Hello I am a 20 year old female who is in college and suffering from Chiari. I was diagnosed at age 12 (December 2008) with chiari and shortly after had decompression surgery. My original symptoms were mainly excruciating headaches after my surgery things got better. I had the occasional headache when running, jumping, laughing, or coughing. My first day back to school after my surgery I slipped on water in the hall and hit my head on the corner molding and got a concussion (this occurred at 1 and a half months post op, january 2009). Shortly after I developed tics, I was treated for a number of years with clonidine and eventually I was able to go off of the medicine and I was tic free. When I was 18 I began college(august 2014), a few months into my first year I began getting more headaches. I found I was able to keep the headaches at bay with medical massage every week. Sophomore year (august 2015) that began to fail so I turned to chiropractic for back and neck pain. I began going to the chiropractor and then the massage therapist once a week. That began to fail and so I started seeing the chiropractor exclusively to help relieve my headaches. That began to fail and in october of my sophomore year I got a second concussion, my tics returned. It was then my neurologist put it together that the tics were a result of a concussion, with no explanation as to why. Around the same time I began having an increase in anxiety, GI distress, and reproductive issues. In december (2015) of my sophomore year I got very sick for no apparent reason. The doctors then declared that I was suffering from IBS. Shortly after the declared I also suffered from Generalized anxiety disorder. Around the same time I was having issues with my menstrual cycle. I became irregular, with very painful and heavy periods although I was on birth control. I started this new trend of developing a low grade fever in the first few days of my cycle. My OB thought I had been on the birth control too long so she took me off and told me my cycle would even out eventually. About the end of march (2016) my right ear began to go numb and tingle once in awhile. The tendency of that sensation has increased and is more frequent. Just recently (June 2016) I was found to have optic neuritis (swelling of the optic nerve). This was found when I went in to have my eyes checked. I had my eyes checked 6 months earlier and they had changed quite a bit and the doctor referred me to an opthamologist. They are currently working on figuring out more about the optic neuritis. I just can't help but wonder if all of the things I have added to my list of medical history is somehow all connected to my increase in headaches and my chiari. Doctors seem to look at me as my part, whatever their specialty is but not as the whole. Has anyone experienced any of this too? Does anyone know good doctors at or near buffalo? I am willing to travel to pennsylvania or ohio or somewhere else in New York. I am starting to get frustrated and I don't know what to do or where to go anymore.