Chiari Malformation Community
It's All In My Head
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It's All In My Head

What is this malformation inside my head?
Again, the pain sends me to bed
There are so many things I want to do
We don’t know if the surgery is right for you
There is crowding and denting in my brain
So many symptoms and chronic pain
Will the dizziness and nausea ever go away?
I patiently wait for a better day
Another appointment, more of the same
The lack of knowledge drives me insane
The side of my head and face got numb
I can’t find my words, I feel so dumb
Every day they asks me, “are you OK”?
I feel like a liar as I walk away
My forearm goes numb, my feet are tingling
The pain gets worse from laughing and singing
Sharp pain in my head comes and goes
It feels like an arrow went through my skull
Frightening episodes come out of nowhere
When will someone diligently care?
My body is shaking and I can’t express myself
What is happening to me, I’m going to pass out
They say my brain is too big for my head
Chiari Malformation Type 1
It’s all in my head

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7 Comments Post a Comment
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620923_tn?1405964489
Very good....wow!

<3 it : )      
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1303966_tn?1296743610
Could you imagine how long this poem would be if I included "all" the symptoms!
Constructive venting I guess.
I was inspired by an earlier poem.
Thanks for the inspiration!
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620923_tn?1405964489
I can ...as I like to say..we do not have a list of symptoms, but a manifesto of them....lol....

Hey what ever works to vent...I can totally appreciate : )
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Avatar_f_tn
Awesome! I love it!
I love creative ways to express what we're feeling, thinking, etc.
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1372734_tn?1309953837
Another great poem, keep them coming!!!!
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1451338_tn?1316106367
What an awesome way to express the emotions that go along with this!
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1303966_tn?1296743610
Revised poem - took another look and realized the poem wasn't done!

It’s All In My Head
What is this malformation inside my head?
Again, the pain sends me to bed
Why am I tired after all this sleep?
I have a family and work to complete
There are so many things I want to do
We don’t know if the surgery is right for you
There is crowding and denting in my brain
So many symptoms and chronic pain
It feels like my head it about to explode
The pressure inside is out of control
Will the dizziness and nausea ever go away?
I patiently wait for a better day
Another appointment, more of the same
The lack of knowledge drives me insane
The side of my head and face go numb
I can’t find my words, I feel so dumb
Every day they ask, “are you ok?”
I feel like a liar as I walk away
My forearm is numb, my feet are tingling
The pain gets worse from laughing and singing
Sharp pain in my head comes and goes
It feels like an arrow went through my skull
Frightening episodes come out of nowhere
When will someone diligently care?
My body is shaking, I can’t express myself
What is happening to me, I’m going to pass out
Now I have anxiety, but wouldn’t you?
With all of these symptoms controlling what you do
They say my brain is too big for my head
Chiari Malformation Type 1
It’s all in my head
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