Chiari Malformation Community
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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Hello everyone!  I am still doing quite well.  I have been back at work since the end of April and have been feeling really good.  I do have the occasional headache here and there but nothing a Tylenol can't get rid of!  I wanted to share that the day I got back to work, everyone told me about a co-worker that had just been dx'd with chiari.  I work on a fairly large Neo ICU, we got about 200+ RN's.  Anyway, when I finally got to speak with her, she was going to see my surgeon.  Long story short, she is now a zipperhead and we just found another co-worker may be joining our ranks from the nightshift crew!  That is crazy! Three RN's from the same unit with the same dx! It ***** that they are having to go through this but it is just so odd.  When one of the girls went to the ER and I met her there too offer support...the ER guy was like " you had this too?" And we said "oh yeah, we're running a NICU special known as Chiari, everyone has it" and he just laughed.  I mean gotta have a sense of humor about it sometimes right?  I am being supportive, I do want to pass on the support I got from here to those around me that need it.  You guys helped me alot and I am very grateful for that! Just paying it forward...
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620923_tn?1398277065
Hi ..so glad to hear from u and that u r doing so well.

It does seem odd to have sooooo many in one unit like u said...makes me wonder about environmental triggers...ie- the work u do...lifting ect.....

It is wonderful that u r able to offer support to ur fellow co-workers/chiarians....and remember u can always send them here as well if they need more info for themselves or family members.


I pray u continue to do well and I hope u pop on now and then to let us know how u r doing.

"selma"

PS- did u add ur dr to our drs list?
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1285653_tn?1288362229
Awesome to hear you are back to work.

THANKS so much for posting this. Totally appreciate it!
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1179332_tn?1297482590
Glad to hear that you are feeling better and back at work...you had a really tough time of it!!

That is soo weird about 3 of you in the same floor having Chiari...talk about coincidence!!
At least you will be able to support each other, so no one feels alone :)

Take care and I pray you continue to feel well!

Carolyn
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