Chiari Malformation Community
Is it abnormal?
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Is it abnormal?

I finally figured out how to convert my MRI image to Jpeg which made it so I could post to my profile. Yay!!. Could someone take a peek at it and let me know if there really are abnormalities? I have been getting wierder and wierder symptoms the past week. Today has been horrible :(. Very sick to my stomach, worst headache so far, worse pain, weaker leg, more tingling, and very tired. I had to take a 4 hour nap today.
Thank you everyone. I am so happy I have found this forum.
7 Comments Post a Comment
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620923_tn?1405964489

  Hi...keeping in mind we r not Drs and r going by what our MRI's look like and comparing them to urs as well to a reg brain MRI...u can see that u have some kinking of the brain stem...not sure if u were told that....that is more an issue then the herniation and since ur herniation looks to be minimal u may not get Drs to listen to u....make sure they see the MRI....be careful about how u move ur head as that will affect how u feel.....

JMHO

Here is a link to a "normal" brain MRI see how urs curves where the other one is straight?  http://www.nasa.gov/images/content/19994main_brain.jpg
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4244028_tn?1352497210
When I saw the abnormality I messaged my MD ( new thing through clinic where patients can message their Drs instead of having to call) and told him that I think I may see something abnormal. He stated that I have nothing wrong with my health. These Drs and even a Neuro told me depression from chronic pain is causing all my odd symptoms! All the posts I read where people have to battle to get diagnosis makes me so sad because I really do know what that feels like.
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620923_tn?1405964489

  Well ur MD is the wrong person to be reviewing this for u, u need a Chiari specialist.....and until u do, u will be told it is anxiety and everything else under the sun..,.that is part of the struggle....they do not know enuff to really make a statement that it is not an abnormal issue....

Did u have a CINE MRI?
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4244028_tn?1352497210
No I havent had CINE MRI yet. It was a battle to just get MRIs done. I live in an area where closest specialist is about 5 hours away. I am very new to all this. Thought my pain and tingling for past year and half was just some bulging discs or pinched nerves. Then odd symptoms happened so I got copy of my MRIs about 2 months ago and saw the abnormalities. Now I am trying to figure out what I should do. I am trying a new Dr so I can get a referral. I have no idea what else to do.
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620923_tn?1405964489

  U can make copies of  ur MRI's and send them to Chiari specialists for them to review and to give a consult to ur current Drs...some do this free, while others charge a nominal fee....

something to consider....
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4244028_tn?1352497210
Oh thank you :). I wasnt sure I could do that. I have a certain specialist in mind. One that diagnosed and did surgery on my close friend for Chiari 2, removal of several vertebrae and tethered cord.
Thanks again selmaS!!
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620923_tn?1405964489

  Sure...just contact them, and ask how to go about it....tell them u r not near Drs that know where to direct u.....

Good Luck and do keep us posted : )
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