Herniation question

I had a cervical spine mri done a week ago...got the results back and it was normal
didnt get my brain mri one yet but would the cervical have showed herniation at all?


my necks been numb past couple days and iv felt like gagging obviously im worried
that my brain is going to herniate...if they did not find a reason 8 months ago
what are the chances it would?

[shesabstrakt]

and also does it happen over time or is it instantly...my doctors are no help.

[kristy12]

It would have showed but It could have been missed by the radiologist also.

[selmaS]

  If u have a herniation that falls into ur cervical region of the spine....it would have been seen on the cervical spine....UNLESS u do not have a herniation that falls that low....or as the above poster mentioned...the radiologist may have missed or omitted something.

Either way, u need to relax...I know u do not feel well, but u r way  way to upset over this and it will only cause u to feel worse...please try to relax.


    "selma"

[shesabstrakt]

That is true, its hard for me everyda its getting worse and worse...more numbness in my throat/neck etc. i wanna go to the er, but  doubt theyd do anything but write it off as a headache or stress...welll iiam stressed but for a reason

[shesabstrakt]

what are certian signs i should look for aas far as an emergency because i dont know whats going on in my body? i know u are not a doctor but i dont know whats normal

[shesabstrakt]

and i meant full brain herniation, im not as afraid if it is just hind-herniation.

[selmaS]

  I am not sure there is a full brain herniation that could happen...I never heard of it...other than it having the same meaning as hindbrain...tonsilar herniation,....etc

Drop attacks, heart palps, breathing issues r reasons to go to the ER


'selma"

[shesabstrakt]

I guess brain herniation as where it goes so far into the canal that you die? But I have only heard of this with a csf leak ( brain sag ) and or increased icp. So far they say there is no findings such as a tumor or mass affect that would cause it...

wasnt sure if that could happen with CM.

Sorry if im annoying lol.

[shesabstrakt]

Is this rare? My Dr thinks I may have intercranial hyptotension waiting to get my mri done

[shesabstrakt]

ANd I guess neck going numb and that is not 'severe' enuff for the er lol

[jenshead]

Worrying that you're going to die (or worrying at all, for that matter), will only make your symptoms 10x worse.  Doctors will NOT take you seriously if they think you are freaking out.  

I'm not even sure what your symptoms are vs what you are worried about from reading!  Please calm down so people can answer your questions better.

[selmaS]

  IH or intercranial hypertension  also known as pusedo tumor cerebri is basically when u have too much CSF ur body either is over producing it, or it is not absorbing it....an obstruction can also make it appear that u may have this and y a CINE MRI is done. This is a related condition to Chiari and is not rare...Drs that understand is rare.

  As I have been saying, u need to relax....and  get to a true chiari specialist.


         "selma"

[shesabstrakt]

so finally i had the MRI done, and the radiologist sent the report and I saw my neuro today..he said that they looked fine. ugh really? i didnt get a CINE MRI Which really upsets me because It took me forever to get thru that one. He mentioned Chiari, but said that the tonsils looked fine and not even 5mm ....I really dont know hes a NS but not a chiari specialist per say...not even sure if it shows any brain sag..I would compare the two mris one from this year and last year but Im no good at that.

Report says no abnormalities or lesions..UGH i have to live with this pain forver.im not for sure i dont have low pressure or anything than jsut migraines, its just way to much to just be that imo. i also thot he was a decent Dr. and popular around my area...he also said CM would show more oin the cervical spine and he doesnt really see that there. I asked about csf leak he said unlikely.

[shesabstrakt]

Okay, yeah now I do have anxiety,,, Ive been feeling bad for almost 2 years now
and Im tired of it. I am afraid of brain herniation because, I feel terrible and in severe
pain 24/7 and they never know why.

[shesabstrakt]

My symptoms when it all started about 1 1/2 years ago...randomly got pain in my head and neck and passed out...then i had tingling in my face, hands, lips,...

when I cough it hurts when i sing it hurts...straining hurts at times.
sensitive to lights, facial pain, neck is always killing me and burning
back of my neck hurts so bad I gag when its stiff etc.

[selmaS]

  Hi...try to relax...first off the report is only the opinion of the radiologist and a good NS will not read that , they look right at the films of the MRI's to make their own assessment.

Next, the size of the herniation is not important for u to be having issues....but the right dr to know that is important....

For u to understand what I mean...imagine ur cerebellum as a funnel and the spout is ur spinal cord...if u had a long piece of shoe string licorice hanging down thru the spout it would not obstruct flow of fluid...how ever, place an upside down gumdrop at the opening of the spout and it will cork it up.....

The lordosis will cause u pain when the curve is lost due to the muscles around it being twisted....or in spasm. And u could have an issue with ur odontoid...who knows until u get to a better Dr.

Ur fears of herniation r unfounded at this point, but stress can cause many of these pains....so u do need to relax and find a chiari specialist to get answers.

      "selma"

[shesabstrakt]

What does unfounded mean?

Ive seen 4 nuerologist in the 1 1/2 years, I cant get to the CM dr. in bethesda yet..
one would think gettning a "normal" mri would be great news but
for me it is not the case.

[shesabstrakt]

And also,I would be less afraid of herniation * the type that instantly causes death, if I understood it more I guess.  Most people dont walk around and randomly  have brain herniation that does not have a cause so....

[selmaS]

  There is no reason for the fears to be as extreme as they r...we all r worried with these dx's....and I know u r afraid, but u seem to be looking where there is nothing to find...so, I used the term unfounded.

I may be totally wrong...but, I know u need to relax in order to feel a bit better...

  Does ur Ins require a referral to go to the NS in Bethesda? If not, just send the MRI's to him urself....that is one way to get the answers.

  I am not sure what type of herniation causes instant death u r referring to...sorry...mayb it is just  a communication issue...but I am confused as to what u r referring to and y u keep going back to it .....

  Granted u have symptoms and u feel lousey....but u r stressing ur self out to the max causing even more issues for urself.

  This is just my opinion and  again I may not be understanding what u r referring to.

   "selma"

  

[shesabstrakt]

Sorry, Herniation from increased icp and decreased icp...which cause brain death and such is what I mean...not from chiari..like brain sag and all of those things. Herniation happends instantly I guess from increased icp...things my dr was looking for awhile ago and some things were dissmissed that is all.


I would be a lot less fearful IF i knew what was wrong with me.

[selmaS]

  Did they do a LP on u?

[shesabstrakt]

They did one 1 1/2 ago at the hospital im pretty sure it was like 20 or 22 but the subtance was clear.

[selmaS]

Normal values typically range as follows:

Pressure: 70 - 180 mm H20
Appearance: clear, colorless
CSF total protein: 15 - 60 mg/100 mL
Gamma globulin: 3 - 12% of the total protein
CSF glucose: 50 - 80 mg/100 mL (or greater than 2/3 of blood sugar level)
CSF cell count: 0 - 5 white blood cells (all mononuclear), and no red blood cells
Chloride: 110 - 125 mEq/L
Note: mg/mL = milligrams per milliliter; mEq/L = milliequivalents per liter

Note: Normal value ranges may vary slightly among different laboratories. Talk to your doctor about the meaning of your specific test results.

  From all that I have read on LP opening pressure urs seems to be in range as to where it should be,.....

[shesabstrakt]

Thanks, I might as well stop searching for the reason and put it in Gods hands.

[selmaS]

  If for ne reason but to give urself some time to relax....I am not saying stop pushing for answers...but all in due time and unless ur symptoms change u should be ok.

  Most if not all of us have had this our entire lives...and just bcuz u now know doesn't mean u  have to beat the clock to try to get things handled.

I went to Drs from the time I was very young...grade school...and I was dismissed and my parents didn't listen...so I know many of us can go quite some time b4 things can take a turn.

Even then, I was Dx'd in Feb '08 and I didn't have surgery until May '09...I did  research to find the right Drs and just what I needed......those with a CSF obstruction run a higher risk of developing a syrinx...I was told I had not had one form so that is one reason to have surgery is to slow the progression of such things and restore CSF flow.

Putting ur faith in the Good Lord may help, and u do have friends here willing to help : )

  Did u contact Dr H in Bethesda yet...wondering if he charges to review the MRI films??
      "selma"

[shesabstrakt]

Yea, does charge but I am willing to pay if he will let me with a credit card.
I am calling the office back tomorrow.

Today is annoying my face keeps twitching by itself and facial pain...just seems like nerve
damage lol

I admire all of you who have waited so long to find the answers that you needed, Ive only had this about 2 years and if anything its nerve racking,,it makes me in a such a horrible mood. I should just go to pain management to keep my sanity. Wish I had my own personal doctor, but even then they are humans too and can only do sooo much. I have a great support system online lol family not so much anymore. I get this all the time " nothing life threatening or serious...can last for 2 years"

[shesabstrakt]

Im uneducated because, I just realized the whole brain cant fit in the canal lol wow. I meant full herniation as in so far down you pass away, my appologies.

[selmaS]

  Do not fret....chiari makes it hard to understand and explain...and Y I am always asking people to explain what they mean...not that I doubt or do not believe or nething else...it is just  so easy to  get confused by what someone says and when they have a hard time putting it into words, we can have a diff time making sense of it at times too...lol...

U r speaking of compression of the brain stem that causing breathing issues....many of us do develop these issues....but, it does happen over time....some have happened more abruptly but that was med related or sleep apnea.Have u had a sleep study done?..Do u have breathing issues?

Pain can make all of us grumpy...so no worries about ur mood....and getting a handle on the pain and stress can help u.


   "selma"

[shesabstrakt]

yeah compression of the brainstem, guess thats what they meant when the person had increaded icp...when I went to the er, and one neuro..i asked about herniation they said " youd be dead ma'am" lol... "it would show up on the ct"


one weird thing is that evn if i move or touch the back of my head/neck with my hand my whole face tingles and hurts. i mean if its not chiari, then lord knows lol cause its not on the mri...and i have no other found reasons and as i asked before " can you feel herniation" by touching it on the outside of ur skin haha which you cant...shouldnt be affected if i move or touch it

[selmaS]

  It is possible to have a bulging disk blocking CSF and u would have many of the same symptoms as chiari...and it could cause pain in the area of the bulge....

Did u have the spine MRI'd?

   "selma"

[shesabstrakt]

yeah last year lol - they never said anything about those spine mris except that they ddnt see a leak in the lumbar spine

[selmaS]

  If u don't have copies of them...I would request them...and have them reviewed.

   It may not be a leak...but mayb a bulging disk...and they can be very painful and affect nerves .

   "selma"

[shesabstrakt]

Do muscles burn and tingle or is that just nerves?  Neck/head wize..

[selmaS]

  It could be both...if u have loss of the cervical lordosis as well, that is muscle spasms so u may feel it from both nerves and the muscle.

    "selma"

[shesabstrakt]

doesnt help that my family mocks the situation saying  " can you feel if your brain changes the back of your neck" " can you feel your brain coming out? " they make me insane, should have never mentioned it to them ( herniation ) ..then im feeling the back of my neck like im going to know if anything feels "wrong" Ugh...then I wonder hey can you really feel anything if something is  going to happen...I dont even think the largest mm of herniation would be felt but they say it everyday to me.they make things worse for me all the time.

[selmaS]

  well u know how freaked out u r...imagine how they feel...they don't understand and have no idea how to help...I know what they r saying is not helping u, but making jokes and making light of this whole situation may help them cope.

Way too many chiarians complain of this, and I am sure this is what a good part of the problem is.....

  Men want to fix things and when they can't they will avoid it at all costs....

  Sad, if only they asked us what we needed from them...but as with drs , the same could be said.

   "selma"

[shesabstrakt]

getting a counselor because, i cant deal with this alone...


i mean if the mris didnt show severe brain sag or herniation, hemorage,
even if he wasnt a CM dr..the er and 4 nueros keep telling me its not life-threatening ( at this moment )...i mean if nothing shows up that significant does that mean i will just have symptoms that are horrible......


i guess "life threatning" things would be passing out, slurred speech, coma, i didnt know at first about CM, only tonsillar herniation from http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002394/ ...


with cm it doesnt just keep sagging down or something happen acutely rite?and other causes that would cause herniation are increased icp,tumor, etc.  with increased icp, i know that doesnt show on mri...


in rare cases i read that decreased icp can cause herniation but it never specifies if its then called cm or just aquired brain sag....


is there any cases or have you heard of the other reasons that cause brain herniation besides CM...being chronic and not acute? most things that cause brain herniation - not being CM happen acutely..

i wont ask any more of my anxiety questions..just ***** that ill never find a counselor that is dr...that i can ask anything to. sr if this doesnt make sence and if its irrational. just if i bend my neck down i get a huge pain even in my throat :(

[selmaS]

   U can ask as many questions as U like...it just seems u may be upsetting urself, and I wish I knew a way to get u to relax a little so u would feel a bit better...stress can and will make u feel worse.

There r terms for what u r asking.....acquired chiari is generally from force such as a MVA where the force of the movement of the crash can cause the brain to shift down.In many of the acquired chiari cases, the tonsils may retract.

Many times tho if it is a true chiari malformation a MVA will just trigger more sever symptoms.

I am still not sure what u mean by severe...to me it is how it affects u...not how large it is...and a tonsil dose not need to be herniated much at all to cause problems...

AS I have said b4, u need another Dr to review ur MRI films so u can get answers.U have been to a dr that does not know about chiari so u can not go by what they said...and u can not keep on reading things on the web and upsetting urself.

  ICP can affect the tonsil with high or low pressure....either way it is a problem for the person with it....and a LP is done to determine this.

  There r some things u should not do such as bend ur neck down or back too far....

I pray u find some support  and ur DH would be the place to start...have him pop on here so  he understands what is going on...and not all NS's know how to treat this.

  But I hope u do not feel alone here...we r here for u and trying to understand what u r going thru.

  Keep on talking : )

    "selma"

[shesabstrakt]

i mean if nothing life-threatening shows on the scans as of now i dont know what else could cause an acute life threatening situation.....
i know decreased icp and increased can but i never had an accident

do people with these conditions pass out if the tonsils go down too far?
i am dumb try in to move my neck too much its been causing me great pain and
i cant tel if its my head which casuses neck pain or the opposite..

if i even  move my neck i get pains and numbness even if i put my hand to rest it on my neck i feel like throwing up, it is so weird

[rod44]

I just wish to add to the good advice that Selma has given you.

Most cases of CM are congenital, we are born this way. Some can be acquired (develop due to trauma), if you suffer a trauma that causes CM then as Selma said you would have other issues. It is most likely you would have ended up in hospital after such a trauma.

Stop for now trying to find a cause for your CM, get a clearer picture of exactly what is going on, the only way to do this is to see a true Chiari Dr, they are the ONLY people who can answer your questions.

Stress can cause your Blood Pressure to go up, this is not good for people with CM.  

[shesabstrakt]

and weirdest part is my throat gets pains in it rite in the middle

[shesabstrakt]

is there anyting else it could be besides CM, if mnothing shows on mri/ct/ brain or neck..i asked about pinched nerve, or msucles he says no...i dont thnk a muscle or sore neck could cause throwing up lol

[selmaS]

  The throat issue can deff be considered chiari...I had them too.

Well u could have whip lash, loss of the cervical lordosis...either can affect the nerves which could make u feel nauseated.....

I know this bcuz I had whiplash that caused the loss of the cervical lordosis...and it was sooooo very pain ful this was yrs b4 I ever got my chiari dx and I was treated with PT and I felt so much better afterward.

Of course I had the underlying issue of chiari which I had no idea about...but, one step at a time...

  I know some people that will vomit from pain...so how a Dr can say that is beyond me...I know a girl that passed out from pain after she popped a pimple...we r all so diff there is no one way to say it is this or that and no inbtwn....ne thing is possible.

   "selma"

[shesabstrakt]

what my main question was the above question and if it is not cm what could be chronic and not happen acutely with my symptoms that would cause brain herniation/death wize.
i did have one period of less symptoms though....


and yes im trying to get on anxiety meds now...if it is increased icp..which i hear can cause ear popping and tingling, i dont think much can be done for that if something happends acutely...and if brain herniation hapends from increased icp or decreased there is not much that they can do.


i know you guys are not therapist lol but i am afraid that brain herniation - death, will be happen even though ive never been dxd with anything..does ur brain just slowly herniate till you die..i have no clue the website confuses me.

[rod44]

Pain can cause you to throw up as can stress.

If you have a Chiari Malformation or herniation even if it dose not meet the criteria of over 5mm you can still have many issues. Most Neuro Dr don't understand CM, they do not see it very often and most feel it is an incidental finding on an MRI so they don't get overly excited, this is why you need to see a NS who deals with CM everyday. As CM is treated surgically the best person to deal with it is a surgeon, a neurosurgeon.  

[selmaS]

  Chiari symptoms can cycle and could explain that period of less symptoms.

If u can relax..and avoid the activities that r listed for those with chiari and syringomyelia to avoid u should be ok until u get to a better dr.

Chiari in itself can cause the popping in the ears too!

I have been on this forum and a few others for over 3 yrs and I have not heard or read of this ever happening like u mentioned.

"selma"

[shesabstrakt]

Okay, lol I mean I never knew of anyone that it happened to, just on that "brain herniation" website that I showed you. Waiting to talk to the dr. in bethesda Monday.



if not cm, i duno what else it could be

[shesabstrakt]

my neck is so stiff and numb, feels like something heavy in the back of it...so annoying
i can barely sleep hopefully i can get temporary meds...is this even normal?

[lilmiss1999]

Everyone is correct in telling you that stress is only going to make your symptoms worse. I looked at the website you posted and that is not what you need to be looking at.

Try looking through the videos at http://www.chiariinstitute.com/chiari_malformation.html  

The is a lot of information there and maybe you will be able to relax

I have a lot of symptoms and very little tonsil herniation so my doctors dont want to take me seriously. You need the right doctor. One that is a Chiari specialist. Only then will you get the right answers and treatment.

Good luck and again.....RELAX. :)

Jennifer

[lilmiss1999]

Forgot to put in there that when you go to that site click videos under quick links on the left side.............and the when the video box comes up click patient information. A lot of videos and all are really good to listen to.

[selmaS]

  I understand ur concerns, and yes this is pretty typical...not sure what is "normal" nemore.And I knew u did not know of someone this  had happened to, but I had not read newhere where it had happened either.The link u posted above was incomplete and I was unable to review it.

Try a heating pad on ur neck for 15 mins at a time to help with the neck pain...see if that helps.

    "selma"

[shesabstrakt]

oh you just type in brain herniation on google, its from wikipedia actually.



if i moved my neck or head at all i get tingling and a cold feelng in my head

[selmaS]

  I will try to bring it up.....

  I would rest up and do try a heating pad  or ice and see which helps......

[shesabstrakt]

if they found nothing on the scans, and if it is not cm what type of things can happen acutely that are life-threatening

[shesabstrakt]

yea i wil do that

[selmaS]

  I am not sure there is nething else that could be life threatening...y do u feel this is life threatening?

  

[shesabstrakt]

i feel that things are getting really bad..i was wondering what else could cause the symptoms that I have, if  it does not show on the tests...i  mean is it the pressure in my head? i know i had an lp but that was 1 1/2  years ago and i really dont want to risk another one and have an even worse headache from the procedure.

so many things have been ruled out ...and i know migraines can not be thissss dibilitating.

[horselip]

Hi there,
i was able to read the link that you are talking about and it is come scary stuff. Now i understand what you are talking about. From what read though it sound like an acute thing rather than chronic. Also didn't you have intracranial hypotension? That is low pressure not high. Tell me if I am wrong.
Horselip

[selmaS]

There r many NS's and NL's who do not feel chiari is something to be concerned with and do not report it or inform the patient....

Just bcuz u have yet to be dx'd does not  mean u do not have something  that is not showing up...it is the opinion of the Drs reviewing them that it is an incidental finding.....

This is y the members and myself keep on saying u need to get to a true chiari specialist to review ur MRI films.....

   "selma"

[shesabstrakt]

I was never dxd with intracranial hypotension ( low ) or increased icp (high )...the one nuero i had last year said that he suspected maybe low pressure possibly but never talked about it again. It is hard for me to determine if i could have either of these or which one it would be, wish mris could show the difference with out having to get an LP done...also I know low pressure can cause brain sag which is like aquired CM but not the CM that you have when you are born with or in an accident.


My LP done 1 1/2 years again was 20 opening pressure, and no leak has been found
on the mri's so far....


yeah, that is why i was wondering what in the world would cause that and be chronic ( 2 years ) and does it happen slowely in a couple days orrrr rite away when it happends..referring to the link * website.

[Samanthab259]

Was any of your MRIs completed with contrast? You need to relax a  lil i know it is hard because i tend to stress alot to & it only makes ur head worse. Hope u feel better soon ;)

[shesabstrakt]

I think one was done at the hospital last year or so...but none were recent, Id have to check..i wish i had a primary care doctor..which they dont know anythin but atleast i could get everythin together from when it all started up..

so they could know the whole situation and look at ALL the scans and test that have been done at different places. what would contrast show? I can not upload the films from the cd they gave me for some reason...

[shesabstrakt]

* my "g" letter does not work on my computer haha..just looked at my post

[drewlevas]

I understand the way you feel so much! For I have the same fears! My MD has told me not to go check on google but I still did! (lol) It's scary.

It helped to read this post. Keep us informed, and I'll trie to relax as Selma as propose.

[shesabstrakt]

Lol, I mean I feel like an idiot but talking to a counselor, doesnt help because they dont know anything about brain or health period.  I have health anxiety I like to call it, due to having real pain. "its all in my head" Literally haha.

[drewlevas]

Well when I explained to my mother what the doctors as sayed, she exclaimed ''Well after all these years it was really all in Your head after all''. She wants to come with me to my next doctors apointment. She's the one that ask all the questions, I usualy forget! She is as afraid as I am. I'm kind of happy to see that we are not the only one looking for the same questions to be answered, you are too. And I don't think youre an idiot!!!

[shesabstrakt]

wellll as the days go by my neck hurts even worse, i can barly move it...feels like something is like sitting on it, its so numb. if I touch it even a litle..it makes me want to throw up. i had the mri done 7-28-11 Not sure that something could occur in that short amount of time.

[shesabstrakt]

when i move my head certain ways - side to side or down...my hands tingle and go numb as well as my face. my face is always hurting i dont know if that is bones or muscles..hurt to move my face at times

[shesabstrakt]

hurts to use the bathroom, when I go number 2..lol sounds dumb but its been like that for awhile....i do a lot of research, maybe i shouldnt but its still complex to know everything in the anatomy of the brain and stuff...

[selmaS]

  Hi....when u say it hurts to go , u mean u get the pain in ur head?

That is typical of chiari...and so many of us do have this...as well as when we laugh, cough, sneeze or lift heavy items...Drs say strain, and that is to cover the BM issue,. but I need more details.....

   "selma"

[shesabstrakt]

Yes, It makes my head hurt and really bad lately...when I use the restroom...
worst part though is the back of my head/neck rite now, it literally feels like when you
break a bone lol I cant cough for anything and I avoid sneezing at all costs....

[shesabstrakt]

was reading a little on this http://en.wikipedia.org/wiki/Valsalva

even if i breathe in REA,LLY deep it hurts the back of my head/neck,
just hard to determine if its low/high pressure headaches/pain or chiari,
of course im stil waiting to see chiari specialist as well.


ive had neck pain for awhile but the onset ( when it started getting really bad last year)
started with a pain in my neck which went to the top of my head..i had pain in the top of my
head that whole time but now its mostly in the back of my head.i also have really bad facial pain, and have seen a rheumatologist ( found nothing )

[shesabstrakt]

Increased ICP, I see is much more dangerous than chiari


http://en.wikipedia.org/wiki/Intracranial_pressure    

important for doctors tosuspect/note from symptoms....none have ever brought that up excpt for one dr. who said he suspected maybe low pressure instead. Hmmm....

[selmaS]

  The symptoms u mentioned r typical of chiari...that pain is not uncommon, as painful as it is ...and the more stress u have the worse it can get.

And soooooooo many of us have had issues with Drs not being able to dx this either...it may take time, and it will take a chiari specialist.

  Hang in there  : )
   "selma"

[shesabstrakt]

http://www.csfinfo.org/ is a nice website :)

[shesabstrakt]

my head hurt and face hurts when i put my eyebrows in a "suprised state" anything or facial expression that tenses my face up...hurts.

[shesabstrakt]

Forgot to add some things....so after the year i had the onset, i noticed a soft spot on the top of my head, a little bit to the back...its squishy and once it got infected...like a little absess (abscess), had mris since then and nothing shows to be abnormal, they said could be a small fatty tumor.......its been weeks, months since i really paid attention and now more of my scalp is squishy..its weird and they ( neuros ) said that the pain and everything else would hav enothing to do with this.....also...the back of my neck feels this way as well now..it is all very strange.

someone mentioned Hydrocephalus, but my mris would have shown that...if i touch these soft spots i get tingling on my scalp...it may not relate to all my other issues but it is really strange....saw a dermetologist ( spelling ) she didnt really say anything about it at all just told me to make sure it doesnt get hard.....

[shesabstrakt]

feels like fluid on the back of my neck if thats the best way to describe it.....although, i had mris not too long ago of my neck and head, that would have shown i think, because i dont have any dx'd diseases or anything