Help thru

[SpenceThfc]

Hi im spence an iv been told i have chiari. But i also suffer with panic attacks. I wondered if the tingle sensation thru out my body is due to my panic attacks or chiari.

[jacmurphy]

Hiya.
My son has Chiari. We're not in the UK. But we're not far away.. we're in Ireland. It's good to talk to people with Chiari. You'll learn so much and probably come to realize that all the things you feel are 'normal' for a person with chiari.

Jackie

[selmaS]

  Yes I have chiari, and had surgery in May of '09.....here is a link to my journal of my surgery experience -http://www.medhelp.org/user_journals/show/96682/My-PFD-surgery-experience-?personal_page_id=197028

I am not in the UK, but yes there r those over there as well.....here is an old thread-http://www.medhelp.org/posts/Chiari-Malformation/UK-Chiari-sufferes/show/1328178

"selma"

[SpenceThfc]

Can people live a normal life with it? Have you got it or know anyone in the uk who has it? Id like to speak to them.

[selmaS]

  Hi, yes there r chiari drs over there, look at the list under the Ann Conroy Trust UK.......

   This can be scary, but not going to the Dr will not help.....u should at least go and see how this condition is affecting ur overall health.

   "selma"

[SpenceThfc]

Im am also in england i dont know of we have specialists for chiari.

[SpenceThfc]

I havnt saw the specalist yet i keep canceling because im to scared i think its the end for me because i suffer also with depression i think of its bad like an op id do something silly like before

[selmaS]

  Hi and welcome to the Chiari forum.

Many with chiari can have these panic attacks due to the compression of the brain stem.....have u found a good chiari specialist?

Until u get a full eval by the specialist it is diff to know what symptom is from what...and even then, it can still be hard to know as they may give u a few more dx'd then u have now.

   Here is a link of our list of Drs compiled by the members here of their own drs- this is not meant as a referral, but as a means to help u research the drs-http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

  "selma"