Here I go again!!

[Brooklynn07]

Ok so I am thinking about going to one of the Chiari centers to finally talk to a Chiari doc. I just found out that my insurance will cover 50% of it. Kind of scared about surgery costs if it comes down to it, but I don't want any of the idiots around here doing it. Would anyone be willing to give me a ballpark figure on how much it all costs? Also at this point I am still trying to decide which to go to. I am looking at the one in Wisconsin and Colorado. I am so tired of doctors telling me either it isn't the CM causing the problems or there isn't anything they can do because it is the CM. Any feedback of either clinics would be GREAT!!

Also I want to thank everyone on here for the help and support. I was very depressed about life until I found others going through the same things. Guess I am not so crazy anymore!! Well at least not about my symptoms!

Thanks!!!

[irishred795]

Keep track of your expenses as they could be tax deductible. I live in the Toledo, OH area and drove to Cleveland, OH for appointments; my tax preparer said we would be able to deduct the mileage, out-of-pocket expenses like deductibles and co-pays, and such. I believe it has to be at least 7% of your income to qualify for the tax deduction.  

[n40066]

no!  that was something that i really liked about heffez.  for me, personally, it was a very positive experience.  and the hospital was wonderful!!!  go to his website, fill out the form and send it in with your films.  he reviews films, if i remember correctly, on wed.
you're more than welcome!  good luck!!

[Brooklynn07]

Thanks for the replies. I was wondering if there was a way to find out if it was even worth the trip. Didn't know they would look at films ahead of time. My husband is afraid that we will make another trip just to be told it isn't Chiari causing the problem. I will have to look into that. Thanks so much!!!

[n40066]

i went to dr. heffez and was extremely pleased with his work.  depending on what he has to do, the cost will be between 25-50,000.00 for everything.  please keep in mind that is ball park.  i am on medicare and the rates for medicare in wi are of the lowest in the country.  also, i don't remember the proper name for it, but the dr. that keeps an eye on your nerves during the surgery will not charge you if you can not afford to pay!  he will do it at no cost to you!!  i know that is a huge gap in price, but there are soo many variables!  he will review your films at no cost and let you know before hand if he thinks he can help you.  also, there is a place called kathy's house where my mom stayed and where i stayed after i got out of the hospital, but before i went home.  it is very inexpensive and they, too, are willing to work with you on what you can afford.  
dr oro charges 40.00 to look at your films and tell you if he can help you or not.  that is the extent of my knowledge on him.
hope this helps!
if you have any other questions, please ask!
elizabeth

[pamk5]

There is more than likely a maximum out of pocket at which point you will be covered at 100% usually is double for out of network. You will probably quickly get there if you need surgery.  Something to ask your insurer or pull out your policy and read.

As far as Colorado or Wisconsin I have heard good things about both.  I think more about Dr Oro but I dont know personally.  

Hope this helps.  
Good luck!

[selmaS]

Hi...I am glad that ur insurance is able to cover half of  the cost...I did not go to either of the centers u mention....and depending on ur insurance and which one u go to will determine cost.

I know we have members that have been to both locations, so I know u should get the info u need.The best place for the financial info is the office at each location....

Hearing the forum was a help to u in addition to the fact u r going to a chiari dr is great news....wishing u all the best....please keep us posted : )

"selma"