Hi and welcome to the Chiari forum.
It is highly possible ur pain is from the chiari....most of us have found that meds just do not touch this pain....
Do u have a chiari specialist?...we do have a list of Drs that the members here have compiled of their own drs names. The list is not a referral, but a means to help u start ur research.
The list is located in a thread and the Health Pages are found at the bottom of this forum page.
"selma"
I was just released from the hospital yesterday (after 6 days of them attempting to get pain control for a "headache") ..and, even tho I'm on a Fentanyl patch, Percoset, Neurontin and Topamax - I awoke this morning with excruitiating hip pain. Is this related to the diagnosed Chiari Malformation?????
I stayed in the er almost all day today. I got up this morning with severe hip & leg pain. I wont get my results until monday but i do know it is awful :(
Hey Jls,
I have a mild mc1 and I just developed severe, severe right hip pain 2 weeks ago. I can't touch or lay on that side.
Hi, i do hope your feeling a bit better, i had this in June this year, 2 A&E visits within 2 weeks, the pain is indescribable, but yes like what you imagine food poisoning to feel like, i was in A&E for about 4 hours each time, xrays clear - infection clear - no kidney stones, i had to have liquid morphine cause the pain was unbearable, it's so weird, no one knows what caused it i had a repeat ultrasound 6 weeks later and nothing.
Hi...it is possible that ur hip pain is chiari related...it could be a pinched nerve or u could have Ehlers-Danlos it can cause joint pain.
As for the stomach, many chiarians have GERD...stress can cause it to flare up....
How do u feel now, I pray u r feeling better.
"selma"