Chiari Malformation Community
Hypermobility and ehlers danlos III
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Hypermobility and ehlers danlos III

Just got back from a dr appt with my 10 year old daughter. She has hypermobility or as the doctor described it 'laxity' in her joints. I asked the doctor is this ehlers danlos and she said from her study she seems no differentiation between hypermobility syndrome and ehlers danlos III. My daughter has no pain in any joints so she said she technically has neither right now.

Has anyone else heard that Ehlers danlos type 3 is the same as hypermobility syndrome?

Thx

Seamatty
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1425323098

  Hi....yes, I have heard them intertwine the 2 terms...in fact I do have a letter from a Dr somewhere that explains this in more detail and much better then I can...I am still learning about all this too.

It is  several pages long, so I will have to post it in a journal as it is far too much for a thread.

  
Blank
Avatar_m_tn
Also Selma if you wouldn't mind explaining how eds and chiari are related I would be greatly appreciative! I am very interested
Blank
620923_tn?1425323098

If I could do that...wow, not sure I can, but what I can tell u is this those with  Chiari are prone to connective tissue disorders as well as auto immune disorders and EDS is a connective tissue disorder.

Many of us have Hashimoto's thyroiditis, which is an auto immune thyroid condition which is not always found thru normal thyroid testing.

  With out finding the article in the medical journals  to support the fact they r related, here is from one Chiari specialists web page on this topic and others :

  Groundbreaking Research

Chiari Institute physicians were the first to:
Find the link between Chiari I malformation and Ehlers-Danlos Syndrome in a subgroup of Chiari patients.
Discover and investigate the relationship between Ehlers-Danlos Syndrome and functional cranial settling.
Define the link between tonsillar herniation and occult cord tethering in a subgroup of Chiari patients.
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
12417243_tn?1425415764
Blank
inasense commented on Jorlex37's status
1 hr ago
4525198_tn?1425523277
Blank
Jorlex37 this journey is a constantl... Comment
7 hrs ago
Avatar_f_tn
Blank
nequa2009 commented on When Your Cold Is Not...
Mar 02
Top Neurology Answerers
620923_tn?1425323098
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1415842914
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1425323098
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1415842914
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
979826_tn?1389039958
Blank
soccero
germantown, MD