I have been diagnosed with 5.7 cm. syrinx in thoracic spine, and a foraminal narrowing at C5-6 and C6-7, and a cerebellar tonsillar ectopia. Is any of this mean I have Chiari? My NS just said no tumor causing syrinx. He says spinal cord trauma. Is this chiari, if so, how bad? Thanks for any help.
It sure sounds like it. The most important thing you can do at this point is get a copy of your scans and reports and find a true Chiari specialist. There is a list here of docs that members have used and liked. I would do this sooner than later since you have a syrinx as this can cause permanent damage pretty quickly is my understanding. In order to know how bad there will need to be more tests done like a Cine MRI to see how much blockage of CSF you have. I am sure others will give you more info very soon.
Hi...I have to agree with Pam....call a true chiari dr to find out...the fact u have a syrinx means u need to get to a dr that is well informed on these matters.
As Pam pointed out, a syrinx is a sign that u have a CSF blockage and it can lead to perm damage....
The cerebellar tonsillar ectopia is another way to say Chiari...but, chiari is the malformation of the skull not the ectopia...and the ectopia or herniation can be the result of a CSF blockage as well, or even tethered cord pulling it down.
Since ur dr is saying it is trauma related, did u have an injury or MVA that could be the reason for it?Not everyone with the signatures for chiari and syringomyelia will actually have it...it can be acquired like ur dr suggests ur was or congenital.....
I am new on this forum, but can already tell it has compassionate members. Thanks for answering my many questions. do u no of a good specialist close to eastern Ky.? or in Indi? Once again, thanx 4 your help.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.