Aa
A
A
Close
1303966_tn?1296743610
It's All In My Head
What is this malformation inside my head?
Again, the pain sends me to bed
There are so many things I want to do
We don’t know if the surgery is right for you
There is crowding and denting in my brain
So many symptoms and chronic pain
Will the dizziness and nausea ever go away?
I patiently wait for a better day
Another appointment, more of the same
The lack of knowledge drives me insane
The side of my head and face got numb
I can’t find my words, I feel so dumb
Every day they asks me, “are you OK”?
I feel like a liar as I walk away
My forearm goes numb, my feet are tingling
The pain gets worse from laughing and singing
Sharp pain in my head comes and goes
It feels like an arrow went through my skull
Frightening episodes come out of nowhere
When will someone diligently care?
My body is shaking and I can’t express myself
What is happening to me, I’m going to pass out
They say my brain is too big for my head
Chiari Malformation Type 1
It’s all in my head

Cancel
7 Answers
Page 1 of 1
620923_tn?1452919248
Very good....wow!

<3 it : )      
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
1303966_tn?1296743610
Could you imagine how long this poem would be if I included "all" the symptoms!
Constructive venting I guess.
I was inspired by an earlier poem.
Thanks for the inspiration!
Comment
Cancel
1303966_tn?1296743610
Comment
Comment
Submit Comment
620923_tn?1452919248
I can ...as I like to say..we do not have a list of symptoms, but a manifesto of them....lol....

Hey what ever works to vent...I can totally appreciate : )
Comment
Cancel
620923_tn?1452919248
Comment
Comment
Submit Comment
Avatar_universal
Awesome! I love it!
I love creative ways to express what we're feeling, thinking, etc.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
1372734_tn?1309953837
Another great poem, keep them coming!!!!
Comment
Cancel
1372734_tn?1309953837
Comment
Comment
Submit Comment
1451338_tn?1413478623
What an awesome way to express the emotions that go along with this!
Comment
Cancel
1451338_tn?1413478623
Comment
Comment
Submit Comment
1303966_tn?1296743610
Revised poem - took another look and realized the poem wasn't done!

It’s All In My Head
What is this malformation inside my head?
Again, the pain sends me to bed
Why am I tired after all this sleep?
I have a family and work to complete
There are so many things I want to do
We don’t know if the surgery is right for you
There is crowding and denting in my brain
So many symptoms and chronic pain
It feels like my head it about to explode
The pressure inside is out of control
Will the dizziness and nausea ever go away?
I patiently wait for a better day
Another appointment, more of the same
The lack of knowledge drives me insane
The side of my head and face go numb
I can’t find my words, I feel so dumb
Every day they ask, “are you ok?”
I feel like a liar as I walk away
My forearm is numb, my feet are tingling
The pain gets worse from laughing and singing
Sharp pain in my head comes and goes
It feels like an arrow went through my skull
Frightening episodes come out of nowhere
When will someone diligently care?
My body is shaking, I can’t express myself
What is happening to me, I’m going to pass out
Now I have anxiety, but wouldn’t you?
With all of these symptoms controlling what you do
They say my brain is too big for my head
Chiari Malformation Type 1
It’s all in my head
Comment
Cancel
1303966_tn?1296743610
Comment
Comment
Submit Comment
Your Answer
1303966_tn?1296743610
Answer
Know how to answer? Tap here to leave your answer...
Answer
It's All In My Head
Submit Answer
A
A
Recent Activity
4760166_tn?1398360913
Blank
The_beat_goes_on commented on gjjl's status
Feb 07
16744917_tn?1451270439
Blank
gjjl have to have an MRI with a ... Comment
Feb 06
Avatar_f_tn
Blank
Georgiag111 commented on photo
Feb 06
Top Neurology Answerers
620923_tn?1452919248
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
1306714_tn?1327260680
Blank
linnielou232
muskegon, MI
562511_tn?1285907760
Blank
Karen99
CA
Avatar_f_tn
Blank
lasel22
Chiari Malformation Community Resources
Top Neurology Answerers
620923_tn?1452919248
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
1306714_tn?1327260680
Blank
linnielou232
muskegon, MI
562511_tn?1285907760
Blank
Karen99
CA
Avatar_f_tn
Blank
lasel22