I need some help or advice please

[Spirit2375]

Hey there, I don't post often but I'm here again. I'm really declining in health and my symptoms are getting more severe with new ones happening also.
I have had brain MRI, cervical spine MRI and a cine flow MRI. The NS I sent my brain MRI to stated that 'it possibly isn't Chiari, but don't rule it out'. And gave me a referral for the cine CSF flow MRI. I had that done yesterday. I've had a look at it and to me it looks like flow is not getting past the tonsils. It looks to me like my tonsils are creating a plug in the foramen magnum. It's driving me crazy not knowing what is going on with me. I have most of the classic Chiari symptoms, my tonsils are not heavily herniated, rather they look to be plugging and crowding the brain stem.
I have a sleep study scheduled for tomorrow and seeing a cardiologist also as my heart rate increases when I stand up. It's goes crazy fast and I get dizzy and out of breath.
Is there anyone in America that I can send my scans to just so they can take a look and tell me what they see. Others with Chiari have had a look and they all say they see that I clearly have Chiari and my flow is blocked.
I have recently been diagnosed with DDD, bulging discs, bone spurs, loss of disc height and loss of cervical lordosis in my cervical spine, and I see that's a common problem in Chiari patients. I also have scoliosis which was diagnosed in my late teens.
I just want someone to tell me what is wrong with me, not just say that maybe I have Chiari. You either do or you don't.
Thanks for listening to me.

[selmaS]

  Hi and welcome back....

You will want to have a tilt table test to see if you have POTS a related condition which affects the BP when we change positions....

Many of the top Chiari specialists will review MRI's and consult on different cases....some charge for this....but look at the top Chiari specialists and contact them to see how they can be of help to you.

Waiting for a DX is not easy and can be very frustrating....hang in there and know you are not alone.

[Initwithyou]

You really need all your information reviewed by a Chiari specialist.  Good luck = best wishes for answers and improvement