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555358 tn?1292535661
How many zipperheads?
I was noticing some threads about people that are scheduled to have decompression surgery and it got me thinking; How many of us already have had it? We should make a list. Oh and by-the-by, the term for people that have had it is "zipperhead". I guess like they refer to people with heart surgery as having a zipper in their chest.

I know of a few;

Shane99 (me)
Lovemygirls (who, by the way is doing fine, but having computer problems)
Sissy
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Page 14 of 14
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oopss ..... lol. I meant Oct 18, lol. I will put it in my journal. Thanks for the tip.
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620923 tn?1452919248

   Bumping up for recently zippered to add their names.....
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new zipperhead as of 12/13/11! woo!
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620923 tn?1452919248

  Welcome to the Zipperhead club!!!
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1925822 tn?1333709217
Hi...i had my surgery done 2months ago.my symproms started all together in may. From one moment to the other i was really dizzy,had tinnitus couldnt handle noises,lights anymore and got this migraine on a pain level out of the normal. Well the first nighr after my surgery i woke up in pain and couldnt sleep.the next day i was asking for pain meds each second and they brought me up from icu to a private room.it was hard and painful showering,but i forced myself.after 5
Days i went home crying in the car of pain and nauseas.
Well my back head pain and migraine first disappeared...migraine now comes back by well overdoing if u can say so.i am able to move,my scar does hardly cause me trouble...it healed till now perfectly and they did not shave a single hair!but my balance is horrible,i get blurred vision and confusion in stores and restaurants and feel more tired than before.but i noticed i hardly get spots antmore since surgery and not go to the toilette have of the times i went before.i am still on early stage of healing,but i know i will have to live with symptoms forever...its a long way to go...but i dont regret surgery at all...i dont wanna know what more symptoms would have come up without surgery.i am still not able to work...which is hard for me...u just loved my job and my colleagues...good luck for everyone...i hope the best for you all
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620923 tn?1452919248

  Welcome officially to the Zipperhead club....
  

  May I suggest u start a journal of ur chiari journey so we all have one place to go to read  as it is hard to remember which thread something was posted in.....

  It helps to be able to read others experiences, thanks for sharing : )
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620923 tn?1452919248

  Bumping up for all newly zippered to add their names......
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1306714 tn?1327260680
I can't believe I didn't see my name on the zipperhead club.  Zipperhead as of June 9, 2010.   Had zipper reopened on 8-10-10,  3rd zippered split on 9-27-10
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620923 tn?1452919248

   Welcome to the official zipperhead thread : )
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1903798 tn?1333908888
As of 2/9/12 I too am a zipperhead:)
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620923 tn?1452919248

   Welcome to the official Zipperhead club : )
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1910752 tn?1329493822
Zipperhead as of 1/26/12
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620923 tn?1452919248

  Bumping up to allow our newly zippered members to add their names : )
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Hi new to the forum! Been a zipperhead since Feb. 3, 2010.
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2034257 tn?1354918958
Dang! You're my hero! Sounds like you've really been through a lot!  Why did they have to redo your surgery a month later?


Gina
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2034257 tn?1354918958
I am a Nurse, and found out one day at work (on the Neuro floor I was working on), that I had in fact a Chiari Malformation. My MRI was misread for 2 years and 2 coworker neurologists overlooked it. Finally I broke down one day after an opening pressure of 40 from a spinal tap to the Chief of Neurosurgery. He told me at 10 am - 2 hours into my shift that I needed to have surgery right away.  I had a Chiari Malformation and syringomyelia.


Zipperhead official on 7/14/2010.


Dr. Heffez said to me yesterday in Milwaukee that I need a titanium plate because the first neurosurgeon took out too much skull.  Who supports Dr. Heffez, and also titanium plates!?  HELP! I'm scurred and totally shocked that the first guy "messed up."
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

I would suggest u see a couple other NS's....b4 u settle with that one....as u want a few opinions b4 u choose.

Knowing someone that had the plate , then had to have it removed...concerns me, but cerebral ptosis is bothersome too and needs to be treated...

Scroll to the bottom of this screen and locate the link to the Health Pages and see the one with the list of Drs...do some research...I understand ur first surgery was quite quick... but take some time and find the right dr for this repair.

    Good luck to u

     "selma"
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I became a zipperhead February 9th 2012 by Dr. Ellenbogen and team at Harborview medical center =)
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620923 tn?1452919248

  Congratulations and welcome tot eh ZipperHead club Krystal !!!
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620923 tn?1452919248

  
  Bumping up for all newly zippered to add their names : )
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2124631 tn?1335169744
Zipperhead as of Feb. 10, 2012!!!
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620923 tn?1452919248

  Congratulations on being a ZIpperhead!!

How r u doing post op?
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1968463 tn?1374761413
I am officially a part of the zipperhead club as of June 7th, 2012....and proud to be a part of such an amazing group of people !!!!
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620923 tn?1452919248

  Congratulations Sheila !!! Welcome to the Zipperhead club : )
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620923 tn?1452919248

  Noticed this has not been added to for a while...please add ur name if u have been Zipped and r not on our list : )
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1823499 tn?1370093889
I have been zipped twice now, so does that make me a double zipperhead lol
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3112631 tn?1356657157
Four time zipperhead here! First zip June 2005; most recent August 2012.
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Zipperhead as of July 2nd 2012.
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Heffez totally blew my daughter off. Waste of a trip up to Milwaukee. Doctor was interupted several times during her appointment. Now find out that my daughter does need surgery.
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620923 tn?1452919248

  Hi, may I ask who she is being seen by now?

  Without naming names and getting too detailed about the bad experience can u tell me how u r getting her the help she needs?

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My neck was zipped in 2000, & my head in 2012.  I have a very loooong zipper.
No regrets, at all!
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620923 tn?1452919248

  Bumping up for newly Zippered to add their names to the Zipperhead club.
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Zipperhead as of 9 Oct 2012.  Doctor Oro performed the surgery which included inserting a titanium plate he designed.  
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.


....and to the Zipperhead club......I hope u plan on sharing ur chiari journey with us : )
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Hey guys, official zipperhead as of 16th April, in recovery and trying to take it easy on myself and stay in control. It's been a long road and my thoughts are with all of you xx
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620923 tn?1452919248

  Hi and welcome to the Chiari community and to being a Zipperhead !!!

  It is a long road and to help with ur recovery...rest, rest and then rest some more...do not be  tempted to do too much at this point....allow ur body to heal and take ur time b4 u try to do typical house chores no matter how good u feel .....wait !!

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4816750 tn?1368808270
July 25, 2012
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I am going to be a new zipperhead as of July 2nd, 2014. I've been doing as much research as possible, but I know to focus on the good things, not the bad stories! Any advice as I get ready to join the Zipperhead club?
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620923 tn?1452919248

  Hi the best thing I can tell you is relax...have patience and do not rush to get back to your normal lifestyle.

   Keep positive and us posted : )
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I became a zipperhead on August 4th 2014.

Had Decompression surgery, a C1 laminectomy, and Duraplasty .

Dr. Michael Stechison was the fine surgeon that did my surgery. Spent 3 days in the hospital, then went home. My legs feel like brand new.

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620923 tn?1452919248

  Hi and welcome to the Chiari forum and to being a Zipperhead.

Please add your Drs info on our Dr list thread.....

  Glad you are seeing some benefits already...just remember do not over do it at this point as you can suffer set backs,...take your time getting back into daily routines.
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Taking 5 weeks off of work and I am planning on relaxing the entire time other than a couple of short walks every day that they told me to take just to expand my lungs. I felt the benefits right in recovery. My legs have felt like they were mildly cramped for the last 5 months, but when I woke up in recovery they felt brand new.
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620923 tn?1452919248

  Much of how you feel in recovery can also be the meds so be careful....it is also possible for symptoms to return as you heal....so again, take it slow....

Only 5 weeks?...I am not sure that will be enuff....

Do keep us posted on your recovery process and when you go back to work how you do with it at that point post op.
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I'll be stir crazy way before 5 weeks are done, but I'm going to go really easy and heal for those 5 weeks. First post-op follow-up with my surgeon is this morning.

I'm an active person who works out daily and likes to get up every day and go to work. I'm in great physical shape, and got into even better shape in preparation for the surgery by really cranking up my workouts for the 5 weeks between scheduling surgery and having it. I'd say I was in better shape at 48 before my surgery than I was at 28.

My work load is already planned as "very light" when I get back.
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620923 tn?1452919248

  Good luck to you.....I pray it all goes according to your plan.

Keep us posted.
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Doc said everything looked great today. Trimmed a little knot off the end of the scar on my head.

Cleared me for regular showers.
Cleared me to drive since I have most of the movement back in my neck.
Said no heavy lifting, and return visit in 3 weeks.

Been weaning myself off of the pain meds already,Tylenol seems to work fine for pain, and I have muscle relaxers that I take in the evening.

Spent most of the morning with my wife, we went grocery shopping, put gas in the vehicle, etc. Ate lunch and had a nice 2.5 hour nap.
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620923 tn?1452919248

  Good for you....I was not doing much at this point post op.....

I went for walks...but not grocery shopping....I have issues with florescent lighting...so I avoid stores still today....

Glad it is all going well for you and pray it continues to go as well.
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Zipperhead as of 9/11/14 had a suboccipital craniectomy w duraplasty and c1-c3 laminectomy. In the month following surgery underwent spinal tap, spinal fluid catheter drain and blood patch
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7613382 tn?1392614321
Zipperhead as of 4-16-2014

I love my scar!!!
I am a Chiari Warrior!!!!!
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620923 tn?1452919248

  Hi and welcome to the Chiari forum and to being a zippersister !!

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