Chiari Malformation Community
LIST OF CHIARI SPECIALISTS
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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LIST OF CHIARI SPECIALISTS

Shane99 condensed our list of drs. (Thanks Shane!)

This list is not a complete list of possible Specialists - Please continue to add.

This is not any kind of "Official" list of Chiari Specialists! These are simply NeuroSurgeons that we patients have listed as liking. No background checks have been made about them. If you wish to follow up, please research on your own. If you are comfortable with your current doctor and he/she is actually qualified to perform Chiari Decompression Surgery, then don't let us tell you any differently. This list is just to help people connect with NeuroSurgeons. It is not intended as a referral, please research all Drs.

Thread link for drs in Canada~~
http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-CANADA/show/1270605

Link to Australia list~~
http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-Australia/show/1314732






ALABAMA

Anthony Martino
Mobile, Alabama

Dr. Jerry Oakes  
Pediatric Neurosurgeon
UAB in Birmingham, Al.  


ARIZONA

Dr. Marc Ercius Mesa, Arizona
(480) 833-5209

ARKANSAS

Dr. Timothy Bursen Little Rock, Arkansas

Dr. Anthony Capocelli Fort Smith, Arkansas

CALIFORNIA

Dr. Jorge Lazareff, MD
  Specialty: Neurological Surgery; Director Pediatric Neurosurgery
  Ronald Reagan UCLA Medical Center
200 Medical Plaza, Suites 140
Peter Morton Medical Building
Los Angeles, CA 90095

Phone:
(310) 794-7700 Patient Appointments

  Contact (310) 206-6677
Fax Number (310) 794-2147

Paul S. Jackson, M.D. , Ph.D.
Palo Alto Center
795 El Camino Real
Level 3, Lee Building
Palo Alto, California 94301
(650) 853-2919
Deputy Chief of Neurosurgery -- Stanford University School of Medicine
Assistant Professor-- Stanford University School of Medicine

COLORADO

Dr. John Oro, Chiari Care Center Aurora, Colorado
(303)-481-0035

CONNECTICUT

Dr. Judith Gorelick
Connecticut Neorosurgery PC
330 Orchard St, #316,
New Haven, CT
(203) 781-3400

DELAWARE

Dr. Jeffrey W. Campbell,
Dr. Benjamin Warf,
DuPont Children’s Hospital
Wilmington, Delaware

FLORIDA

Dr. Balis
Dr. Lewis
3000 Fletcher Ave
Tampa, FL
813-977-3776

GEORGIA

Dr.  Vidyadhar Chitale
Marietta

ILLINOIS

Dr. Todd Alexander
Ste 210
1235 North Mulford Road,
Rockford, IL 61107-3879
(815) 397-0077

Dr. Frim
Chicago, IL

Dr. Merle Diamond,
Diamond Headache Clinic
Chicago, Illinois

Dr Gail Rosseau Chicago Institute of Neurosurgery and Research (CINN)
4501 N Winchester Ave
Chicago, Il

IOWA

Dr Arnold Menzes
200 Hawkins Drive
Iowa City, IA 52242

LOUISIANA

Scott W. Soleau, M.D.
Neurosurgery
The NeuroMedical Center Clinic
10101 Park Rowe Avenue
3rd Floor
Baton Rouge, Louisiana 70810
Phone: (225) 768-2050



MARYLAND

Dr Marcella Madera

Primary Location:
The Johns Hopkins Hospital
600 N. Wolfe Street
Baltimore, MD  21287

Building: Meyer
Room: 5-109

Phone: 410-955-5464
Fax: 410-502-3399
Appointment Phone: 410-550-093

Dr. Powers
Bethesda, MD

Dr. Fraser Henderson - Neurosurgeon (chiari and spine specialist)
Spine Team Maryland
8116 Good Luck Road, Suite 205
Lanham, MD  20706
(also has an office in Bethesda, MD)

MASSACHUSETTS

Dr. William Butler
Mass General Hospital
Boston, Mass

Dr. Carl Heilman  NS
Tufts Medical Center,
Boston, MA

Jean-Valery Coumans, MD
Mass General Hospital
15 Parkman St.
Boston, MA 02114
Tel: 1-617-726-3511
Fax: 1-617-643-4115


MICHIGAN


Dr. Lynn Hedeman
Great Lakes Neurosurgical Associates
414 Plymouth NE
Grand Rapids, MI 49505
(616) 454-3465


Dr. Karin Muraszko
@ C.S. Motts Childrens Hospital
Ann Arbor at the University of Michigan

DR Richard Veyna  
Head and Spine Institue of MI
West Bloomfield, MI

MINNESOTA

Dr. Mahmoud Nagib
Neurosurgical Associates
Minneapolis
913 East 26th Street
305 Piper Building
Minneapolis, Minnesota 55407
Phone 612-871-7278
Fax 612-863-8531


MISSISSIPPI

Dr. Timothy Wiebe
Hattiesburg, Mississippi

NEW YORK

Chiari Institute Great Neck, New York
(516) 570-4400
(516) 394-8350
Dr. Thomas Milhorat
· Dr. Paolo Bolgnese
· Dr. Rohit Verma
· Dr. Misao Nishikawa
· Dr. Roger Kula
· Dr. Sol Mora
· Dr. Amit Shelat
· Dr. L. Thierry Remy

Dr Chanland Roonprapunt (Formerly of The Chiari Institute)
Spine Institute of New York
Ph: 212-523-6720
Title: NS

NEVADA

Dr.Michael Seiff,
Las Vegas NV.


NORTH CAROLINA

Dr. Michael J. Rosner Fletcher,
North Carolina

Gerald A. Grant, MD
Pediatric Neurosurgeon
Duke University
Durham, North Carolina
Appointment Telephone
919-684-5013

Office Telephone
919-684-5013

Fax Telephone
919-684-8274


OHIO

Dr. Daniel Prevedello,
recently moved from Pittsburgh, PA to Columbus, OH.
Ohio State University

Dr. John M. Tew, Jr.
Mayfield Clinic
University Medical Arts Bldg.
222 Piedmont Ave., Suite 3100
Cincinnati, OH 45219

(513) 221-1100
800-325-7787

OREGON
Dr. David Adler
Emanuel and Providence.  
Columbia Neurosurgical Associates
1040 Northwest 22nd Avenue,
Portland, OR
(503) 796-2743‎

PENNSYLVANIA

Dr Bejani
Pittsburgh, PA



Dr Gardner
UPMC Presbyterian Hospital
Pittsburgh Pa

SOUTH DAKOTA

Dr. Ralph Reeder Sioux City,
South Dakota

TENNESSEE

Dr. Carl Hampf,
Baptist Hospital
Nashville, Tennessee
800-668-9410
(615) 327-9543  

Dr Reid Thompson,
Dr. Cheng,
Vanderbilt Hospital
Nashville, Tennessee

Dr. Samuel Hunter
Nashville, Tennessee

Dr. Stephanie Einhaus
Semmes Murphy clinic
Memphis TN,

TEXAS

Dr.Victor Kareh, MD
Neurosurgery, Spine Surgery
21216 Northwest Freeway
Suite 230
Cypress, TX 77429
281-640-2121

Dr. Jeremy Denning
Dr. Richard Jackson
Dallas Neurosurgical and Spine Associates
Presbyterian Hospital of Dallas,
Professional Building III,
Suite 220,
8230 Walnut Hill Lane,
Dallas, Texas 75231
Phone: 214-750-3646


Gulf Coast Brain & Spine Institue
Dr. Peter J. Yeh, MD, FACS
Board Certified Neurological Surgeon
6565 West Loop South, Ste. 450
Houston, TX  77401
713.661.8900
713.661.5535 fax


WASHINGTON

Dr. Buchwald,
Dr. Maravilla
Dr. Ellenbogen
Ninth & Jefferson Building
908 Jefferson St., Fifth Floor
Seattle, WA 98104
206-744-9300


Dr. Gregory Foltz
Swedish Hospital
Seattle, WA
206-320-2800

WEST VIRGINIA

Dr. Rammy Gold Parkersburg, West Virginia

WISCONSIN

Dr. Dan Heffez Milwaukee, Wisconsin

Bermans J Iskandar,MD
600 Highland Avenue
Madison, WI 53792-0001
(608) 263-6420
UW Madison
Related Discussions
185 Comments
Viewing 1-200 comments:
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Dr. Judith Gorelick in Connecticut is not a chiari specialist as it says on the list of specialists.  She did my surgery and I spent the next year deteriorating.  When she couldn't help me she told me it was in my head and told me I had anxiety.  I got to the point that I was bedridden and could not to anything for myself.  I finally got diagnosed with EDS by a specialist and had severe instability in my neck.  Also my cerebellum was literally coming out of my skull.  There was nothing protecting my brain.  I also had tethered cord which she did not find.  Do not go to her.  Finally after a year of suffering and losing everything I got two more surgeries to correct the damage that she did to my neck (it was broken by this point).  I am finally recovering after surgery with Dr. Fraser Henderson in Maryland.  He saved my life and is a true chiari specialist.  He is very knowledgeable about chiari and its related conditions. Traveling is worth it when it comes to chiari.
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Hi and welcome to the Chiari forum.

Thank u for sharing ur experience, and I am sorry u had to go thru that. AT the heading of our list, it does say this list is not a list of specialists,rather it is a list of NS's that have treated the members here for chiari and the member if they liked their dr add them to the list.

There r many lists on line....and we do not copy them as u can not go by them and we encourage all members to research all drs to find the right dr for them.

I am so sorry u had that experience with that dr, and will take ur info under advisement.

  I am glad u found Dr Henderson, he is a new up and coming go to Dr for Chiari.......
getting a dx of EDS b4 surgery can benefit all chiarians and save them much in the way of set backs with recovery.

  "selma"
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Florida
Dr. Barth A. Green , M.D.

Professor & Chairman of Neurological Surgery:

Also one of the many Authors of the CM and SM Patient Handbook

http://www.csfinfo.org/chiari_syringomyelia_cm_sm_handbook

Clinical Specialties

Neurological Surgery

University of Miami Hospital
1400 NW 12th Avenue
Miami, FL 33136
Telephone: (305) 689-5511

Dr. Barth Green
(305) 243-3262

http://neurosurgery.med.miami.edu/

Dr. Barth Green also Co-Founded
The Miami Project
It is research project to cure paralysis.
He is also part of the Shake-A-Leg Foundation, which is also to cure paralysis.

The University of Miami in conjunction with Jackson Memorial Hospital of Miami,  also have a Spinal Cord Clinic. More specific information can be obtained by contacting The Miami Project.
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  Thank u for adding this Dr, he is on our main list in the Health Pages, not sure how he was missed on this thread....but thanks for the xtra info too :  )
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I fought to have my husband seen by Dr. Green. But, because I don't take no for answer, he will be seeing Dr. Green. I believe with CM and SM, we all must really be proactive. I have only known about SM for 1 year. The lack of education within the medical community juat plain and simply makes me sick!! I will always advocate as much as I possibly can to have more attention paid to CM and SM.
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  I know what U mean...it is an uphill battle...but we all have to take this into our own hands in order to get the proper treatment......finding the right dr is key.

And I never tire of saying this, chiari and syringomyelia are not rare conditions, it is well informed Drs that are rare!!
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Thanks for adding Dr. Green, he is awesome. I am having surgery with him on June 16th.
Good luck to you and your husband!  Be prepared to wait a while to see him. My first visit I waited 3-4 hours before he saw me. I was so upset and about to leave until he came in. He is so kind and spent close to 2 hours with my husband and I. He is worth the wait!
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Dr. Eduardo J Perez

Luther Hospital Neuro Science 1400 Bellinger Street
Eau Claire, WI 54703

I would trust this man with my life i recovered in 3 weeks from a chiari 1 malformation surgery! I would have to say he's the best in the business.  
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  Thanks for adding this Dr to our list...I am so glad u had such wonderful interactions with him. : )
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  Please feel free to add ur Drs name once u r post op, and feel ur Dr did a good job : )

All names added still need to be researched by neone looking for a Dr, this list is not meant as a referral.
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Terry Lichtor, MD


Jonesboro Neurosurgery Clinic, Inc


800 South Church Street, Suite 203
Jonesboro, AR 72401

870-934-1462



Medical School
The University of Chicago

Residency
University of Chicago
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The superintendent of our school district's wife died during chiari surgery this past November. Dr. Tew from Cincinnati was doing the surgery, I know there is an investigation into what happened because she was a strong 40 yr old woman. I don't know any of the details, so I try not to judge, but it was def enough for me to go else where.
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  Thanks for the add and the info !!
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Hello I am a new CM1 patient and would like to add my doc. Thanks to the initial poster for giving us new patients a start in searching NS all over. It is nice knowing I am not the only one! And yes is a CHIARI Specialist:

Dr. Danial Barrow
ATL, GA
404- 778-5770

Although I am in the new process of finding out what is going on.. I first seen him in 2004, and he suggested that is was unclear of my condition but wanted to wait until my symptoms became worse before he suggested surgery. (At the time I was not having the serve headaches and other issues as now).. so I am back with him so determine my CM1.

Also is anyone having issues with their eyes being slightly crossed? I read that since the area in which the decompression is at, it is near the optical nerve which causes the blurriness but need to know about the crossing?

Thanks everyone for posting!
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Hi and welcome to the Chiari forum.

Thanks for sharing ur Drs name...yes, I have heard of ur Dr and know he is a chiari specialist...

  Nice to have u here, sorry for the reasons tho.

      "selma"
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          Bumping for newbies...use this list to find names of Drs to research...add ur drs name when u feel  comfortable sharing : )
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MISSISSIPPI

St. Dominick's Hospital, Jackson
Neurologist - Dr. David McHenry
Neurosurgeon - Dr. Adam Lewis


PLEASE NOTE:  Dr. Timothy Wiebe is no longer in Hattiesburg, MS.  According to his office, they do not know where he is practicing now.
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Thank u for the update on Dr Wiebe : ) and for the addition of ur Dr.

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  Bump
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  Bumping up for newbies to add their chiari Drs name to the list...once u add it here, I can have it added to our list in the Health Pages.

Also use this thread to inform us if a Dr retires and is no longer needed on the list...

   Thanks : )
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  Bumping up for newbies to add their chiari Drs name to the list...once u add it here, I can have it added to our list in the Health Pages.

Also use this thread to inform us if a Dr retires and is no longer needed on the list...

   Thanks : )
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Hi, I am a newbie but have spent great hours reading everyone's messages and they have been very helpful, thank you.
I have a 8yr old daughter with CMI with syrinxs which caused scoliosis of 34 degrees.  She was referred to Dr. Mahomar in L.A. Kaiser and she is scheduled to have decompression surgery and maybe other things which I don't remember since doctor really scared me with many facts and possible different scenerios.
I still have so many questions and still not sure if I'm doing the right thing by putting my baby through this traumaitc surgery when she only has mild neck pains time to time and surgery seems so... I'm sure I dont even have to describe what I'm trying to say... I'm so scared that once she has the surgery, if the outcome isn't as great then she will have to have second and even third surgeries...
I don't think I can put her through that again and again..
Should I wait jus a little until she is little bigger/older (not several years but just 5~6 months until I talk to few more doctors and get more feed back from helpful friends like yourselves...
Does anyone know Dr. Mahomar and are there anyone out there who didn't have the surgery and could tell me how their daily life is like or maybe recommend a specialist pediatric CM nureosurgeons?.... Please... help..
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One of the Best of the West!!!!!

Dr. Nicholas Theodore MD practices neurosurgery and neurology in Phoenix, Arizona. Dr. Theodore graduated with an MD 24 years ago.

Address & Contact Information:
Barrow Neurosurgical Associates, LTD 2910 North 3rd Avenue
Phoenix, AZ 85013
Phone: (602) 406-3181
http://www.healthgrades.com/physician/dr-nicholas-theodore-yl7lg/office-locations
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Dr. Joseph M Zabramski MD practices neurosurgery in Phoenix, Arizona. Dr. Zabramski graduated with an MD 32 years ago.
Specialties:
Neurosurgery - Board Certified  

Phone & Address
Office locations for Dr. Joseph M Zabramski, MD
Primary Location
Barrow Neurosurgical Assocs Ltd
2910 North 3rd Avenue
Phoenix, AZ 85013
Phone: (602) 406-3181
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  Thank you for the add of ur Drs to our list.
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Eric R Trumble, MD Director of Congenital Neurosurgery Walt Disney Pavilion at the Clinical Professor at UCF, FSU, & NOVA-SE  
615 E Princeton St  Suite 540 Orlando, FL  32803
(407) 236-0006 Fax (407) 236-0007 www.neurosurgeons4kids.com

He is a pediatric Neurosurgeon but he will see adults with Chiari.  Check out his website and you can email him and he will respond.
He was amazing and sees about 2-3 Chiari patients a week. so he knows his stuff, was even very well informed about Chiari 0.
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  Thank u Missy for adding ur Drs name and info !!
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Theres a new Neurosurgeon in Erie Pa at UPMC Hamot
Dr Raymond Sekula.

There was an article in mondays paper describing an extremely minimally invasive surgery for chiari.

http://www.goerie.com/apps/pbcs.dll/article?AID=2011311279879
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  There was a Dr at CC that did the minimally invasive procedure too, the only problem is not everyone is a candidate for that procedure....

I actually had that type of knee surgery and the surgeon told me he planned to use the procedure but it all depended on what was found once inside if he could proceed with the less invasive procedure or need to go with the basic surgery...lucky for me, it was the less invasive....

  Thanks for adding the Dr's name : )
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Thanks so much for posting this without this my life would be a crazy mess of doctors that dont know that they are talking about..oooh wait that pretty much explains the last 5 years of my life. But still thank YOU!!!
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Albany, New York

Dr. Matthew Adamo
Albany Medical Center
47 New Scotland Avenue, MC 10
Physicians Pavilion, 1st Floor
Albany, NY 12208

Tel.   (518) 262-5088      
Fax.   (518) 262-5400
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  Thanks for the add : )
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Since there are no NSs on here from KY I thought it might be good to add one. I haven't seen him yet but have an appt with him. I have met 3 other people who have had decompressions with him and have gone to him with Chiari. He's new to the area and so far only good stuff by fellow Chiarians...


Dr. Ondrej Choutka
King's Daughters Medical Center – Neurosurgical Specialties
Medical Plaza B
613 23rd Street - Suite G20
Ashland, Kentucky 41101 United States


(The only other one I have heard much about in KY is Dr. Shields and he got terrible reviews. I had an appt with him and canceled after reading the horrendous stuff on the internet about him. He was not a Chiari specialist, though, just someone who had experience with Chiari.)
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  Please update us once u have been seen and treated by this Dr....as we use that as a means to know that the treatment was a success : )

We r always looking for new names to add...thanks.
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Selma I would like to add my neurosurgeon to the list.       Deus j Cielo, M.D.                        
                    Neurosurgery foundation, Inc.
                    55 Claverick street suite 100
                     Providence, RI 02903
                      Tel# 401 490 4163
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  Thanks for the add : )
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Please add.....
Dr. Rajesh Bindal
Methodist Sugar Land Hospital
Medical Office Building 3
16605 S.W. Freeway, Suite 285
Sugar Land, Tx
77479
281-313-0031
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  Will do, thanks for adding the info to the thread....
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   BUMPING up for new members to add their Drs names if they were successfully treated and liked their dr.
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Dr Ware did my Surgery in Oct 2011


Marcus L. Ware, M.D., Ph.D.
Medical Director for Neurosurgical Oncology
Department of Neurosurgery
Ochsner Medical Center
1514 Jefferson Highway, New Orleans, LA 70121
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  Welcome to the Chiari forum.

Thanks for the Add of ur Drs name.....
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Hello, everyone! Being in Florida, I was so excited to see Dr. Barth Green at University of Miami is a specialist on these conditions. When I tried to get an appointment, he was not on my insurance. Fortunately, the young man told me that there was an up and coming specialist in the area, trained under Dr. Green, and he referred me to him. I am now 4 weeks post-op and extremely pleased with this Dr.

Dr. Ryan Trombly
305-689-3328

He has offices in Miami and Boca Raton. This man is amazingly talented. There is a bit of a wait to see him, but he never makes you feel pressured to hurry up and he answers any question you may have. This has been a difficult recovery, but he has been amazing through it all. If you live in Florida, I would highly recommend this neurosurgeon.
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  Thanks for  the add, there are not many NS's for chiari in FL so I am sure this will give more one more  NS for them to research closer to home.

Again thanks for sharing : )
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Im wondering if there should be a separate drs to avoid list.
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  That would put MedHelp at a legal crossroads they do not want, this is a public forum and the Dr can find their name by using google, so no negative with their names, but we do warn via PM's when possible...meaning u give us a heads up b4 u go......

And by the Drs name not being on out list is also a way...we only put names on of Drs the members here liked,.

It is not a perfect system, and all members do have to research the drs to find the right one for them.
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My (confident) NS sent me here.  :)
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Dr. Todd Shanks
Norton Neurosurgical Institute of KY
210 East Gray Street Suite 1105
Louisville, KY 40202
Phone:
(502) 394-6390
1-877-410-4214

Med. School, Internship and Residency at University of Louisville

Fellowship at Noton Leatherman Spine Center, Louisville, KY

Dr. Shanks did my decompression on Feb. 10, 2012. He did a great job as far as I can tell. He really takes the time to answer your questions and explain things. He is like me though, he talks really fast, so you may have to ask him to slow down, my mom did and he did the best he could and never acted offended. I don't think he "specializes" in Chiari, but he has had many patients with Chiari and knows his stuff. And he isn't the type to brush you off. If you aren't at the stage to need surgery, he follows up regularly to stay on top of the Chiari.

And for you ladies... he's not to hard on the eyes either. LOL.
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  Thanks for the add of ur Drs info !!
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  bumping up for those past post op visits with their NS that may not be on our list, to ask u to please add it here : )
  
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  there is Dr. Curry at mass General in Boston
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  Thanks for adding this Drs name Sandy...did he do ur surgery?
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Dr. Rob Parrish in Houston Texas is doing my Chiari surgery next Wednesday June 13!! He is a wonderful neurosurgeon, with a phd!! I did a lot of research and went through a selection process to choose him!! Did my pre-ops two days ago and asked the RN that I was with if she would be in on my surgery, she said no but I wish, everyone wants to be in on Dr. Parrish's surgeries, I hope you know, that you have one of the best doctors in Houston!! That made me feel so much more at ease with my upcoming surgery!! Just wanted to share that and suggest you to add him to the list!! Thank you!! God Bless!! :)
-17sunshine
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  Hi, thanks for letting us know about this Dr and ur surgery, I will be sure to post a prayer thread for u.

We usually do not add a Dr to the main list until after the member gets thru post op to see just how they like how they were treated etc....but, will keep my eyes open to see what allu have to add about this Dr.
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    Bumping up for new members
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Not a Chiari specialist, not even a surgeon, but someone who understands the seriousness of a C. Malformation & how it may impact vision:
Dr. David Chesnutt
Neuro-ophthalmologist
UNC Hospital, Chapel Hill, NC
919.966.5509
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  Thanks, it is good to have a good eye Dr that understands how chiari affects vision too : )
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  Hi all I am bumping this up and reminding u all that this list  is here to help u start ur research and is NOT a referral...not all Drs on this list can be considered a true chiari specialist and u can not tell if the Dr is right for u until u meet...so educated urself on ur condition and then decide what is best for u!!
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I want to add dr.sahuquillo working and dedicating his life for chiari and related issues. He is treating the most difficult cases of chiari and related issues of whole spain and even further...i met those people

Prof. Sahuquillo
Vall d'Hebron Hospital
Barcelona (spain)
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  Iris, I think we should get a separate list for Spain.....to keep the lists easy to  review....
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  I only had 2 for the month of July that were listed for surgery...do we not have others?
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Dr. Alan J. Appley
Acadiana Neurosurgery
http://www.acadiana-neurosurgery.com/
155 Hospital Drive
Suite 100
Lafayette LA  70503
Phone: 337-235-7743
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I saw Dr. Chitale in Georgia for my first NS appointment. He was the one that told me Chiari doesn't cause headaches, nor is there surgery for type 1 and told me maybe I was just stressed, that was why I had headaches. He is also not a Chiari Specialist, he is just capable of doing the surgery. As for Chiari Specialists in GA, I've yet to find a true specialist here that isn't a pediatric specialist. I saw Dr. Wray at the Atlanta Brain and Spine Care center on Peachtree Rd. He is really nice and ordered the other tests that are needed for Chiari for me. Although he believes different than what I read, he is really understanding and compassionate. I don't know whether I will keep him at this point or not, I'm waiting to see what he thinks of my CINE MRI. I have another NS in GA that I made an appointment with (also not a specialist), but his secretary knew what Chiari was and said he has quite a few of patients with Chiari and is capable of doing the surgery. Dr. Tariq Javed in Marietta. I will post update after I see him as well, and after I go back for the results of my CINE MRI with Dr. Wray.
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does anyone have a list for England??xx
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  Yes, if u go to the Health Pages there is a link to a list to the Ann Conroy Trust...which I am told r Drs that treat over there .....I would suggest u also research the Drs on the list and see a few to find one u r comfortable with,
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Dr. John Walsh
Tulane University Hospital and Clinic
New Orleans, La.  70112
Proffeser & Chief,
Section of Pediatric Neurosurgery
1415 Tulane Avenue
1-800-588-5800

Dr. Walsh performed my surgery and is a true specialist. I highly reccomend him to anyone in the area or otherwise. He also has a very good bedside manner. His staff is also well versed with Chiari and related conditions.
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  Thanks Sheila for that add : )
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No problem ! I know that the guy listed here on the site as being in Louisiana no longer exists here to my knowledge, and I remember having such a hard time finding Dr.Walsh, that I hope this helps someone else the way he helped me :)
There is only one other specialist that I have found and he is a pediatric NS only, yet when faced with a caseof Chiari in a young girl, he contracted Dr Walsh to do the surgery out of network and in another hospital in which Dr Walsh did not work.
I am also interested to see how my new NL works out, in hopes of adding him here. There are almost never NL's that get it !
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  Really Who is that, I should remove that name from the list...thanks : )
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Hello could you enter my Dr. He is one of the top Chiari surgeons in nation.
    Dr. John Jane Senior
University of Virginia Medical Center
Charlottesville, Virginia 22908

   Phone 434-924-2203

Thank You and thank you for all the information you have posted it is very helpful.

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  Thanks for this add and I will be happy to add this Dr to our list....how far post op are u at this point?
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Please add ur Drs info to this thread( if not already on) after u have healed from surgery and were pleased with ur Dr....and we will add it to the main list......
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HI, I saw your post and a recommendation for a NS in Houston, and wonder how you are doing ? Thank you
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Dr. Daniel Gaudin at UTMC in Toledo Ohio.  The most amazing bed side manner I have ever encountered with a surgeon.
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