Chiari Malformation Community
LIST UR SURGERY DATE- 2013
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LIST UR SURGERY DATE- 2013

Hi All here is a new thread for listing surgery dates that fall in the New year. I ask u all post on this thread ur date so I have one place to look for dates so I can post a prayer thread for u.

and we ask that u have another member or family or friend post updates on ur progress so we all know how ur doing post op.

If ur surgery is cancelled or changed, PM me directly and post the new date here with the old date in one post so it is all together....thanks : )
145 Comments Post a Comment
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620923_tn?1405964489

  Please list surgery dates starting with Jan 2013.......
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My surgery is January 3. Ill have someone post update after it for me. Thank you all for helping me with my questions on here.
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620923_tn?1405964489

  Thanks for letting us know, I will post a Prayer Thread for u....sending u all the best.
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  Bump up for dates in 2013
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Jan 17th...
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979826_tn?1389039958
tomorrow dec. 27th they r gonna cut away the scar tissue and close my scar back up. so this time hopefully it wont dehisce
molly
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My sugery date is Jan. 30, 2012 for PFD for Chiari and another procedure to drain an arachnoid cyst on my cerebellum.
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620923_tn?1405964489

  Thanks for letting us know...I will post a prayer thread and please ask someone to post updates on ur progress.
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3057101_tn?1360377709

Surgery date scheduled for January 16, 2013 with  Dr. Rosner  at Park Ridge Hospital Hendersonville, NC.
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Congratulations !! I hope u have someone to post updates as I feel u should rest post op, but all would want to know how u r doing : )
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I gave him several copies of "Prepare for surgery, heal faster".  Even if you read it the night before, I think it would be helpful.  The surgery is just a few hours, but the healing takes a long time.
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my sugery date is Wed 16th Jan .. here in the united kingdom, south west England ..Chiari malformation with large syrinx  2013
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620923_tn?1405964489

  I will post a prayer thread for u if that is ok...and if u can get someone to post updates on ur progress that would be great : )

All the best to u
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My Chiari Decompression surgery will be February 6th.
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620923_tn?1405964489

  Hi I will post a prayer thread for u, and know we all will be sending u good vibes for a smooth recovery too.If u can have neone post updates on ur progress we would love to know how u r doing <3
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1274661_tn?1301871921
I am having surgery tomorrow 2/4 for endometriosis excision and d&c. I know this is not chiari related, but I am nervous and could really use some positive energy from my chiari family. Thanks!
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620923_tn?1405964489

  Please post ur surgery date, and we will post a Prayer  Thread.
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My surgery is Thursday Feb. 4. I will try to have my husband post a update if he can fiqure out how to do it. I still don't know how to work this site very well yet. I have been trying to send you a post to ask you a couple of questions but can't seem to get it to work. I just wanted you to know all the info you post has been so helpful to me and i wanted to say thank you. i am so nervous about the surgery i don't know what to do with myself sometimes.
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620923_tn?1405964489

  Hi do u mean the 14th? As the 4th is passed and was not a Thursday....

Thanks for letting us know : )
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I meant the 7th in the morning. I am sorry I swear my brain does not work half the time. i dont know what i was thinking. I have to be there at 7 in the morning i guess it will start about 9. thank you for asking and being concerned
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620923_tn?1405964489

  No worries, at least now I have the right date : )

  Know we will have a prayer thread for u and will keep u in our prayers <3
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Thank you that makes me feel better. I sent you a pm about my date i didnt know if you would see it here before tommarrow or not but i also explained about the birth defect i was born with if you could look at it and let me know what you think i would appreacite so much
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as of right now my surgery date is March 13. nervous but excited.
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620923_tn?1405964489

  ambyj got ur date, thanks...and so have someone to post updates on ur progress : )
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  Bump
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Feb 27th here for me
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i will deff have someone update on here when im out
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Decomp was February 13th.
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620923_tn?1405964489

  We will post a prayer thread for u, and if u can have someone post updates on ur progress : )
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Decompression March 25th
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620923_tn?1405964489


Hi...I am wondering was ur date changed? I have u down for March 15th
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My surgery date is March 4
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My prayers and healing mojo is your way.  I hope everything goes good and a speedy recovery.
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I pray everything  is going well.
Linda :)
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620923_tn?1405964489

  Hi ALL this is not a prayer thread, but one was posted...please keep this thread to list the dates of surgeries...thanks : )
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620923_tn?1405964489

  Hi all please post ur surgery dates on here....I only have one for April so far....

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620923_tn?1405964489

  Bump
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620923_tn?1405964489

  Looking for April surgery dates....????
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Thank you guys sooo much for the prayers, but with all the commotion going on lately, I forgot to update you guys. When I did my pre ops on march 18th, they called me a few days later to say I had a UTI (this happens all the time, but don't feel like I have one right now) so they gave me a 3 day antibiotic. So on friday my leg started itching, by sat. i knew it was a rash, called the doctors on sun. they switched my meds, and canceled my surgery. I have been rescheduled for April 12th. That was the worst count down for my life, now to have to do it again..grrrr Oh and by the way my sister had her twins <3 Jada Marie 5lbs 6oz and Jayden Mondrell 6lbs 5oz born @ 36 weeks healthy as could be <3
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620923_tn?1405964489

  Thanks for letting us know...we will re post a prayer thread for u...COngrats on being an Aunt to twins <3
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Was moved again, to April 18th.
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620923_tn?1405964489

  Thanks for the update....hope u r ok with this waiting.....
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620923_tn?1405964489

  Do we have ne more for April or May scheduled?
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My decompression is scheduled for May 8. I am very nervous.
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620923_tn?1405964489

  It is "normal" to be nervous, if u weren't then I would be concerned for u.

Focus on getting ready and doing things with ur family that u will not be able to do for some time post op...go to a movie, etc...

Prepare meals and freeze them....and relax as much as u can.

Know we will post a prayer thread for u <3
Wishing all goes well.
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Thank you. That's a great idea to freeze meals.  
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620923_tn?1405964489

  We do have a list in the Health Pages tips for the hospital stay I am sure the meal idea was in there too....
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My surgery date 5-6-13
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New to site. My second surgery is May 3
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620923_tn?1405964489

  Thanks sw and CLF....I have both of ur dates and we will post a Prayer Thread for u the day b4 ur surgery.

I hope u have someone that can post updates on ur progress.

Sending well wishes to u both : )
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620923_tn?1405964489

Bumping up for more May and June dates...does not have to be Chiari surgery, as long as u r a member and having ne surgery let us know : )
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4515626_tn?1369858514
june 20th looks like the day for my decompression and my spinal fusion
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620923_tn?1405964489

  Thanks for letting us know....I will post a prayer thread for u, and I hope u have someone that is able to post updates on ur progress : )

All the best <3
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My Chiari decompression is 6-13.
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620923_tn?1405964489

    Thanks for letting us know....I will post a prayer thread for u, and I hope u have someone that is able to post updates on ur progress : )
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Cancelation of surgery date for 6-13-13. Thanks Christina
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620923_tn?1405964489

  Thanks for the update : )

Be sure to re-post when u reschedule.
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620923_tn?1405964489

BUMPING for  JUNE  & JULY  2013 surgical dates
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Surgey scheduled for 6/17/13
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3112631_tn?1356657157
I'm posting for my sister, katherineRSM, whose surgery is scheduled for 6/24/13.

(She signed up on this site and set up a profile, but her login stopped working and she hasn't received any response to her inquiries from MedHelp about it yet.)
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620923_tn?1405964489

  Hi...I will look into her sign on issue and thank u for sharing her surgery date.....there are instructions on how to correct or change ur password...but right now I can not locate it....did she send an e-mail to MH?
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3112631_tn?1356657157
She sent a couple of requests for a new password but hasn't heard anything.
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620923_tn?1405964489

  I contacted the MODS and they sent her an e-mail,...have her take a look..... and let me know if she gets it resolved <3
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Thanks it's fixed. I got in.  Just in time for my surgery June 24th.
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3112631_tn?1356657157
Yay - she's on! Thanks, Selma!
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620923_tn?1405964489

  Hi and welcome ....I am so glad u finally got on......I hope we r able to help u with ne questions b4 ur upcoming surgery : )
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620923_tn?1405964489

  Hi all please post ne scheduled surgery, chiari or non chiari as we would like to post a prayer thread for u....and please have someone post updates on ur progress....

Looking for End of June, July and Augs dates-
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620923_tn?1405964489

  To locate a thread, all u need to do it click on the magnifying glass icon and type in the topic a list of related threads will show on the screen.
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620923_tn?1405964489

  Do we have neone with a surgery planned for July ?
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620923_tn?1405964489

  BUMP....for ne new surgery dates
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I think this is the thread you were talking about posting my surgery date to. I am slotted for July 18 in Albany with Dr. Adamo.
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620923_tn?1405964489

  Yes this is the thread......also if u do not have someone as of yet ask someone to post updates on ur progress, as we all would love to know how u r doing post op.

All the beat to u.
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Thank you! I will do that ( on the progress updates).should they post here in the other area?
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620923_tn?1405964489

  There will be a prayer thread they can add updates to that .
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620923_tn?1405964489

  We only have one for July so far...ne others?
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3107154_tn?1361921205
My 6 year old Jacob will have a decompression and occipito-cervical fusion down to C3 on August 21st.  He has chiari plus basilar invagination, retroflex odontoid and a lot of anterior brainstem compression as well as 28mm cerebellar tonsils and brainstem herniation going on.  Dr. Rekate at TCI is doing the decompression and Dr Insinga will do the fusion as a team on the same day.
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620923_tn?1405964489

  Hi....good luck to ur DS Jacob and know I will post a prayer thread, please feel free to post updates on that thread so we all know how he is doing, and the prayers will be for u as well .....I can only imagine how it is to be the parent of a child undergoing this surgery....

BTW= Dr Insinga did my decompression and I really loved him.,...so I know he is in good hands <3
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3107154_tn?1361921205
Glad you loved him!  I've only heard good things too.  

Did you have the decompression at North Shore University Hospital?  I hear it's a HUGE hospital.

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620923_tn?1405964489

  Yes I did, I do recall it was a large campus.....did u set up a place to stay? If not call TCI back and ask about Variety House....the guards from the Hospital will escort u to and from the VH to the Hospital,....and it is a more affordable place to stay.
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620923_tn?1405964489

  Bumping up for more Aug surgery dates.....
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620923_tn?1405964489

  Bump please post ur surgery date and we will post a prayer thread for u.
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620923_tn?1405964489

  Bumping for more Aug surgery dates
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Mine is aug 9th thank you
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620923_tn?1405964489

  Got ur date and will post a prayer thread for u.....if u can ask a friend or family member to post on the prayer thread updates on ur progress.

Wishing u all the best <3
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5745872_tn?1374585163
My daughter's surgery date is September 3rd , 2013
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620923_tn?1405964489

  Thanks for letting us know....I will post a Prayer thread for her...and I hope u r able to keep us posted on her progress post op.....all the best <3
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I will have decompression surgery on September 20.
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620923_tn?1405964489

  Thanks for letting us know...and please ask a family or friend to post updates on ur prayer thread as to how u progress post op..
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5745872_tn?1374585163
Just to update, My daughters surgery date has been pushed to Sept 10 instead of the 3rd.
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August 28th 2013 for me.
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620923_tn?1405964489

  Got it...thanks...and I hope u have someone that can post updates on how u r doing : )
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September 20th - sorry for messing that up Selma
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620923_tn?1405964489

  No worries....got the new date now and will post a thread for u then too : )
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Hi all! I'm having an arthroscopic wrist surgery next Friday 8/30. It is from an injury due to EDS, prayers and good thoughts for a speedy and easy recovery would be appreciated!
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620923_tn?1405964489

  Hi...A prayer thread will be posted, wishing u all the best <3
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620923_tn?1405964489

  Please post ne surgeries for Sept, Oct, Nov or...Dec....thanks
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They changed my date without telling me until a few days ago.. sigh. New date is September 18th.. which is super soon :(
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620923_tn?1405964489

  Just saw it on the other thread...thanks for updating here too....

I mentioned in the thread they changed my date to a day later....but I also forgot to say that my surgery or reason or area was changed 2 weeks b4....originally I was going for TC release surgery and 2 weeks b4 I was told they decided that I would benefit more from the decompression surgery...

They were right, but I still need the release, just have not decided to go back for that yet....

((hugs))
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My surgery date is October 10th in a few weeks
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620923_tn?1405964489

  Got the date, thanks...keep us posted as to ne changes and know u will be in our thoughts and prayers. <3
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My decompression surgery is October 2.
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620923_tn?1405964489

  Thanks ...got it....and I see u have someone here to post updates on ur post op progress...sorry ur DS also is dealing with this condition....
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My decompression surgery has been changed to Sept 26th.
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620923_tn?1405964489

  Thanks for letting me know....and I will get a prayer thread up for u....know u will be in our thoughts and prayers <3
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1891806_tn?1391122637
I think I posted my surgery info on the prayer thread. I can never keep things straight...sorry for the repeat.

I am scheduled for surgery in Dallas on Nov. 6th. I have to fly from Phoenix on the 4th to meet with the doctor and my surgey is on the 6th. I will have to stay in the hospital for 5 days and then a hotel for 3 to 4 days. I will go back for a check-up on Nov.12 and fly home on the 13th.

My surgery is on my spine. Dr. Feigenbaum will be doing surgery on the 2 Tarlov Cysts I have on my sacrum area. I have numerous cysts on my lumbar and cervical spine, but it's too dangerous to remove them all.

So I will be out of commission for at least 4 months.

My neurosurgeon won't do surgery on my Chiari until I tell him I can't take anymore. Sounds pretty crappy to me!!!
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surgery to correct my double vision friday september 27!
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620923_tn?1405964489

  Hi hevenw8s...got it thanks for posting it here, as I must have missed the date....got it now tho.

Got urs Molly Thanks : )
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My surgery date is October 2nd.  I will try to post updates as I can.  

Thanks
Wanda
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620923_tn?1405964489

  Thanks for letting us know, we will post a Prayer Thread for u....if u do not have neone to post updates for u, contact me via a PM and I can help get updates posted for u.
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6013416_tn?1381243891
Thanks selmaS  for prayer thread.  I am hoping my best friend will post for me.  If not I will let pm you.

Wanda
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Hey Selma, my surgery is set for October 15, praying for a great outcome! Prayers to everyone going through surgery soon or recovering now.
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620923_tn?1405964489

  A prayer thread will be posted....wishing u all the best.
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My surgery was September 17th, but just found the forum. Thank you for all of the amazing information!
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620923_tn?1405964489

  Hi and welcome to the Chiari forum.

How are u doing post op....? If u have ne questions feel free to start a new thread so u get noticed and more replies : )

Sending u healing MoJo for a smooth recovery.
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Just booked October 30 in Richmond, Virginia.
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620923_tn?1405964489

  Thanks for letting us know, we will post a Prayer Thread for u, I hope u have someone to post updates on ur progress...wishing u all the best/
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620923_tn?1405964489

  Post surgeries for Oct , Nov and Dec 2013...and please inform us of ne changes......
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4489852_tn?1375757551
Well I get to add yet another one... Portacath placement on November 21 for IV fluids due to POTS and NMH (neurally mediated hypotension).
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620923_tn?1405964489

  Hi...goodness, I wondered if u might need another surgery after the last info u shared....

May I ask how does one of these work? Do u get dehydrated?
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4489852_tn?1375757551
And another one... TCI called back and I a scheduled for consultation on December 16 and cranial cervical fusion on December 19, which is 2 days shy of my 1 year zipperversary!!!! I am beyond excited :D
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620923_tn?1405964489

  Fantastic......wow they scheduled u b4 they saw u in person, ur  MRI's must have been super clear what is going on.....

Please keep us posted will have a prayer thread for both surgery days : )
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4489852_tn?1375757551
I was so surprised they wanted to schedule it before they saw me! I have never even had an upright MRI or flexion and extension MRIs. I will have to look back at my supine MRI because apparently they saw something significant! Thank you for all of the prayers and positive thoughts!
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620923_tn?1405964489

  No worries...Let me know which Dr u r assigned to.....

Did u make arrangements to stay at the Housing they offer?...it is less expensive then a hotel, and close to their office and near the Hospital....It is a house and it has a common area as well as a common kitchen....my DD and DH stayed there when I was in the hospital and said it was clean and comfy,....that was in 2009.....but I am sure it is still an ok place to stay.
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My 8 year old surgery is nov 1st
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620923_tn?1405964489

  Thanks...may I ask her first name?

Know there will be a prayer thread.....wishing u both the best <3
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620923_tn?1405964489

   Bump
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My surgery date is October 31st... Halloween
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620923_tn?1405964489

  wow so soon, I will post a prayer thread for u, know u will be in our thoughts and prayers <3
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4489852_tn?1375757551
I am assigned to Dr. Rekate with Dr. Insinga assisting in surgery. We did look at the housing they have, and it looks like a fantastic option for many people! I am having a whole crew of people come with though :) My mom is coming along with my fiance. His mom was going to come as well, but they decided to make a family vacation out of it so my future mother and father in-law are coming along with 3 of my fiance's sisters (8, 13, and 15). We decided to rent a house/condo and hopefully spend some time in NYC and maybe go see a broadway show while we are over there!
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620923_tn?1405964489

  WOW fantastic !! what support u will have.

My DD just left NYC she lived up there for 7.5 yrs, I loved going up to visit her...but I know we will be going back up as she loves it too....

Wonderful opportunity to go see a show....when I went post op my DD took me to see HAIR...nice huh,...lmao

Have a great time...I am sure u will like Dr Insinga, I nave not met Dr Rekate....
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620923_tn?1405964489

  Bumping up for members to post their surgery dates so we can post a prayer thread.
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Surgery Nov.14
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620923_tn?1405964489

  Got it...know there will be a Prayer thread posted for u.
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4489852_tn?1375757551
My port placement for October 21 is cancelled. I have had issues with surgeons, I have an appointment for the same day with a different general surgeon, so I will let you know when the new date for the surgery is!
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620923_tn?1405964489

  Thanks for letting me know....I pray u can get this all cleared up.

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4489852_tn?1375757551
The port placement is now the 27th of November! I found a fantastic surgeon and all of the issues with that are now resolved :) Thank you for being a constant support for all of us!
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620923_tn?1405964489

  So glad to hear u got it all taken care of and set up.....I pray this helps u and  u will soon be on the road to recovery.... : )
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