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Exercise tips
I found this link: http://healingmoves.net/exercise/exercise-tips-for-chiari-patients/ that I found really helpful. May have been posted somewhere before but I hope it is helpful!!
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620923_tn?1452919248
Thanks...this is the first I have seen this.....
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1179332_tn?1297482590
I found it answered some questions for me and relieved some guilt about sitting on my butt so much!!
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620923_tn?1452919248
I know what u mean...I feel so guilty....but I also know what happens when I try to do more.....there doesn't seem to be a middle ground....since I have TC issues the walking sounds great, but it can be too much for me.

The pool, aqua therapy works the best....
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1179332_tn?1297482590
Same here..I could probably only do a 10 minute walk before regretting it but I noticed that water exercises was recommended which I am thinking of trying. It really ***** because I really love running and I don't know if I will ever be able to do it again....
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Not sure why it blanked that out..it wasn't a bad word I promise!!
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620923_tn?1452919248
No worries...the MODS here will block out words they feel r inappropriate...I inset what I think u meant....lol...so I got the jist : )

I even tried a stair stepper and I was still having my scar open and ooze...I was told  by a nurse at my NS office I was doing too much...I only did 2 mins of casual stepping....so I did stop...I plan to try again soon as it will be some time b4 I can get back in a pool.
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1179332_tn?1297482590
Yeah, I am little worried to try anything b/c I don't want to suffer from it. Yesterday, I did a lot more around the house and my neck was killing after and the pain went all the way down my spine and into my lower back. I can start PT in a week or so and I am hoping they can help... I still don't feel like my whole problem has been figured out yet but I keep waiting b/c that's what eveyone tells me I should do (my family). Sometimes you feel like it's a viciouos circle that is never going to end!! Sorry I know that that is really pessimistic, I guess I got up on the wrong side of the bed today!
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620923_tn?1452919248
No u didn't it is the way reality looks like to those of us going thru this...but we do have to push past those thoughts and get to the side where we know there is a dr out there that can help us figure it all out.,......and of course this forum of people that do understand : )

"selma"
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1179332_tn?1297482590
True, and that helps immensely!!

I have pretty much got myself ready to confront my PCP about the way I was treated and see if we can get past it so that I feel like I have someone there to advocate for me.. There are very few openings for new DR's here so I am kind of stuck...
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