Chiari Malformation Community
Hypermobility and ehlers danlos III
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Hypermobility and ehlers danlos III

Just got back from a dr appt with my 10 year old daughter. She has hypermobility or as the doctor described it 'laxity' in her joints. I asked the doctor is this ehlers danlos and she said from her study she seems no differentiation between hypermobility syndrome and ehlers danlos III. My daughter has no pain in any joints so she said she technically has neither right now.

Has anyone else heard that Ehlers danlos type 3 is the same as hypermobility syndrome?

Thx

Seamatty
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1393294254

  Hi....yes, I have heard them intertwine the 2 terms...in fact I do have a letter from a Dr somewhere that explains this in more detail and much better then I can...I am still learning about all this too.

It is  several pages long, so I will have to post it in a journal as it is far too much for a thread.

  
Blank
Avatar_m_tn
Also Selma if you wouldn't mind explaining how eds and chiari are related I would be greatly appreciative! I am very interested
Blank
620923_tn?1393294254

If I could do that...wow, not sure I can, but what I can tell u is this those with  Chiari are prone to connective tissue disorders as well as auto immune disorders and EDS is a connective tissue disorder.

Many of us have Hashimoto's thyroiditis, which is an auto immune thyroid condition which is not always found thru normal thyroid testing.

  With out finding the article in the medical journals  to support the fact they r related, here is from one Chiari specialists web page on this topic and others :

  Groundbreaking Research

Chiari Institute physicians were the first to:
Find the link between Chiari I malformation and Ehlers-Danlos Syndrome in a subgroup of Chiari patients.
Discover and investigate the relationship between Ehlers-Danlos Syndrome and functional cranial settling.
Define the link between tonsillar herniation and occult cord tethering in a subgroup of Chiari patients.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
5640779_tn?1375816966
Blank
desertstorm2009
AZ
1667208_tn?1333111449
Blank
zygy2
NH
992677_tn?1337358095
Blank
ChiariWolf
OH
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN