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1794411 tn?1321495731

Just ranting a bit...

Well I went to see a new psychiatrist yesterday to see about med changes etc.. when I was talking about having chiari and the depression it has caused...she looked at the notes I guess and said, well the chiari is just a "defect"...well isn't a malformation a defect? then she tells me that the chiari isn't causing any of my headaches... I was LIVID!  The last thing I need is ANOTHER professional tell me that the chiari isn't causing my symptoms
So today I called and got results from the MRI I had on my neck. I have a neck protrusion between C5-C6. and I guess there were some mild changes, but I don't know to what b/c it was just a nurse reading the notes. I will find out next week at my appt. I am glad to have some answers at least! I'm telling you I am so tired of being told that the chiari isn't causing problems....I've had a headache since last night...it feels like it's all over my head.. my eyes ,  my neck.. kinda keeps moving but is everywhere? Thanks for listening!
~Melissa
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620923 tn?1452915648
COMMUNITY LEADER

  HA = headaches


  no worries , not everyone knows the shorthand we use.....
Helpful - 0
1306714 tn?1327257080
I don't mean to sound stupid but what is HA?
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1306714 tn?1327257080
I know just how you feel.  It took over 2 year's for them to find my CM, and I thought I was going crazy also.  I did have surgery which caused complication's due to my scar tissue didn't form around my stitches.  I ended up having 3 surgeries all together.  Would I go through it again.  Yes  because I still have pain, but nearly as bad as before surgery.  Just keep  being persistant because only you know your body and we are not crazy.  Even though some times I feel like it.  Good luck.
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620923 tn?1452915648
COMMUNITY LEADER


  Back when I first went to Drs with my HA's they did not do MRI's like they do today....and I was sent to a shrink...sigh....

I was 16 at the time, finally dx'd with chiari at age 48....yes, I did go to Drs since then, and no, none of them found the chiari or did a MRI until I was in my mid to late 30's and they found I had tethered cord, I was never told.

  The problem is too many Drs have not been educated on how chiari can  and does affect people...or how to connect the symptoms to one thing instead of insisting u have multiple things going on with the base of it being stress or anxiety...

  Hang in there and keep pushing for answers : )

     "selma"
Helpful - 0
1794411 tn?1321495731
Thank you! THe Dr's in our area are clueless! There's a Chiari Institute in Milwaukee ( about a half hour from me) but I can't go there until I have all the MRI's etc...and getting the other Dr;s to do what I need them to do is almost impossible!
Thanks again! I hope you find some relief too, 4 years? OMG!!!
God Bless!
Helpful - 0
1663373 tn?1333635989
Just wanted to let you know your not alone and so many doctors are clueless.  I have had a constant headache for 4 years so I understand how frustrating it is.  Dont give up there are good doctors out there and when you find one it is so validating.  Wish you luck and may your find someone that understand you to give you relief!
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