Had a Chiari Malformation type 1 ended up with Tremors.

[edward65166]

I had a surgery for a chiari malformation type 1. The day after the surgery I told the surgeon that I felt a lot of pressure on my head he left and two other doctors came to see me and ask if I would go get a second opinion. But before that happen I started getting dizzy spells I still had a knot on my head that was built up cfs. Went to the hospital they sent me back home then I started having blackout spells. They never mention about a posterior fossa cyst which I read is related to the dandy walker cyst family. But I was finally diagnose with rubral tremors. How could this have happen when he told me I would be 85% better.

[selmaS]

  If u have a leak and a pseudomeningocele can put pressure on the nerves and cause numbness and tingling.....

It is also possible u could have developed a condition post op or had it prior to surgery....ICP or POTS, Ehlers-Danlos...

[edward65166]

The other problems with my legs and feet I still have them.

[edward65166]

Thank you again for you help.

[selmaS]

  It sounds like u could be having a CSF leak....our bodies can adjust to them....and I am not sure if u meant to say u were never checked for the other conditions bcuz u were always healthy....or they were ruled out?

But regardless if u were healthy.....so rule them out now if they were not bcuz it can affect how u heal and feel .....

[edward65166]

What about the blackout spells?

[edward65166]

Sorry it took so long to write back. The surgery was back in Nov. 22, 2011.
They used a staple and 4-0 Nurolon  stitch which the staple was on the side of the head. Sorry no they were ruled out because I never had any other symptoms. Was always healthy and athletic. Never ran in the family cmf or tremors.
thank you for your help.

Sincerely,
Edward65166

[selmaS]

  Hi and welcome to the Chiari forum.

  It is near impossible for a Dr to know how well we will do, they can have a guesstimate....which I feel should not be too far above a 60/40 %.
My reason for this is  we all respond to ne surgery differently and there is no set way  to know how someone will respond.....this is another pet peeve for me with recovery when a Dr sets a timeline to go back to work etc....I feel u have to wait and see how u do....JMHO

The cyst u r talking about may be a byproduct of this surgery as a result of a CSF leak and not something to do with a diff condition.

May I ask how far along post op u are?

What all was done during ur surgery...lamectomy, dura plasty? if a dura plasty what type of patch.

Were all related conditions ruled out b4 surgery?