How Many have had MENINGITIS ???

[selmaS]

This poll is posted for Elizabeth

after reading colleens post, it occured to me that i have heard of several chiarians that have had meningitis.

I had it in 1995!  if you have ever had meningitis.  I'm just curious to see if there might be a link to cm.

maybe there is a common denominator there that makes us suseptible  to meningitis.  thanks!

[Chiaripatient61736]

I didn't ever have meningitis but have spina bifida and was told many who have spina bifida have chiari.

[selmaS]

HI, I know Spina bifida and Chiari are related conditions.....ssome who develope meningitis do so post op.....have you had the decompression surgery?

[Chiaripatient61736]

Yes I had the decompression surgery already and for me some of the symptoms are less but the fluid flow has still not improved.

[selmaS]

Do you know what all was done during your decompression as there are several types?

[Chiaripatient61736]

well I had the spinal fusion first but since that didn't help I had to have another surgery which i can't remember at this moment the name of. They have told me that one also didn't work and if symptoms get worse and the fluid goes up more i will need a shunt this time.

[selmaS]

What I meant was did you have the dura opened? And a dura patch? The fusion was first, before the decompression?

[kmcgehee]

My daughter had it before her Chiari was diagnosed.  She had viral meningitis this past year, and was just recently diagnosed with Chiari1.

[selmaS]

Hi and welcome to the Chiari forum.

Thank you for sharing your info about your Daughters meningitis. Do you have a Chiari specialist for her?

[alaa_afaneh]

before or after surgery ??

[selmaS]

some have had it before the PFD for Chiari while others have had it prior...we are asking them to let us know if they have had it and when pre or post op

[Cleo_Steve]

Yes, I had viral meningitis prior to finding out that I have Chiari

[selmaS]

Thanks for adding to this poll....may I ask have you had surgery?

[Raychmoz]

I had Meningitis in 2012... was diagnosed with cm type1 that night after ct scan then later MRI.. . They wouldn't do a lumber puncture. It was viral not bacterial. I also have an empty Sella. Off course none of these have anything to do with Chiari!!!! Really!

[selmaS]

  Hi and welcome to the Chiari forum.

As Rod44 mentioned it is a possibility to get meningitis from brain surgery so any one of us could get it post op, but to have had it b4 surgery I think is more  uncommon then common,...JMHO.

I did not have it b4 or after my surgery,and I feel  if we go to a true Chiari specialist the risk is lowered. again JMHO

[frankie_rush]

I am glad to I haven't had it.  From what I ahve read about this I am very glad.

[nerys78]

Hi

I too am interested to know if there's a link between the two as I have recently undergone the operation for a Chiari Malformation (I am 99% better may I add). I had Viral Meningitis when I was 15 years old so very interested to find out if there's a link at all?  My Neurosurgeon says no but I have a feeling that it does!

Thank you

Nerys

[max666]

I had menengitis after surgery. The ns said that mine was caused through a drop of blood infecting the fluid during surgery. I was on iv antibiotics for 2 weeks and was very poorly.

[Heda491]

I had Septiceimia first and then Meningitis followed.My story is a little different however.
An ER doctor put untruthful info in the charts and quickly unhooked my IV shorty after the Spinal tap and had me taken home in the early morning 6.30 am.Necessary tests were never done at the time of the spinal tap.
When I became drowsy and was brought back up to a hospital with a few hours of the tap I was refused care and admittance.A cover up ensued.
I won't get into all the details but I will say that I did have a history of chronic infections and auto immune problems.Also I have problems with chronic anemia.
Be cautious of Sinus and Ear infections.

[colleen1214]

My original spinal tap was negative. They then thought that I had "secondary meningitis" and wanted to do another one. Needless to say I flat out refused. I am still scared to this day of any procedures in my back.

[rod44]

I don’t want to freak people out but Forewarned is forearmed.

Meningitis is a risk in any brain or head surgery but Antibiotics are given as a precaution to help prevent this and other infections. A family member developed  Meningitis after surgery but it was not a major problem as she was on Antibiotics post opp.
Septicaemia is blood poisoning and develops if Meningitis is not DX’T on time, it is a life threatening illness. I am not a medical person and this is just my understanding of this illness.  
Rod

[n40066]

holy ****!  i never knew that!  that's scarey because i was in the hosp. for over 6 wks when i had it before.  it was so painful.....i'll never forget having that.  it was the worst!  i can honestly say that it was every bit as bad as the cm h/a and in many cases, for me, even worse!  i don't EVER want to go thru that again!

[rod44]

MENINGITIS & MENINGOCOCCAL SEPTICAEMIA

MENINGITIS
is an inflammation of the lining around the brain and spinal cord

Meningitis is one of the risks of any of the CM/SM surgery procedures.

MENINGOCOCCAL SEPTICAEMIA
meningococcal septicaemia is the blood poisoning form of the disease,

I don’t know if this poisoning involves CSF.
Because of the inflammation's proximity to the brain and spinal cord then it could be a factor in CM/SM

I have never had meningitis.
ROD44