Chiari Malformation Community
Hypermobility and ehlers danlos III
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Hypermobility and ehlers danlos III

Just got back from a dr appt with my 10 year old daughter. She has hypermobility or as the doctor described it 'laxity' in her joints. I asked the doctor is this ehlers danlos and she said from her study she seems no differentiation between hypermobility syndrome and ehlers danlos III. My daughter has no pain in any joints so she said she technically has neither right now.

Has anyone else heard that Ehlers danlos type 3 is the same as hypermobility syndrome?

Thx

Seamatty
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1405964489

  Hi....yes, I have heard them intertwine the 2 terms...in fact I do have a letter from a Dr somewhere that explains this in more detail and much better then I can...I am still learning about all this too.

It is  several pages long, so I will have to post it in a journal as it is far too much for a thread.

  
Blank
Avatar_m_tn
Also Selma if you wouldn't mind explaining how eds and chiari are related I would be greatly appreciative! I am very interested
Blank
620923_tn?1405964489

If I could do that...wow, not sure I can, but what I can tell u is this those with  Chiari are prone to connective tissue disorders as well as auto immune disorders and EDS is a connective tissue disorder.

Many of us have Hashimoto's thyroiditis, which is an auto immune thyroid condition which is not always found thru normal thyroid testing.

  With out finding the article in the medical journals  to support the fact they r related, here is from one Chiari specialists web page on this topic and others :

  Groundbreaking Research

Chiari Institute physicians were the first to:
Find the link between Chiari I malformation and Ehlers-Danlos Syndrome in a subgroup of Chiari patients.
Discover and investigate the relationship between Ehlers-Danlos Syndrome and functional cranial settling.
Define the link between tonsillar herniation and occult cord tethering in a subgroup of Chiari patients.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
7 hrs ago
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
Aug 30
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
Aug 30
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank