CHIARI MALFORMATION COMMUNITY
Exciting news to help spread awareness

Exciting news to help spread awareness

Hi I just found out that My Aunts Brother who is a Dr is going to a convention this weekend.  He does not know about Chiari but wants to learn before then.  He wants to go to the convention loaded with information so he can help us spread the word about Chiari.  So I am asking all my great friends here for any information that I can forward to him.  Any great sights or anything you feel will help Dr's understand how important it is to know the signs of Chiari and what to do to find out if someone has it and or how to treat or find someone who can treat a person.  Thank you Marilyn
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997898_tn?1303738464
what wonderful news!  wow!  that's not much time to get things together....where exactly is the convention?
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620923_tn?1335125657
Hi Marilyn...Fantastic news...and like Elizabeth said...short notice, but I am sure we can pull something together : )

I will give this aome thought and post here what I come up with.

Thanks again for helping with this!!

"selma"
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Hoping to met with Paul either Friday or within the next week or so he is here in Maine and wants to get together.  Any information I need to share with him to help him on his way please let me know.  
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Here are the sights I first went to when I was first diagnosed.

wacma.com
chiarione.org
asap.org
conquerchiari.org

some have more information than others. But I found it useful when I was first diagnosed and helped get clarification on things.
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1069888_tn?1304040321
If you would send me your email address (mine is ***@****), I would be happy to send you a couple Word Docs that you can forward to him that have a whole bunch of websites on the.  Also, I have lots of things saved in "My Documents" that I would be happy to pass along.  Just name it!

Thank you to you AND him!!!

Blessings!

Lori
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1069888_tn?1304040321
Ok... so I didn't know it would do that!  LOL!  Well, just use my screen name at yahoo.

Sorry!
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