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973882 tn?1258681304

I found a video clip of a Chiari surgery

I found this video of an actual Chiari surgery that was done on a 6 year old boy in some ways it answered questions and other ways I have a lot more questions for my NS. Please if you watch this video remember this is an actual graphic surgery but I hope it will help the Chiari sufferers understand the process of this surgery. I know it has helped me understand it better,even though I am still scared to death of this surgery.
Here is the link for the video link if it does not work let me know and I will try it again.

http://video.google.com/videoplay?docid=326561660545641575&ei=eBd_Sqj9JcSDlgfCrphD&q=chiari+surgery&hl=en



12 Responses
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620923 tn?1452915648
COMMUNITY LEADER
Yes...it is funny how I see what I am doing as helpful, when someone else sees it so differently.....I was told alot it was my tone...????

I am a shy person by nature, so to speak in front of alot of people I do have to push myself.....I try to be funny and approachable.....but u also have to remember....u can talk to ten people at the same time.....each report a differnt sinerio......it is perception and we do not have control over that.

I can work on my tone, but someone can still read into what I say or do, bcuz that is who they r.

When u r in pain it is hard to control emotions.....if someone's face looks upset, or admits to being felt like u bossed them around...just apologize and say that wasn't ur intent.U r now aware of it....

To give u an example....When I was still at work, we got this new person who did not like me....I don't know y....but one day she walked into my office...she wanted changes made to the schedule for her dept.....I said ...I have ur schedule right here, I plan to enter it next...do u want to look at this to see if there r neother changes u want...I turned to my associate in the office with me...she asked a question, when I turned around the other one was gone...in less than 5 mins, my manager called and chewed me out for being rude to her...get this, I was accused of looking at her with  "one eye"...what is that??
So, as u can see no matter what u do , u may always have someone saying something....the associate in the office asked me whan I hung up the phone if I spoke with her b4?....I said no, that was it for today.And she said u were not rude....

AS my chiari progressed, I did she my attitude change with this type of pettiness....even asking this person to let me know when I made her feel like this to say something might help in the future...her response was- "I am tired of fighting with u"....really????

I began to cry at work...not me...felt like I was going crazy and couldn't stand it nemore....almost like I was being gasslighted???

So, yeah, I know just what u mean.

"selma"
Helpful - 0
973882 tn?1258681304
I am glad I am giving you hope I just wish I knew what God's plans were for me and the rest of us. I feel like this is going past the point of effecting me personally and at work not only in my ability to do my job but effecting me with others. Sometimes I hurt so much and I know I take out on others even though I do not realize I am doing it until they get mad and I honeslty do not mean to be like that but I can be in so pain that I do not know that when I talk to some of guys at work that they think I am be bossy (as they put it) till it is to late. have you had anything like this happen with you?
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
I am so glad to hear......it helps to know God made me this way for a reason....so I can help others like me.

"selma"

: )
Helpful - 0
973882 tn?1258681304
Your giving hope to me and others who are at the end of their rope.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Hi..vent all u need that is y this forum is here, if u keep it all inside u'll bust open.
I felt the same as u do at the end of my rope or sanity......it can get to be too much and I was there and I try not to get to that place nemore, but I had the surgery and I am slowly feeling better and still adding more things to the list of I can do this again.

"selma"
Helpful - 0
973882 tn?1258681304
Hi Everyone,

I am like you I want to know as much as I can about what is happening to me and what they will be doing while they are takin a peek at my brain, it may not be much but it is mine LOL I kind of shocked the NS when I had my 1st appointment with him. I told him that I did some researched on him and that a lady (SELMAS)  from this website actually found a patient of his on the web and I was able to find out a little bit of the surgery that he preformed on this patient. He was also surprised that I told him that on my next appointment that I would have a list of question for him and if he did not answer my questions to satisfy me then I would be seeking another dr would and he would not be preforming the surgery he told me that was one of the best decision I could make. I am not sure about everyone else but I am tired of all the doctors telling me that I am over medicated, and my body is just to sensitive to the slightest bit of pain and it's over reacting, I am tired of getting trigger point injections to try and ease the amount and the pain of having muscle spams that I am having in my upper back and neck. I am tired of being told to suck up and deal with the pain (by my pain dr.) I am also tired of being told "WELL WITH THE PAIN MEDS THAT YOUR ON YOU SHOULD BE IN PAIN". Having this surgery is my last resort I do not know what I will do if I can not get even a little bit of relief.

Does anyone else feel like they are at the end of their rope? and is it normal to feel like that? or am I just being complaining to much? Sorry if I am complaining to much!
Helpful - 0
847512 tn?1272567062
Hi everyone,
I personally have seen that video and like a lot of the others on here I wanted to know exactly what was going to happen when I get the surgery. It answered a lot of questions for me too but at the same time kinda freaked me out just because they will be poking around in my brain ...one thing that is kinda funny is my regular doctor told me he would be surprised if I didn't do all the research I have done and he straight up told me I probably know more about Chiari then he does...LOL ....so it is good to be educated and a lot of people are going to ask why you watch the video I just don't think they even understand enough to know what goes through our heads as far as thoughts and questions...Honestly I would like to know of more videos to watch in a way it kind of comforts me.
Helpful - 0
Avatar universal
;-) I found it a while back. For me it the video answered a lot of questions. Well and answered some that had not even entered my mind just yet. Some here wanted to see it others said "eww!"
Helpful - 0
973882 tn?1258681304
I know for myself if I have a better understanding of exactly the surgery will be entail I will

not be as panic about it as I could be and I know not every surgery is like the last.

I hate asking my daughter to come home (she is married and lives in Jacksonville FL.

with her hubby who is in the Navy) to go threw this surgery with me but

this is one surgery that I feel I need her there, my oldest son is having serious medical

problems with his son and we do not know if he will be able to be there and my

youngest son (he is a marine) will be going over seas for about 8 weeks and he will not

be able to there so with the help of this video I will be able to help my daughter

understand what will happen and what to expect plus I like to watch medical procedures

yeah I know I'm weird. I just hate to have her go threw something this traumatic again I

was in a car accident about 8 years ago that I was cut out of the car and life flighted from

and when the police called to notify my family that I was in an accident, they told my son

that I was in a fatal accident and they thought I had been killed so it was really hard for

me to make a choice to ask my daughter to come home.

Let me know how things are going for you.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
I wanted to know what was going on...just couldn't look at it......I am very squeemish (sp)......lol....but I did all the research and knew exactly what was going to be done.

I still can nnot watch the video....my DH did and he had a better idea by watching.....the zipperheads here like Shane answered so many questions and I did go to a conference last July and met Dr Oro and Dr Bolognese and had the chance to speak with both of them.

The more u know and understand the better treatment u can find for urself!!

"selma"
Helpful - 0
997898 tn?1303734864
I saw that video too!  I with you, in that I want to know what is going on...especially in my head!  My dad watched a bit of it with me, but mom quickly left the room.  She's with you, Selma!  :)  I think it will be even more interesting to me once all the tests have been done and the final results are in!  

Good luck to you and let me know how you're doing!
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER
Many of the good chiari drs do have clips like this on their sites......I am one of those that can not stomach to watch them.

Even right b4 the surgery that morning my NS wanted to review and I said I knew already and did not want to hear the details....I had to push it out of my mind.....for some watching is easier after they have surgery.

I am glad that this clip has helped u gather questions for ur dr.

"selma"
Helpful - 0
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