LIST OF CHIARI SPECIALISTS.......

[selmaS]

let's create a list of drs to refer to for our health pages:

please add ur drs name and where he/she is located.

dr so and so
title- NS
location
well informed
good results
ect......

[Shane99]

Dr. Carl Hampf

2011 Murphy Ave
Howell Allen Clinic - Suite 301
Nashville, TN 37203

800-668-9410
[phone]  

[Suellen136]

Hi..my NS is Dr.Gold...I go and see him next week...I know that he is good cause my younger son has brain cancer and he is taking care of him to plus the drs.in NC at Duke...He is in Parkersburg WV....  God Bless

[sherimom]

I'm still new to this site, but I saw on here that someone posted about a Chiari Inst in Milwaukee, WI.  My primary doc looked into it for me (I live about 30 minutes from Milwaukee) after I heard about it.  We have an appt scheduled on 12/17.
So far, here is what I know:  the neurosurgeon is Dan Heffez - it seems that he was previously  in Chicago at Neuro Inst and at St. Joseph's I believe. He has been working with Chiari for 15 years. I'll know more next week.
Also, they take my insurance and I am in-network there - It seems that the Chiari Inst in NY is cash basis or something like that??  I will update you all then, but in the meantime, has anyone seen this doc in Chicago??
Thanks all!!

[chadry]

Dr.Campbell
Dupont"s Childrens Hospital
Delaware

I found his name from another mother on ASAP. Her son had the surgery preformed by him.
So far we are pleased with him. We have another appt. on 12/30.
To date he has been very knowledgable and had her go for vestibular testing to make sure that there is nothing else involved that could make her feel the way she does.
Chadry

[lor124]

I've been seeing Dr. Merle Diamond from the Diamond Headache clinic in Chicago and she is helping me with the headaches. She is real understanding and she is trying her best to relieve the pain. She has me on anti seizure meds and hey have really been helping.

Lor124

[(Not so) Spunky]

In AZ, Barrows has an obnoxious waiting list. I actually found mine in the yellow pages (something I NEVER do for a Dr), but I had my surgery done by Dr. Marc Ercius. He is not a Chiari "specialist", but he is VERY experienced with it, and I couldn't be happier with him. He is also part of Neurological Physicians of Arizona, but he is their only surgeon. Their neurologists seem to know quite a bit, also. My father in law is a Dr (but pediatric, so doesn't generally deal with "grown-up" Dr's) but he researched Dr. Ercius and said he found nothing bad on his record- in fact, all positives. I'm very happy with my decision and would refer him to anyone in AZ who can't afford to get to TCI in NY, or the one in CO (I forget the name, Dr. B???)

[mik11]

A.I.Dupont Childrens Hospital
Wilmington Delaware

DR Benjamin Warf
Dr Jeffrey Campbell

[selmaS]

Shane99 condensed our list of drs. (Thanks Shane!)

This list is not a complete list of possible Specialists - Please continue to add.

This is not any kind of "Official" list of Chiari Specialists! These are simply NeuroSurgeons that we patients have listed as liking. No background checks have been made about them. If you wish to follow up, please research on your own. If you are comfortable with your current doctor and he/she is actually qualified to perform Chiari Decompression Surgery, then don't let us tell you any differently. This list is just to help people connect with NeuroSurgeons.

Dr. Marc Ercius Mesa, Arizona
[phone]

Dr. Timothy Bursen Little Rock, Arkansas

Dr. Anthony Capocelli Fort Smith, Arkansas

Dr. John Oro, Chiari Care Center Aurora, Colorado
(303)-481-0035

Dr. Jeffrey W. Campbell, DuPont Children’s Hospital Wilmington, Delaware
Dr. Benjamin Warf, DuPont Children’s Hospital Wilmington, Delaware

Dr. Merle Diamond, Diamond Headache Clinic Chicago, Illinois

Chiari Institute Great Neck, New York
[phone]
[phone]
Dr. Thomas Milhorat
· Dr. Paolo Bolgnese
· Dr. Rohit Verma
· Dr. Misao Nishikawa
· Dr. Roger Kula
· Dr. Sol Mora
· Dr. Amit Shelat
· Dr. L. Thierry Remy

Dr. Michael J. Rosner Fletcher, North Carolina

Dr. Ralph Reeder Sioux City, South Dakota

Dr. Carl Hampf, Baptist Hospital Nashville, Tennessee
800-668-9410
[phone]  

Dr Reid Thompson, Vanderbilt Hospital Nashville, Tennessee
Dr. Cheng, Vanderbilt Hospital Nashville, Tennessee

Dr. Samuel Hunter Nashville, Tennessee

Dr. Rammy Gold Parkersburg, West Virginia

Dr. Dan Heffez Milwaukee, Wisconsin

[selmaS]

Adding Daisy's dr's name:

Mobile, Alabama and his name is Anthony Martino.....he is not specifically a Chiari specialists, however, he does do alot of these surgeries.We are very pleased.

[lor124]

Dr Gail Rosseau Chicago Institute of Neurosurgery and Research (CINN)
4501 N Winchester Ave
Chicago, Il

[jnnepgn]

Dr. Judith Gorelick
Connecticut Neorosurgery PC
330 Orchard St, #316,
New Haven, CT
[phone]

Young surgeon, could not find much information on her on line but when my husband and I met with her there was nothing but pure comfort and confidence that we felt when we seen her and that was each and every time. So we never considered even trying to find another surgeon considering we learned there were no specialist in CT. She explained everything in great detail, went over the MRI as far as the herniation (13 mm) and the syrinx which was quite large which was the concern that led to the surgery. It was clear she knew what she was talking about. I've done so much research on this condition to no end when I found I may have this that our first meeting was not to foreign.  Post op she has been great as well. I know I'm still early in the post op (Feb 25, 2009) but so far she has given nothing but full attention. She listens. I never felt brushed off.

[diana823]

Dr Chanland Roonprapunt (Formerly of The Chiari Institute)
Spine Institute of New York
Ph: 212-523-6720
Title: NS

He was great. Very responsive and is trying to help me find out why I'm having other symptoms (not necessarily related to CM).

[lloyd0307]

Dr. Gregory Foltz
Swedish Hospital
Seattle, WA
206-320-2800

He specializes in Brain Tumors, and Chiari.  He does about 50 Chiari procedures a year. I am really happy with my choice to see him and his staff. His office is in the same complex as the Hospital.

[celticbreeze]

Dr. Alfred Bowles Jr. MD, FICS
Director of the John P. Murtha Neuroscience and Pain Institute
Chairman of the Dept of Neuroscience and Divisional Chairman of Neurosurgery Conemaugh Memorial Health System
Johnstown, PA
[phone]

[beaglefreak]

Dr. Pierre Girgis, MD, Neurosurgeon
University of Rochester, NY and affiliated with Strong Memorial Hospital, Highland Hospital, and a third in Rochester NY I can't recall.

Very personable, knowledgeable, and patient... excellent knowledge and concern.  Good judgment as far as I can tell.

My surgery date will be in June or July, no syrinx or other issues present so far but there is some pretesting to do, yet.

:) Future Zipperhead, Megan "Beaglefreak"

[selmaS]

Dr Salvatore Insinga
The Chiari Institute
Great Neck, NY

I really like this man's personallity as well as his detailed manor of explaining things to both myself and my family.

[fastweb951]

Paul S. Jackson, M.D. , Ph.D.
Palo Alto Center
795 El Camino Real
Level 3, Lee Building
Palo Alto, California 94301
[phone]
Deputy Chief of Neurosurgery -- Stanford University School of Medicine
Assistant Professor-- Stanford University School of Medicine

[flcrakar]

Found this link, has list of doctors for Canada, US (by state), International (Australia too!)

http://www.opening-minds-to-acm.com/listofdoctors.htm

Ps, this was a good website too, lots of general info. Hope this helps someone else too!

[youngwife]

Dr. Timothy Wiebe in Hattiesburg, Mississippi is a Chiari, Syringomyelia, and Tethered Cord specialist.  He is a Pediatric and Adult Neurosurgeon at the American Brain and Spine Institute.

Our visit with Dr. Wiebe was very pleasant, and I found him to be extremely knowledgeable.  He took much time in answering questions and sharing his experiences with us.  My daughter was very relieved at how attentive and observant he was.

If anyone has any questions, please feel free to ask.

Blessings,

Rebecca

[LG20626]

My NSs are:

Dr Gardner and Dr Prevedello
UPMC Presbyterian Hospital
Pittsburgh Pa

[lol4life]

my doctor was dr. karin muraszko @ C.S. Motts childrens hospital in ann arbor at the university of michigan. she is a chiari specialist and is one of the most influential and amazing people i have ever met. i cant thank her enough for all the support shes given me and for basically saving my life. if anybody has chiari out there. i strongly suggest making a trip to the university of michigan to see her. shes incredible and i had such a positive experience there. =)

[selmaS]

Thanks LG and LOL for adding ur drs info to our list!!

"selma"

[selmaS]

Here is the thread of our chiari drs....please researach all drs on this list to make sure the dr is right for u.

[soccero]

dr. powers
bethesda md
he is a ns
i liked him a lot he took his time with us befor surgery and at our first appt. i was in the hospital for 6 days and he saw me 2 times but his pa saw me everyday.

[selmaS]

Thanks for sharing and adding this Drs name to our list.

"selma"

[MaraFowler]

My Neurologist here in albany ny is Dr. Lisa Billars. (Capital Neurological Associates) She's a wonderful doctor, though not a chiari specialist. She picked up right away on the chiari situation and immediately started trying to figure out ways to help my symptoms such as getting a CPAP for my sleep apnea (apparently I stopped breathing 72 TIMES during the study!) and suggesting I start taking riboflavin for the migranes. She is very caring and knowledgable and instantly puts you at ease!

I'm looking for a NS and another Neurologist that is a chiari specialist in NY that accepts my insurance. All I ever here about is the Chiari Institute but they don't accept my insurance so does anyone know of others?

[selmaS]

Marla....look into Mahatten and seeing Dr Chan .....I believe he was associated with TCI at one time.

"selma"

[jnnepgn]

This is an add on to my post in March whereas I recommended :
Dr. Judith Gorelick
Connecticut Neorosurgery PC
330 Orchard St, #316,
New Haven, CT
[phone]

I am 7 months post surgery and am doing great. My syrinx collapsed 1/2 its size 3 months ago.  My scar is very,very clean. My hair grew nicely around. Can't see the scar at all and the little bit down my neck, very think white looking scar. Can't notice it. I've seen pictures of other scars and I am extremely pleased with mine.  Everything about my surgery was a positive experience.  HIGHLY RECOMMEND Dr Gorelick in Connecticut.

[selmaS]

Hi..thanks for updating us on ur progress and sharing info on ur dr.

I hope u continue to share ur experiences with us here on the forum.

"selma"

[Big_Jim_NY]

Drs James Greenspan and Fred Scialabba.
North Country Neurosurgical.
454 Glen St
Glens Falls NY
(518) -793-8160

As a note of interest Dr. Scialabba spent considerable time at TCI. Both are outstanding professionals.

[marmar0515]

Dr. MIchael Mervert
14519 Detroit Ave
Lakewood, Ohio

216-529-7110

[selmaS]

This is being added for kitkat-

Victor Kareh, MD
Neurosurgery, Spine Surgery

21216 Northwest Freeway
Suite 230
Cypress, TX 77429

281-640-2121

[selmaS]

Please add ur NS after u had a good experience and feel comfortable sharing.

[Cynthia02334]

Gulf Coast Brain & Spine Institue

Dr. Peter J. Yeh, MD, FACS
Board Certified Neurological Surgeon
6565 West Loop South, Ste. 450
Houston, TX  77401

713.661.8900
713.661.5535 fax

***@****

[kathy811]

Dr. Gregory W. Canute, Dept. of Neurosurgery 725 Irving Ave. Syracuse, New York (315) 464-55133. He did my surgery Sept.10,2009. He was great, experienced with CM and very understanding. He did my surgery at Upstate University Hosp. and I was on the brand new Neuroscience ICU floor which seemed to have the best doctors,nurses and other staff that made my four day stay very comfortable as possible.    Kathy

[selmaS]

HI...good to see u back on the forum...and glad u had such a good experience with ur NS.....I pray u continue to heal and we continue to see u on the boards.

Thanks for sharing ur NS info!!

"selma"

[selmaS]

bumping up for new members to add to or use the list for info on Drs

[5Leopards]

Does anyone know of a Chiari Malformation Specialist in Florida?

[selmaS]

Dr Bart Green...do research on all drs.....our list here is made by the members of this forum after they had a positive experience.

[ULMMom]

Dr A Joseph at the Neuromedical Center in Baton Rouge LA

He is truly gifted my dd had a 15cm and her incission is beautiful. He has taken care of us from day one!!!

[selmaS]

HI !!

So glad u found yet another chiari specialist to add to our list...but even more so that ur DD had such wonderful care.

I hope u can keep us posted on her progress

"selma"

[selmaS]

bumping up for members to add their drs info.

FYI- this list was redone to be easier to read and can be found in the Health Pages here on MedHelp