Intracranial Hypertension

I had my surgery on May 19, 2010. I have posted a few times on here about some of my problems. But this ICP is really hurting. The heartbeats in both ears, the horrible headaches, my ears hurting, and my horrible vision.
I did find out that the CSF Leak that I thought I had is not a leak at all. It is excess CSF. My NS explained that when he lifted my brain with the titanium mesh, it was my bodys natural response to make more CSF and fill that void. It is about 4 cm in length. The same as it was three weeks prior on a ct scan. So he increased my Diamox. He feels it will go away in time.
But he doed not think that is what is causing my problems. He feels it is elevated ICP. The LP that they had done three weeks prior showed my pressure elevated at 28. He doesnt want to put me through another because I got a severe spinal headache for almost two weeks.
My main question is....how do you treat elevated ICP?
Oh, I also wanted to add that for the last three days, I have been freezing. I have a sweatshirt on and five blankets. After my tylenol kicks in, I shed everything sweating. Then get cold again. I am achy, so tired, and my neck is really stiff. My husband is worried that my CSF buldge back there may be an infection. But wouldnt they have tested for that when they did the spinal???

[rod44]

Hi Danie, I found the following on line however I would strongly advise that you go see your GP, Infection is something that must be ruled out, better to be safe than sorry....

Ray

The medications used in this disorder are directed at lowering intracranial pressure. The diuretic acetazolamide is the most effective drug for this task. Furosemide may be used as a replacement, although it is not as potent as acetazolamide. Corticosteroids are indicated on a short-term basis in patients who present with severe papilledema and compromise of their visual function.

Acetazolamide (Diamox, Diamox Sequels)

Nonbacteriostatic sulfonamide; potent CA inhibitor, which is effective in diminishing fluid secretion. Lowers intracranial pressure by decreasing production of cerebrospinal fluid. Inhibition of CA results in a drop in sodium ion transport across the choroidal epithelium. Reduction of cerebrospinal fluid production occurs within hours.

[selmaS]

Hi...ICP is not uncommon for some after a PFD and if not able to regulate with meds like Ray mentioned above, they may resort to using a shunt.

I am sure ur dr would have tested the CSF at the last LP for infection and other abnormalities....
The fact u r freezing concerns me and does sound more like an infection. Call ur dr and let him know about this symptom.

Please keep us posted on how u r doing
"selma"