Most Drs when testing someone's thyroid will only look at the TSH, but since many with chiari r prone to auto immune thyroid issues they do have to do the Free T3, Free T4 and TPO antibodies as well as TSH...other wise u can have a "normal" report when there is something wrong.....
I recognize many of the items u listed, but not for a thyroid test, and if a Dr can use those to determine a thyroid is functioning normally, I have no idea...but, I would ask for a auto immune thyroid function test.
"selma"
Selma, I looked over my test results and I don't see any of the tests that you mentioned. I have a laboratory results letter from my old doc and it says thyroid function test normal. But I look at the list of tests and I do not see the T3, T4, TPO, OR TSH.
What I have is these; WBC, RBC, HGB, HTC, MCV, MCH, MCHC, RDW, PLT, MPV, Neut#, Lymphs#, Monos#, Eos#, Baso#, Neut%, Lymphs%, Monos%, Eos%, Baso%, Sodium, Potassium, Chloride, Anion Gap, CO2, Glucose, Calcium, Urea Nitrogen Blood, Creatinine, BUN/ CREAT Ratio, Protein Total, Albumin, Alkaline Phosphatase, Biliribun, Total, SGOT (AST), SGPT (ALT), Glomerular Filt. Rate, EST.
I wonder if they forgot to give me a page when I requested the records. I will call then sometime and see about those tests that you mentioned.
When u had blood labs did they do the free T3 and free T4, TPO antibodies as well as TSH?....many only look at the TSH and it appears that the thyroid id "normal" when there is something amiss.
Not having sleep apnea I can not speak to that from a first hand experience and that to me is more credible than something on the web.
Sleep issues I have had were times of insomnia....but even when I could sleep, it was never a refreshed sleep such as what u described....waking up tired....no fun.
Good luck with the specialist, let me know how it goes : )
"selma"
I had all my blood work done recently. There were no issues noted regarding my thyroid. I have a small growth on my pituitary gland and my T is a little on the low normal side. Those are the only other things that I know about. I just notice that these cold spells seems to happen when my cpap numbers are elevated. I'm guessing it has something to do with my sleep apnea. But my sleep apnea seems worse when my headaches are bad. So maybe it has something to do with the chiari. HA HA this seems like a big puzzle.
I hope the ambien I'm taking is not putting me to sleep to much. The funny thing is I don't have any problem sleeping at all. In fact, when I have to sleep it is overwhelming. I take it because when I sleep I wake up tired. But if I take the ambien, I seem to get to the deeper stages of sleep.
Selma, thanks for your comments. I made a call to a specialist in Seattle today. I'm waiting for them to return my call. Hopefully, I can get an appointment and then start getting some answers.
Hi...Not sure if it is a normal chiari thing......my temp is typically low as well as my BP...so I am not sure since u said ur's was typically higher at the normal reading.
Do u know if u have other issues going on as well?...like a thyroid issue like Hashimoto's? It seems to be a common thread with chiarians.
"selma"