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620923 tn?1452919248
LIST OF CHIARI SPECIALISTS
Shane99 condensed our list of drs. (Thanks Shane!)

This list is not a complete list of possible Specialists - Please continue to add.

This is not any kind of "Official" list of Chiari Specialists! These are simply NeuroSurgeons that we patients have listed as liking. No background checks have been made about them. If you wish to follow up, please research on your own. If you are comfortable with your current doctor and he/she is actually qualified to perform Chiari Decompression Surgery, then don't let us tell you any differently. This list is just to help people connect with NeuroSurgeons. It is not intended as a referral, please research all Drs.

Thread link for drs in Canada~~
http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-CANADA/show/1270605

Link to Australia list~~
http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-Australia/show/1314732






ALABAMA

Anthony Martino
Mobile, Alabama

Dr. Jerry Oakes  
Pediatric Neurosurgeon
UAB in Birmingham, Al.  


ARIZONA

Dr. Marc Ercius Mesa, Arizona
(480) 833-5209

ARKANSAS

Dr. Timothy Bursen Little Rock, Arkansas

Dr. Anthony Capocelli Fort Smith, Arkansas

CALIFORNIA

Dr. Jorge Lazareff, MD
  Specialty: Neurological Surgery; Director Pediatric Neurosurgery
  Ronald Reagan UCLA Medical Center
200 Medical Plaza, Suites 140
Peter Morton Medical Building
Los Angeles, CA 90095

Phone:
(310) 794-7700 Patient Appointments

  Contact (310) 206-6677
Fax Number (310) 794-2147

Paul S. Jackson, M.D. , Ph.D.
Palo Alto Center
795 El Camino Real
Level 3, Lee Building
Palo Alto, California 94301
(650) 853-2919
Deputy Chief of Neurosurgery -- Stanford University School of Medicine
Assistant Professor-- Stanford University School of Medicine

COLORADO

Dr. John Oro, Chiari Care Center Aurora, Colorado
(303)-481-0035

CONNECTICUT

Dr. Judith Gorelick
Connecticut Neorosurgery PC
330 Orchard St, #316,
New Haven, CT
(203) 781-3400

DELAWARE

Dr. Jeffrey W. Campbell,
Dr. Benjamin Warf,
DuPont Children’s Hospital
Wilmington, Delaware

FLORIDA

Dr. Balis
Dr. Lewis
3000 Fletcher Ave
Tampa, FL
813-977-3776

GEORGIA

Dr.  Vidyadhar Chitale
Marietta

ILLINOIS

Dr. Todd Alexander
Ste 210
1235 North Mulford Road,
Rockford, IL 61107-3879
(815) 397-0077

Dr. Frim
Chicago, IL

Dr. Merle Diamond,
Diamond Headache Clinic
Chicago, Illinois

Dr Gail Rosseau Chicago Institute of Neurosurgery and Research (CINN)
4501 N Winchester Ave
Chicago, Il

IOWA

Dr Arnold Menzes
200 Hawkins Drive
Iowa City, IA 52242

LOUISIANA

Scott W. Soleau, M.D.
Neurosurgery
The NeuroMedical Center Clinic
10101 Park Rowe Avenue
3rd Floor
Baton Rouge, Louisiana 70810
Phone: (225) 768-2050



MARYLAND

Dr Marcella Madera

Primary Location:
The Johns Hopkins Hospital
600 N. Wolfe Street
Baltimore, MD  21287

Building: Meyer
Room: 5-109

Phone: 410-955-5464
Fax: 410-502-3399
Appointment Phone: 410-550-093

Dr. Powers
Bethesda, MD

Dr. Fraser Henderson - Neurosurgeon (chiari and spine specialist)
Spine Team Maryland
8116 Good Luck Road, Suite 205
Lanham, MD  20706
(also has an office in Bethesda, MD)

MASSACHUSETTS

Dr. William Butler
Mass General Hospital
Boston, Mass

Dr. Carl Heilman  NS
Tufts Medical Center,
Boston, MA

Jean-Valery Coumans, MD
Mass General Hospital
15 Parkman St.
Boston, MA 02114
Tel: 1-617-726-3511
Fax: 1-617-643-4115


MICHIGAN


Dr. Lynn Hedeman
Great Lakes Neurosurgical Associates
414 Plymouth NE
Grand Rapids, MI 49505
(616) 454-3465


Dr. Karin Muraszko
@ C.S. Motts Childrens Hospital
Ann Arbor at the University of Michigan

DR Richard Veyna  
Head and Spine Institue of MI
West Bloomfield, MI

MINNESOTA

Dr. Mahmoud Nagib
Neurosurgical Associates
Minneapolis
913 East 26th Street
305 Piper Building
Minneapolis, Minnesota 55407
Phone 612-871-7278
Fax 612-863-8531


MISSISSIPPI

Dr. Timothy Wiebe
Hattiesburg, Mississippi

NEW YORK

Chiari Institute Great Neck, New York
(516) 570-4400
(516) 394-8350
Dr. Thomas Milhorat
· Dr. Paolo Bolgnese
· Dr. Rohit Verma
· Dr. Misao Nishikawa
· Dr. Roger Kula
· Dr. Sol Mora
· Dr. Amit Shelat
· Dr. L. Thierry Remy

Dr Chanland Roonprapunt (Formerly of The Chiari Institute)
Spine Institute of New York
Ph: 212-523-6720
Title: NS

NEVADA

Dr.Michael Seiff,
Las Vegas NV.


NORTH CAROLINA

Dr. Michael J. Rosner Fletcher,
North Carolina

Gerald A. Grant, MD
Pediatric Neurosurgeon
Duke University
Durham, North Carolina
Appointment Telephone
919-684-5013

Office Telephone
919-684-5013

Fax Telephone
919-684-8274


OHIO

Dr. Daniel Prevedello,
recently moved from Pittsburgh, PA to Columbus, OH.
Ohio State University

Dr. John M. Tew, Jr.
Mayfield Clinic
University Medical Arts Bldg.
222 Piedmont Ave., Suite 3100
Cincinnati, OH 45219

(513) 221-1100
800-325-7787

OREGON
Dr. David Adler
Emanuel and Providence.  
Columbia Neurosurgical Associates
1040 Northwest 22nd Avenue,
Portland, OR
(503) 796-2743‎

PENNSYLVANIA

Dr Bejani
Pittsburgh, PA



Dr Gardner
UPMC Presbyterian Hospital
Pittsburgh Pa

SOUTH DAKOTA

Dr. Ralph Reeder Sioux City,
South Dakota

TENNESSEE

Dr. Carl Hampf,
Baptist Hospital
Nashville, Tennessee
800-668-9410
(615) 327-9543  

Dr Reid Thompson,
Dr. Cheng,
Vanderbilt Hospital
Nashville, Tennessee

Dr. Samuel Hunter
Nashville, Tennessee

Dr. Stephanie Einhaus
Semmes Murphy clinic
Memphis TN,

TEXAS

Dr.Victor Kareh, MD
Neurosurgery, Spine Surgery
21216 Northwest Freeway
Suite 230
Cypress, TX 77429
281-640-2121

Dr. Jeremy Denning
Dr. Richard Jackson
Dallas Neurosurgical and Spine Associates
Presbyterian Hospital of Dallas,
Professional Building III,
Suite 220,
8230 Walnut Hill Lane,
Dallas, Texas 75231
Phone: 214-750-3646


Gulf Coast Brain & Spine Institue
Dr. Peter J. Yeh, MD, FACS
Board Certified Neurological Surgeon
6565 West Loop South, Ste. 450
Houston, TX  77401
713.661.8900
713.661.5535 fax


WASHINGTON

Dr. Buchwald,
Dr. Maravilla
Dr. Ellenbogen
Ninth & Jefferson Building
908 Jefferson St., Fifth Floor
Seattle, WA 98104
206-744-9300


Dr. Gregory Foltz
Swedish Hospital
Seattle, WA
206-320-2800

WEST VIRGINIA

Dr. Rammy Gold Parkersburg, West Virginia

WISCONSIN

Dr. Dan Heffez Milwaukee, Wisconsin

Bermans J Iskandar,MD
600 Highland Avenue
Madison, WI 53792-0001
(608) 263-6420
UW Madison
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185 Answers
Page 1 of 1
620923 tn?1452919248

  Ann Conroy Trust Drs list thread -

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS-UK/show/1503569
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Dr. Judith Gorelick in Connecticut is not a chiari specialist as it says on the list of specialists.  She did my surgery and I spent the next year deteriorating.  When she couldn't help me she told me it was in my head and told me I had anxiety.  I got to the point that I was bedridden and could not to anything for myself.  I finally got diagnosed with EDS by a specialist and had severe instability in my neck.  Also my cerebellum was literally coming out of my skull.  There was nothing protecting my brain.  I also had tethered cord which she did not find.  Do not go to her.  Finally after a year of suffering and losing everything I got two more surgeries to correct the damage that she did to my neck (it was broken by this point).  I am finally recovering after surgery with Dr. Fraser Henderson in Maryland.  He saved my life and is a true chiari specialist.  He is very knowledgeable about chiari and its related conditions. Traveling is worth it when it comes to chiari.
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620923 tn?1452919248


Hi and welcome to the Chiari forum.

Thank u for sharing ur experience, and I am sorry u had to go thru that. AT the heading of our list, it does say this list is not a list of specialists,rather it is a list of NS's that have treated the members here for chiari and the member if they liked their dr add them to the list.

There r many lists on line....and we do not copy them as u can not go by them and we encourage all members to research all drs to find the right dr for them.

I am so sorry u had that experience with that dr, and will take ur info under advisement.

  I am glad u found Dr Henderson, he is a new up and coming go to Dr for Chiari.......
getting a dx of EDS b4 surgery can benefit all chiarians and save them much in the way of set backs with recovery.

  "selma"
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1677693 tn?1304511230
Florida
Dr. Barth A. Green , M.D.

Professor & Chairman of Neurological Surgery:

Also one of the many Authors of the CM and SM Patient Handbook

http://www.csfinfo.org/chiari_syringomyelia_cm_sm_handbook

Clinical Specialties

Neurological Surgery

University of Miami Hospital
1400 NW 12th Avenue
Miami, FL 33136
Telephone: (305) 689-5511

Dr. Barth Green
(305) 243-3262

http://neurosurgery.med.miami.edu/

Dr. Barth Green also Co-Founded
The Miami Project
It is research project to cure paralysis.
He is also part of the Shake-A-Leg Foundation, which is also to cure paralysis.

The University of Miami in conjunction with Jackson Memorial Hospital of Miami,  also have a Spinal Cord Clinic. More specific information can be obtained by contacting The Miami Project.
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620923 tn?1452919248

  Thank u for adding this Dr, he is on our main list in the Health Pages, not sure how he was missed on this thread....but thanks for the xtra info too :  )
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1677693 tn?1304511230
I fought to have my husband seen by Dr. Green. But, because I don't take no for answer, he will be seeing Dr. Green. I believe with CM and SM, we all must really be proactive. I have only known about SM for 1 year. The lack of education within the medical community juat plain and simply makes me sick!! I will always advocate as much as I possibly can to have more attention paid to CM and SM.
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620923 tn?1452919248


  I know what U mean...it is an uphill battle...but we all have to take this into our own hands in order to get the proper treatment......finding the right dr is key.

And I never tire of saying this, chiari and syringomyelia are not rare conditions, it is well informed Drs that are rare!!
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Avatar universal
Thanks for adding Dr. Green, he is awesome. I am having surgery with him on June 16th.
Good luck to you and your husband!  Be prepared to wait a while to see him. My first visit I waited 3-4 hours before he saw me. I was so upset and about to leave until he came in. He is so kind and spent close to 2 hours with my husband and I. He is worth the wait!
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620923 tn?1452919248

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Dr. Eduardo J Perez

Luther Hospital Neuro Science 1400 Bellinger Street
Eau Claire, WI 54703

I would trust this man with my life i recovered in 3 weeks from a chiari 1 malformation surgery! I would have to say he's the best in the business.  
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620923 tn?1452919248

  Thanks for adding this Dr to our list...I am so glad u had such wonderful interactions with him. : )
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620923 tn?1452919248


  Please feel free to add ur Drs name once u r post op, and feel ur Dr did a good job : )

All names added still need to be researched by neone looking for a Dr, this list is not meant as a referral.
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1664208 tn?1332786550


Terry Lichtor, MD


Jonesboro Neurosurgery Clinic, Inc


800 South Church Street, Suite 203
Jonesboro, AR 72401

870-934-1462



Medical School
The University of Chicago

Residency
University of Chicago
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Avatar universal
The superintendent of our school district's wife died during chiari surgery this past November. Dr. Tew from Cincinnati was doing the surgery, I know there is an investigation into what happened because she was a strong 40 yr old woman. I don't know any of the details, so I try not to judge, but it was def enough for me to go else where.
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620923 tn?1452919248


  Thanks for the add and the info !!
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620923 tn?1452919248

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Hello I am a new CM1 patient and would like to add my doc. Thanks to the initial poster for giving us new patients a start in searching NS all over. It is nice knowing I am not the only one! And yes is a CHIARI Specialist:

Dr. Danial Barrow
ATL, GA
404- 778-5770

Although I am in the new process of finding out what is going on.. I first seen him in 2004, and he suggested that is was unclear of my condition but wanted to wait until my symptoms became worse before he suggested surgery. (At the time I was not having the serve headaches and other issues as now).. so I am back with him so determine my CM1.

Also is anyone having issues with their eyes being slightly crossed? I read that since the area in which the decompression is at, it is near the optical nerve which causes the blurriness but need to know about the crossing?

Thanks everyone for posting!
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620923 tn?1452919248


Hi and welcome to the Chiari forum.

Thanks for sharing ur Drs name...yes, I have heard of ur Dr and know he is a chiari specialist...

  Nice to have u here, sorry for the reasons tho.

      "selma"
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620923 tn?1452919248


          Bumping for newbies...use this list to find names of Drs to research...add ur drs name when u feel  comfortable sharing : )
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MISSISSIPPI

St. Dominick's Hospital, Jackson
Neurologist - Dr. David McHenry
Neurosurgeon - Dr. Adam Lewis


PLEASE NOTE:  Dr. Timothy Wiebe is no longer in Hattiesburg, MS.  According to his office, they do not know where he is practicing now.
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620923 tn?1452919248

Thank u for the update on Dr Wiebe : ) and for the addition of ur Dr.

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620923 tn?1452919248

  Bump
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620923 tn?1452919248

  Bumping up for newbies to add their chiari Drs name to the list...once u add it here, I can have it added to our list in the Health Pages.

Also use this thread to inform us if a Dr retires and is no longer needed on the list...

   Thanks : )
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620923 tn?1452919248


  Bumping up for newbies to add their chiari Drs name to the list...once u add it here, I can have it added to our list in the Health Pages.

Also use this thread to inform us if a Dr retires and is no longer needed on the list...

   Thanks : )
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Avatar universal
Hi, I am a newbie but have spent great hours reading everyone's messages and they have been very helpful, thank you.
I have a 8yr old daughter with CMI with syrinxs which caused scoliosis of 34 degrees.  She was referred to Dr. Mahomar in L.A. Kaiser and she is scheduled to have decompression surgery and maybe other things which I don't remember since doctor really scared me with many facts and possible different scenerios.
I still have so many questions and still not sure if I'm doing the right thing by putting my baby through this traumaitc surgery when she only has mild neck pains time to time and surgery seems so... I'm sure I dont even have to describe what I'm trying to say... I'm so scared that once she has the surgery, if the outcome isn't as great then she will have to have second and even third surgeries...
I don't think I can put her through that again and again..
Should I wait jus a little until she is little bigger/older (not several years but just 5~6 months until I talk to few more doctors and get more feed back from helpful friends like yourselves...
Does anyone know Dr. Mahomar and are there anyone out there who didn't have the surgery and could tell me how their daily life is like or maybe recommend a specialist pediatric CM nureosurgeons?.... Please... help..
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1890554 tn?1322681648
One of the Best of the West!!!!!

Dr. Nicholas Theodore MD practices neurosurgery and neurology in Phoenix, Arizona. Dr. Theodore graduated with an MD 24 years ago.

Address & Contact Information:
Barrow Neurosurgical Associates, LTD 2910 North 3rd Avenue
Phoenix, AZ 85013
Phone: (602) 406-3181
http://www.healthgrades.com/physician/dr-nicholas-theodore-yl7lg/office-locations
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1890554 tn?1322681648
Dr. Joseph M Zabramski MD practices neurosurgery in Phoenix, Arizona. Dr. Zabramski graduated with an MD 32 years ago.
Specialties:
Neurosurgery - Board Certified  

Phone & Address
Office locations for Dr. Joseph M Zabramski, MD
Primary Location
Barrow Neurosurgical Assocs Ltd
2910 North 3rd Avenue
Phoenix, AZ 85013
Phone: (602) 406-3181
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620923 tn?1452919248

  Thank you for the add of ur Drs to our list.
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1855295 tn?1327540300
Eric R Trumble, MD Director of Congenital Neurosurgery Walt Disney Pavilion at the Clinical Professor at UCF, FSU, & NOVA-SE  
615 E Princeton St  Suite 540 Orlando, FL  32803
(407) 236-0006 Fax (407) 236-0007 www.neurosurgeons4kids.com

He is a pediatric Neurosurgeon but he will see adults with Chiari.  Check out his website and you can email him and he will respond.
He was amazing and sees about 2-3 Chiari patients a week. so he knows his stuff, was even very well informed about Chiari 0.
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620923 tn?1452919248

  Thank u Missy for adding ur Drs name and info !!
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1571533 tn?1322947109
Theres a new Neurosurgeon in Erie Pa at UPMC Hamot
Dr Raymond Sekula.

There was an article in mondays paper describing an extremely minimally invasive surgery for chiari.

http://www.goerie.com/apps/pbcs.dll/article?AID=2011311279879
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620923 tn?1452919248

  There was a Dr at CC that did the minimally invasive procedure too, the only problem is not everyone is a candidate for that procedure....

I actually had that type of knee surgery and the surgeon told me he planned to use the procedure but it all depended on what was found once inside if he could proceed with the less invasive procedure or need to go with the basic surgery...lucky for me, it was the less invasive....

  Thanks for adding the Dr's name : )
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1979479 tn?1330378618
Thanks so much for posting this without this my life would be a crazy mess of doctors that dont know that they are talking about..oooh wait that pretty much explains the last 5 years of my life. But still thank YOU!!!
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1910752 tn?1329493822
Albany, New York

Dr. Matthew Adamo
Albany Medical Center
47 New Scotland Avenue, MC 10
Physicians Pavilion, 1st Floor
Albany, NY 12208

Tel.   (518) 262-5088      
Fax.   (518) 262-5400
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620923 tn?1452919248

  Thanks for the add : )
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700067 tn?1332992883
Since there are no NSs on here from KY I thought it might be good to add one. I haven't seen him yet but have an appt with him. I have met 3 other people who have had decompressions with him and have gone to him with Chiari. He's new to the area and so far only good stuff by fellow Chiarians...


Dr. Ondrej Choutka
King's Daughters Medical Center – Neurosurgical Specialties
Medical Plaza B
613 23rd Street - Suite G20
Ashland, Kentucky 41101 United States


(The only other one I have heard much about in KY is Dr. Shields and he got terrible reviews. I had an appt with him and canceled after reading the horrendous stuff on the internet about him. He was not a Chiari specialist, though, just someone who had experience with Chiari.)
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620923 tn?1452919248

  Please update us once u have been seen and treated by this Dr....as we use that as a means to know that the treatment was a success : )

We r always looking for new names to add...thanks.
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1672915 tn?1335224198
Selma I would like to add my neurosurgeon to the list.       Deus j Cielo, M.D.                        
                    Neurosurgery foundation, Inc.
                    55 Claverick street suite 100
                     Providence, RI 02903
                      Tel# 401 490 4163
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620923 tn?1452919248

  Thanks for the add : )
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620923 tn?1452919248

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1929539 tn?1327254032
Please add.....
Dr. Rajesh Bindal
Methodist Sugar Land Hospital
Medical Office Building 3
16605 S.W. Freeway, Suite 285
Sugar Land, Tx
77479
281-313-0031
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620923 tn?1452919248

  Will do, thanks for adding the info to the thread....
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620923 tn?1452919248

   BUMPING up for new members to add their Drs names if they were successfully treated and liked their dr.
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2062955 tn?1330916608
Dr Ware did my Surgery in Oct 2011


Marcus L. Ware, M.D., Ph.D.
Medical Director for Neurosurgical Oncology
Department of Neurosurgery
Ochsner Medical Center
1514 Jefferson Highway, New Orleans, LA 70121
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620923 tn?1452919248

  Welcome to the Chiari forum.

Thanks for the Add of ur Drs name.....
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2063048 tn?1390828211
Hello, everyone! Being in Florida, I was so excited to see Dr. Barth Green at University of Miami is a specialist on these conditions. When I tried to get an appointment, he was not on my insurance. Fortunately, the young man told me that there was an up and coming specialist in the area, trained under Dr. Green, and he referred me to him. I am now 4 weeks post-op and extremely pleased with this Dr.

Dr. Ryan Trombly
305-689-3328

He has offices in Miami and Boca Raton. This man is amazingly talented. There is a bit of a wait to see him, but he never makes you feel pressured to hurry up and he answers any question you may have. This has been a difficult recovery, but he has been amazing through it all. If you live in Florida, I would highly recommend this neurosurgeon.
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620923 tn?1452919248

  Thanks for  the add, there are not many NS's for chiari in FL so I am sure this will give more one more  NS for them to research closer to home.

Again thanks for sharing : )
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Avatar universal
Im wondering if there should be a separate drs to avoid list.
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620923 tn?1452919248

  That would put MedHelp at a legal crossroads they do not want, this is a public forum and the Dr can find their name by using google, so no negative with their names, but we do warn via PM's when possible...meaning u give us a heads up b4 u go......

And by the Drs name not being on out list is also a way...we only put names on of Drs the members here liked,.

It is not a perfect system, and all members do have to research the drs to find the right one for them.
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Avatar universal
My (confident) NS sent me here.  :)
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2124631 tn?1335169744
Dr. Todd Shanks
Norton Neurosurgical Institute of KY
210 East Gray Street Suite 1105
Louisville, KY 40202
Phone:
(502) 394-6390
1-877-410-4214

Med. School, Internship and Residency at University of Louisville

Fellowship at Noton Leatherman Spine Center, Louisville, KY

Dr. Shanks did my decompression on Feb. 10, 2012. He did a great job as far as I can tell. He really takes the time to answer your questions and explain things. He is like me though, he talks really fast, so you may have to ask him to slow down, my mom did and he did the best he could and never acted offended. I don't think he "specializes" in Chiari, but he has had many patients with Chiari and knows his stuff. And he isn't the type to brush you off. If you aren't at the stage to need surgery, he follows up regularly to stay on top of the Chiari.

And for you ladies... he's not to hard on the eyes either. LOL.
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620923 tn?1452919248

  Thanks for the add of ur Drs info !!
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620923 tn?1452919248

  bumping up for those past post op visits with their NS that may not be on our list, to ask u to please add it here : )
  
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1759188 tn?1324681908
  there is Dr. Curry at mass General in Boston
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620923 tn?1452919248

  Thanks for adding this Drs name Sandy...did he do ur surgery?
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Dr. Rob Parrish in Houston Texas is doing my Chiari surgery next Wednesday June 13!! He is a wonderful neurosurgeon, with a phd!! I did a lot of research and went through a selection process to choose him!! Did my pre-ops two days ago and asked the RN that I was with if she would be in on my surgery, she said no but I wish, everyone wants to be in on Dr. Parrish's surgeries, I hope you know, that you have one of the best doctors in Houston!! That made me feel so much more at ease with my upcoming surgery!! Just wanted to share that and suggest you to add him to the list!! Thank you!! God Bless!! :)
-17sunshine
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620923 tn?1452919248

  Hi, thanks for letting us know about this Dr and ur surgery, I will be sure to post a prayer thread for u.

We usually do not add a Dr to the main list until after the member gets thru post op to see just how they like how they were treated etc....but, will keep my eyes open to see what allu have to add about this Dr.
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620923 tn?1452919248

    
    Bumping up for new members
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620923 tn?1452919248

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Avatar universal
Not a Chiari specialist, not even a surgeon, but someone who understands the seriousness of a C. Malformation & how it may impact vision:
Dr. David Chesnutt
Neuro-ophthalmologist
UNC Hospital, Chapel Hill, NC
919.966.5509
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620923 tn?1452919248

  Thanks, it is good to have a good eye Dr that understands how chiari affects vision too : )
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620923 tn?1452919248

  Hi all I am bumping this up and reminding u all that this list  is here to help u start ur research and is NOT a referral...not all Drs on this list can be considered a true chiari specialist and u can not tell if the Dr is right for u until u meet...so educated urself on ur condition and then decide what is best for u!!
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620923 tn?1452919248

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1925822 tn?1333709217
I want to add dr.sahuquillo working and dedicating his life for chiari and related issues. He is treating the most difficult cases of chiari and related issues of whole spain and even further...i met those people

Prof. Sahuquillo
Vall d'Hebron Hospital
Barcelona (spain)
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620923 tn?1452919248

  Iris, I think we should get a separate list for Spain.....to keep the lists easy to  review....
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620923 tn?1452919248


  I only had 2 for the month of July that were listed for surgery...do we not have others?
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3060676 tn?1440706544
Dr. Alan J. Appley
Acadiana Neurosurgery
http://www.acadiana-neurosurgery.com/
155 Hospital Drive
Suite 100
Lafayette LA  70503
Phone: 337-235-7743
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3052618 tn?1344108635
I saw Dr. Chitale in Georgia for my first NS appointment. He was the one that told me Chiari doesn't cause headaches, nor is there surgery for type 1 and told me maybe I was just stressed, that was why I had headaches. He is also not a Chiari Specialist, he is just capable of doing the surgery. As for Chiari Specialists in GA, I've yet to find a true specialist here that isn't a pediatric specialist. I saw Dr. Wray at the Atlanta Brain and Spine Care center on Peachtree Rd. He is really nice and ordered the other tests that are needed for Chiari for me. Although he believes different than what I read, he is really understanding and compassionate. I don't know whether I will keep him at this point or not, I'm waiting to see what he thinks of my CINE MRI. I have another NS in GA that I made an appointment with (also not a specialist), but his secretary knew what Chiari was and said he has quite a few of patients with Chiari and is capable of doing the surgery. Dr. Tariq Javed in Marietta. I will post update after I see him as well, and after I go back for the results of my CINE MRI with Dr. Wray.
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does anyone have a list for England??xx
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620923 tn?1452919248

  Yes, if u go to the Health Pages there is a link to a list to the Ann Conroy Trust...which I am told r Drs that treat over there .....I would suggest u also research the Drs on the list and see a few to find one u r comfortable with,
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1968463 tn?1374761413
Dr. John Walsh
Tulane University Hospital and Clinic
New Orleans, La.  70112
Proffeser & Chief,
Section of Pediatric Neurosurgery
1415 Tulane Avenue
1-800-588-5800

Dr. Walsh performed my surgery and is a true specialist. I highly reccomend him to anyone in the area or otherwise. He also has a very good bedside manner. His staff is also well versed with Chiari and related conditions.
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620923 tn?1452919248

  Thanks Sheila for that add : )
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1968463 tn?1374761413
No problem ! I know that the guy listed here on the site as being in Louisiana no longer exists here to my knowledge, and I remember having such a hard time finding Dr.Walsh, that I hope this helps someone else the way he helped me :)
There is only one other specialist that I have found and he is a pediatric NS only, yet when faced with a caseof Chiari in a young girl, he contracted Dr Walsh to do the surgery out of network and in another hospital in which Dr Walsh did not work.
I am also interested to see how my new NL works out, in hopes of adding him here. There are almost never NL's that get it !
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620923 tn?1452919248

  Really Who is that, I should remove that name from the list...thanks : )
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620923 tn?1452919248

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Hello could you enter my Dr. He is one of the top Chiari surgeons in nation.
    Dr. John Jane Senior
University of Virginia Medical Center
Charlottesville, Virginia 22908

   Phone 434-924-2203

Thank You and thank you for all the information you have posted it is very helpful.

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620923 tn?1452919248

  
  Thanks for this add and I will be happy to add this Dr to our list....how far post op are u at this point?
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620923 tn?1452919248
Please add ur Drs info to this thread( if not already on) after u have healed from surgery and were pleased with ur Dr....and we will add it to the main list......
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HI, I saw your post and a recommendation for a NS in Houston, and wonder how you are doing ? Thank you
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620923 tn?1452919248

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Dr. Daniel Gaudin at UTMC in Toledo Ohio.  The most amazing bed side manner I have ever encountered with a surgeon.
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620923 tn?1452919248

  Hi, is this a Chiari specialist? I am asking since u r not a member of the Chiari forum here.....

What surgery did u have done? From what I have read, he is part of an epilepsy  clinic....????
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620923 tn?1452919248

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Where is the list of doctors
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620923 tn?1452919248

  If u click on the link and not the last name that viewed this thread u will see it....it is also in the Health Pages...
http://www.medhelp.org/health_pages/list?cid=186
so if u see this scroll back up ......

or just click on this link it should take u to the top-

http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1503562#post_8506881
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620923 tn?1452919248


  U have to use the back page....seems I have to make a new thread as this one is getting very long.....
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Is there a doctor in the San Francisco Bay area that is adept at doing decompression surgery?  Thanks Red
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620923 tn?1452919248

  I am not familiar with where the ones listed are near as I do not know CA...u have to look at the ones listed for CA and see.....sorry I wish I knew that area.
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620923 tn?1452919248

  BUMP..to see the Drs page go back to page one....or go to the Health Pages....
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Hi, I am diagnosed with chiari malformation type 1 and syringomyelia, and my neurosurgeon recomended the operation, but I am not still satisfied that doing the opertation would be the best decission. I need some help pls...
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620923 tn?1452919248

  Hi....this thread is for adding Drs names and retrieving names....I know u r not sure that surgery is right for u, and that could be that u have yet to find the right Dr...take a look at the list of Drs and research them call them ask questions...see a few...

But most of us have surgery to prevent the formation of a syrinx, bcuz once one forms it can continue to grow and eventually cause paralysis. A syrinx can grow very slowly or very rapidly...and there is no way to  know which way urs will grow or continue to grow.....and a lack of pain can be an indication of nerve damage...that is the other  side effect of having a syrinx, the longer left untreated , u can have nerve damage...which leads to the  paralysis.

  I had surgery 3.5 yrs ago, I am glad I had it and I had an amazing Dr too....always make sure ur NS is a true Chiari specialist and that they check u for all related conditions and issues.
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Thanks for the reply, but I already have the syrinx from c4 to t3. I still am not sure if it's a right decision! Did u have the syrinx before surgery? How many doctors you saw before surgery? Do you it would be a better idea to do the operation in another city? I am super nervous and really confused!!!
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620923 tn?1452919248

  No I did not have a syrinx, I had surgery so I would not get one as I did have a CSF obstruction....and was having drop attacks....among many other symptoms.

I saw 3 NS's b4 I decided on the one that did my surgery, I also went to a Chiari conference to get more info on how Chiari and syringomyelia, EDS and other related conditions can affect us and our health.

I went to the Drs I felt knew Chiari best and for me that was leaving not only my city, but the state as well...

It is normal to be nervous, but once u find the right Dr he/she will help u understand all that needs to be done for u and y and once u r confident with the Dr u will be better able to make ur decision.
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I saw Dr William Butler in Boston at Mass General and I wanted to share that he is great. He is very matter of fact, he is available to return phone calls (which is something my last NL was not capable of), and he will be doing my surgery in the spring. I know I need to come back after my surgery and recovery time, but I also wanted to get my two cents in before I forgot what it was.
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620923 tn?1452919248

  Is this a NL or a NS?
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Dr. Fuchs at Duke university was my surgeon and i loved him, i am 10 months post op. he is a ped. neurosurgeon
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I need a Doctor in Georgia I live in woodstock. I have Chiari Mal Type 1 and I just found out I had it at age 47 and now It's getting to the point I feel like crap all day everyday.. I cant feel my left hand, My neck hurts all the time. and much more. But I cant find anyone..... any info would help. Thanks Sandra
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

The list has one Dr in ur state, and the name being on the list is not a referral u still have to research the Dr...and u may have to travel out of state to find the right Dr for u....

I was 48 when I was dx'd, and I had surgery 2  months b4 I turned 50....so u r not alone in how u feel....

Take ur time finding a Dr and make sure all related conditions r ruled out and a CINE MRI is done.

GEORGIA

Dr.  Vidyadhar Chitale
Marietta
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620923 tn?1452919248

  I forgot to mention here is the listing of Chiari Drs  for Georgia....
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620923 tn?1452919248

Hi...in order to see the full list back page to page one or go to the Health Pages and see the list there.

http://www.medhelp.org/health_pages/list?cid=186
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620923 tn?1452919248

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620923 tn?1452919248

  BUMP

  Click on the back page arrow to page one to see the main list or go to the Health Pages
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620923 tn?1452919248

  BUMP

  Click on the back page arrow to page one to see the main list or go to the Health Pages
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620923 tn?1452919248


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Dr William Butler, Mass General Boston, MA
He's a Chiari Specialist who deals with both Adults and children.  His practice has geared more into pediatrics these days, but he still works with adults.  I had chiari decompression surgery.  His focus is on you, how this affects you, not the disease itself.  If you are suffering, then he will operate.  A lot of surgeons last resort is surgery, but he really works for his patients.  I'm in CT so a lot of my "visits" were over the phone, he's that flexible.  If you're in new england I highly recommend him.
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He's my neuro too    :)  I just put him on this list.  Small world!!  
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Wow, selma - I never saw your response. Sorry!
He is a neurosurgeon.
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620923 tn?1452919248

  No worries....lol...at least now we know...I will be updating the Drs list in the health pages and then starting a new Drs list thread to get rid of all of the posts and compress it all...lol...so once i do that it will say Drs list 2013.

It may take me a few days to get done...but just a FYI to ALL.

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1645944 tn?1305246937
Dr Anthony Capocelli has moved from Ft. Smith.
He is practicing now at OrthoArkansas in Little Rock, AR.

Chiari specialist - trained at Chiari Institute.
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620923 tn?1452919248

  Thanks Abby for this update : )
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4826017 tn?1359741090
Nicholas M. Wetjen, M.D.
Mayo - Rochester, MN
Departments:
Neurosurgery & Pediatric and Adolescent Medicine
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Dr. Eric Trumble
Director of Congenital Neurosurgery at the Walt Disney Pavilion at Florida Hospital for Children
He has double-board certification (adult and pediatric neurosurgery)
615 E. Princeton Street, Suite 540
Orlando, Florida 32803
Phone: 407.236.0006
Fax: 407.236.0007
http://www.neurosurgeons4kids.com/
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Has anyone gone to Dr. O'Rourke at UPenn?
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620923 tn?1452919248

  If u do not see the name on the list u can assume that  a member here has not seen this Dr or may not have been happy....we only add Drs to the list if we were pleased....

R u referring to U of Penn in Philly? I went there, saw a Diff Dr and his words were I had Chiari but it was above him.....and he had no one to refer me to or suggestions....so, my feelings of the Drs down there was soured.

If u go and have  a good experience please share it with the rest of us : )
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620923 tn?1452919248


  Bumping for new member
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620923 tn?1452919248

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620923 tn?1452919248

  U can add ur Drs name here after u r post op and feel ur Dr is a Chiari specialist or u found a Dr that is well informed on Chiari....we will add the name to the list if the name is not already there.

Include contact info for the Dr.

Thanks
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4816750 tn?1368808270
Here is my doctors information:

Indiana
Dr. Troy Payner, MD IU Health Methodist Hospital
Goodman Campbell Brain and Spine - Downtown Indianapolis
1801 N Senate Blvd Suite 610
Indianapolis, IN 46202
(317) 396-1300 (Office)
http://www.goodmancampbell.com/faculty-and-staff.cfm/staff/22
http://www.iuhealth.net/portal/IUH/findadoctor?paf_gear_id=6900001&paf_dm=full&paf_gm=content&task_name=displayBio&contactId=3101

Tennessee, University of Tennessee
Dr. William Snyder Jr, MD
Neurosurgical Associates
1932 Alcoa Hwy Suite 255
Knoxville, TN 37920
(865) 524-1869 (Office)
http://www.healthgrades.com/group-directory/tennessee-tn/knoxville/neurosurgical-associates-97241d17

These are the best doctors I have eer dealt with.
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620923 tn?1452919248

  Thanks for the add Frankie : )
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Hi, I'm in Georgia.  I know someone who had her decompression for Chiari and a syrinx by neurosurgeon Dr. Barrow at Emory and she loved him, and she is doing great several years later.  Atlanta Neurology, N.P. Brandy Hughes is very kind and helpful for dealing with symptoms.  They get you in quickly and get things ordered quickly, too.  http://atlantaneurology.net/physicians.html
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CONNECTICUT

Dr. Michael Diluna
Yale New Haven Hospital

He is a chiari specialist and he did my surgery. He has been awesome every step of the way and I thought it was important to add him for CT since there aren't many doctors here that are aware of chiari. Highly reccomened him.
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620923 tn?1452919248

Thanks for the Add : )
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Dr. Donald O'Rourke
Hospital of the University of Pennsylvania
Philadelphia, PA

Great doctor for diagnosing Chiari and performing surgery!
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

WOW I am surprised that u found a Dr down there...do u know how long this Dr had been at Unn of Penn?

I went there 5 yrs ago and the Dr I saw said I had Chiari but it was above him and could not suggest who I could see....wondering if this Dr is new or  started after I was there...nice to know there is someone in state : )
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Please, who was your amazing doctor. I so much would like to know the name
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620923 tn?1452919248

  I went to TCI in NY, and I had Dr Salvatore Insinga....he was a very nice and caring man and shared info on Chiari so I understood what was going on and how they expected to help me.

U can see all the info in my profile page.....
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620923 tn?1452919248

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620923 tn?1452919248

  BUMP to  view the list go page to the first page.
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620923 tn?1452919248

  BUMP...please add ur Drs name and info if they r not on the list and u had surgery and r pleased with ur NS....also note if the Dr is one that only works on adults, or both adults and children or children only. Thanks
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5118767 tn?1363864744
Can we also get a page for south africa please
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620923 tn?1452919248

   Hi and welcome to the Chiari forum.

I would love to add a list for Africa, .....but, these lists are compiled by members and who they went to and had surgery by and liked....if the members are not from ur area it is diff to compile a list....I hope u share with us some Drs u find that do know Chiari so we can start one : )
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620923 tn?1452919248

  Bumping up
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This  is for my sister that was involved in a MVA 9-12 She had prev neck surgery for HNP 2007. IncidentIal finding on cervical MRI before surgery. ACM measured 1.2 mm at that time. After the MVA, she immediately had  CONSTENT headaches back of her head.. No pain meds will help. She went to see her neurosurgeon,that did the original surgery in 2007. Her Mri of her neck showed the ACM was now 5mm .Neurosurgeon sent her for therapy and shots with pain management dr. She is getting worse!! Severe headache  since mva. ER did not even take an xray or do a headscan, so when her neurogsureon quit taking her calls, she went to her family dr. He ordered am MRI of her head and it had progressed to 10mm. She is  referred her to DUKE, to Carlos Bagley at Duke spine center .  Has anyone had any experience with him?I feel like she is slowly dying and no one will help her. This has been going on for  7mth .Please helpUS!   shhensh
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

It is very possible for a MVA to trigger not only symptoms but progression of the herniation as well.....

I am not familiar with that Dr, but if he knows Chiari, he will or should do a CINE MRI to see if she has a CSF obstruction, and MRI's of her thoracic and lumbar spine to rule out related conditions such as syringomyelia, tethered cord, disk issues, ICP, POTS, ehlers-danlos, sleep apnea....etc...

Do check out our list  of Drs and use it as a tool to research Drs/...the list is NOT a referral just a means to help u get started with research,

Chiari is not well known with many Drs including NS's so do not be surprised if the next Dr blows her off too....just educate urself as much as u can so u can help her...and know we r here to help if we can <3
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620923 tn?1452919248

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I was diaginosed in Jan  ...I live in Lithonia, GA  ....Im 44yr old...I researched DR Chitale nd plaan on having surgery 4-19-13. The daily symptoms were unbearable. My neck is stiff daily and the dizziness/off balance are the worst. Then the headaches and fatigue are not far behind. I have been unable to work since early March due to the dizziness. So I took LOA started doing reseaching doctors and decided surgery was best option for me. I will keep u posted
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620923 tn?1452919248

  Hi can u add ur surgery date to the surgical date thread so we have it on hand and can post a prayer thread for u.

Congratulations and all the best : )
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I only see one doctor listed above for the state of Arizona? I went to Barrows Neurological Institute In Phoenix, AZ at St. Joseph's Hospital and saw Dr. Peter Nakaji (who is amazing). He took my Chiari very seriously and treated it with a newer minimally invasive technique. Their former medical director now runs the Chiari Institute in New York, and he referred me to Barrows.
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620923 tn?1452919248

  Our list consists of Drs members have been to and liked...and the list is then available for others to use as a tool to research Drs as we do not refer or endorse Drs....

Thanks for the add as I know many in AZ are looking for well informed Chiari Drs.
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Can you add Dr. Iantosca to the Chiari list? He did my surgery and has done over 400 decompression surgeries... I had no complications after surgery and felt so comfortable with him! Anyone in PA, or anyone even question who a good surgeon is should check him out!!!

Dr. Mark Iantosca
Penn State Hershey Medical Center NEU
30 Hope Dr Suite 13
Hershey, PA 17033
(717) 531-0003 (Office)
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

Thank u so much for a Drs name and contact info for PA...I just recently heard there were Drs in Hershey that were able to help Chiarians....when I needed one I went to NY bcuz Pittsburg was too far to go.....and I could not find one.

Thanks for the add and I hope u will stick around and share ur experience.
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620923 tn?1452919248

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TEXAS

Please add Dr. David Jimenez of UT San Antonio Health Sciences Center to the list. He is a pediatric neurosurgeon who also does adults. He did my 17 year old son's decompression on 3/25/13 and my son is now fully recovered and back to an active normal life, pain free. Dr. Jimenez has done hundreds of Chiari surgeries and is a wonderfully patient, warm and caring doctor, as well as being very talented. He took an hour our first visit to explain everything, and then had my son take 3 hours of MRIs to look for any complications or concurrent conditions. During surgery, his OR nurse reported on status to us every hour. Post-op, he came out and spoke to us for a good 15 minutes about the operation and what to expect. His office was responsive and caring. I cannot recommend him enough if you are within a day's travel to San Antonio, TX.

CONTACT INFO:

Department of Neurosurgery
UT Health Science Center San Antonio
David F. Jimenez, M.D., F.A.C.S.
Professor and Chairman

Main Administrative Office
7703 Floyd Curl Dr. (MC 7843)
Medical School Building, 102F
San Antonio, TX 78229-3900
210-567-5625 • FAX 210-567-6066
***@****

Clinic Appointments and Referrals
(210) 567-6027
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620923 tn?1452919248

  Thanks for this added info will add to our HP list  : )
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Where is the list of Dr's that specialize in Chiari Malformation
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620923 tn?1452919248

   U r on it....just go back one page...this is page 2 as members are adding to the list so u may find names not on the main list thru out the thread....but click to go to page 1 to see the main list.

U can also go to the Health Pages and review the list there-http://www.medhelp.org/health_pages/list?cid=186
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5911732 tn?1382426710
Hi, I have Chiari malformation type 2 and siringomelia. I've had two surgeries. The first one on Nov. 14-2012, and the last one on July 22nd.-2013. Both of them with Dr. Jose Valerio in Cleveland Clinic in Weston Fl. I think he is a great option for you to add to the list. On this last surgery, I just feel neck pain, I'm still post-op., but all my symptoms due to my chiari are gone. My first surgery didn't work that well due to all the complications I had. On this second one, I'm definitely feeling much better. Hope my experience can help others.
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620923 tn?1452919248

Hi and welcome to the Chiari forum.

Thank u for adding ur Drs name...did u travel to FL to this Dr?

I am so glad u r doing well , sorry u had to endure a 2nd surgery....may I ask what happened that u required a 2nd?

Praying u have a smooth recovery : )
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620923 tn?1452919248

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620923 tn?1452919248

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5911732 tn?1382426710
Sorry for not answering before. Yes, I did travel to meet the doctor. Today it's 3 month since my surgery. Even though I had complications, I'm feeling great! I trully recommend my doctor, he is my angel on earth!
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620923 tn?1452919248

  Glad to hear u r doing well.....and that ur Dr was such a good fit for u....it is important that we are comfortable with our Drs....

Keep us posted on ur recovery : )
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620923 tn?1452919248

  Bumping up
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3147776 tn?1349200103
We're going to close this thread as all docs have been added to the list:
http://www.medhelp.org/health_pages/Neurological-Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

If you have doctors you'd like added, please post in the new thread: http://www.medhelp.org/posts/Chiari-Malformation/-List-of-Chiari-Drs--USA-2013-2014/show/2046186

Thanks!
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