drink less...NOT  he drinks 8-12 12oz glasses a day and 2 8 oz bottles.  At least I know its not just him.  Thanks to everyone who responded it was very enlightening
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