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620923 tn?1452919248
LIST UR SURGERY DATE- 2013
Hi All here is a new thread for listing surgery dates that fall in the New year. I ask u all post on this thread ur date so I have one place to look for dates so I can post a prayer thread for u.

and we ask that u have another member or family or friend post updates on ur progress so we all know how ur doing post op.

If ur surgery is cancelled or changed, PM me directly and post the new date here with the old date in one post so it is all together....thanks : )
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620923 tn?1452919248

  Please list surgery dates starting with Jan 2013.......
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620923 tn?1452919248
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My surgery is January 3. Ill have someone post update after it for me. Thank you all for helping me with my questions on here.
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620923 tn?1452919248

  Thanks for letting us know, I will post a Prayer Thread for u....sending u all the best.
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620923 tn?1452919248
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620923 tn?1452919248

  Bump up for dates in 2013
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620923 tn?1452919248

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4320028 tn?1365818075
Jan 17th...
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4320028 tn?1365818075
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979826 tn?1389039958
tomorrow dec. 27th they r gonna cut away the scar tissue and close my scar back up. so this time hopefully it wont dehisce
molly
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979826 tn?1389039958
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3224597 tn?1347322388
My sugery date is Jan. 30, 2012 for PFD for Chiari and another procedure to drain an arachnoid cyst on my cerebellum.
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3224597 tn?1347322388
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620923 tn?1452919248

  Thanks for letting us know...I will post a prayer thread and please ask someone to post updates on ur progress.
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620923 tn?1452919248
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3057101 tn?1360377709

Surgery date scheduled for January 16, 2013 with  Dr. Rosner  at Park Ridge Hospital Hendersonville, NC.
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3057101 tn?1360377709
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620923 tn?1452919248

Congratulations !! I hope u have someone to post updates as I feel u should rest post op, but all would want to know how u r doing : )
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620923 tn?1452919248
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I gave him several copies of "Prepare for surgery, heal faster".  Even if you read it the night before, I think it would be helpful.  The surgery is just a few hours, but the healing takes a long time.
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620923 tn?1452919248

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620923 tn?1452919248
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my sugery date is Wed 16th Jan .. here in the united kingdom, south west England ..Chiari malformation with large syrinx  2013
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620923 tn?1452919248

  I will post a prayer thread for u if that is ok...and if u can get someone to post updates on ur progress that would be great : )

All the best to u
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620923 tn?1452919248

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620923 tn?1452919248

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My Chiari Decompression surgery will be February 6th.
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620923 tn?1452919248

  Hi I will post a prayer thread for u, and know we all will be sending u good vibes for a smooth recovery too.If u can have neone post updates on ur progress we would love to know how u r doing <3
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620923 tn?1452919248
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1274661 tn?1301871921
I am having surgery tomorrow 2/4 for endometriosis excision and d&c. I know this is not chiari related, but I am nervous and could really use some positive energy from my chiari family. Thanks!
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1274661 tn?1301871921
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620923 tn?1452919248

  Please post ur surgery date, and we will post a Prayer  Thread.
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620923 tn?1452919248
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My surgery is Thursday Feb. 4. I will try to have my husband post a update if he can fiqure out how to do it. I still don't know how to work this site very well yet. I have been trying to send you a post to ask you a couple of questions but can't seem to get it to work. I just wanted you to know all the info you post has been so helpful to me and i wanted to say thank you. i am so nervous about the surgery i don't know what to do with myself sometimes.
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620923 tn?1452919248

  Hi do u mean the 14th? As the 4th is passed and was not a Thursday....

Thanks for letting us know : )
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620923 tn?1452919248
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I meant the 7th in the morning. I am sorry I swear my brain does not work half the time. i dont know what i was thinking. I have to be there at 7 in the morning i guess it will start about 9. thank you for asking and being concerned
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620923 tn?1452919248

  No worries, at least now I have the right date : )

  Know we will have a prayer thread for u and will keep u in our prayers <3
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620923 tn?1452919248
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Thank you that makes me feel better. I sent you a pm about my date i didnt know if you would see it here before tommarrow or not but i also explained about the birth defect i was born with if you could look at it and let me know what you think i would appreacite so much
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4487186 tn?1362148262
as of right now my surgery date is March 13. nervous but excited.
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4487186 tn?1362148262
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620923 tn?1452919248

  ambyj got ur date, thanks...and so have someone to post updates on ur progress : )
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620923 tn?1452919248
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620923 tn?1452919248

  Bump
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620923 tn?1452919248
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4893350 tn?1362791523
Feb 27th here for me
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4893350 tn?1362791523
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4487186 tn?1362148262
i will deff have someone update on here when im out
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4487186 tn?1362148262
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Decomp was February 13th.
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620923 tn?1452919248

  We will post a prayer thread for u, and if u can have someone post updates on ur progress : )
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620923 tn?1452919248
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Decompression March 25th
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620923 tn?1452919248


Hi...I am wondering was ur date changed? I have u down for March 15th
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620923 tn?1452919248
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My surgery date is March 4
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620923 tn?1452919248

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4816750 tn?1368808270
My prayers and healing mojo is your way.  I hope everything goes good and a speedy recovery.
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4816750 tn?1368808270
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1306714 tn?1327260680
I pray everything  is going well.
Linda :)
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1306714 tn?1327260680
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620923 tn?1452919248

  Hi ALL this is not a prayer thread, but one was posted...please keep this thread to list the dates of surgeries...thanks : )
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620923 tn?1452919248
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620923 tn?1452919248

  Hi all please post ur surgery dates on here....I only have one for April so far....

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620923 tn?1452919248
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620923 tn?1452919248

  Bump
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620923 tn?1452919248
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620923 tn?1452919248

  Looking for April surgery dates....????
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620923 tn?1452919248
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Thank you guys sooo much for the prayers, but with all the commotion going on lately, I forgot to update you guys. When I did my pre ops on march 18th, they called me a few days later to say I had a UTI (this happens all the time, but don't feel like I have one right now) so they gave me a 3 day antibiotic. So on friday my leg started itching, by sat. i knew it was a rash, called the doctors on sun. they switched my meds, and canceled my surgery. I have been rescheduled for April 12th. That was the worst count down for my life, now to have to do it again..grrrr Oh and by the way my sister had her twins <3 Jada Marie 5lbs 6oz and Jayden Mondrell 6lbs 5oz born @ 36 weeks healthy as could be <3
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620923 tn?1452919248

  Thanks for letting us know...we will re post a prayer thread for u...COngrats on being an Aunt to twins <3
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620923 tn?1452919248
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Was moved again, to April 18th.
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620923 tn?1452919248

  Thanks for the update....hope u r ok with this waiting.....
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620923 tn?1452919248
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620923 tn?1452919248

  Do we have ne more for April or May scheduled?
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620923 tn?1452919248
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My decompression is scheduled for May 8. I am very nervous.
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620923 tn?1452919248

  It is "normal" to be nervous, if u weren't then I would be concerned for u.

Focus on getting ready and doing things with ur family that u will not be able to do for some time post op...go to a movie, etc...

Prepare meals and freeze them....and relax as much as u can.

Know we will post a prayer thread for u <3
Wishing all goes well.
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620923 tn?1452919248
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Thank you. That's a great idea to freeze meals.  
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620923 tn?1452919248

  We do have a list in the Health Pages tips for the hospital stay I am sure the meal idea was in there too....
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620923 tn?1452919248
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My surgery date 5-6-13
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New to site. My second surgery is May 3
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620923 tn?1452919248

  Thanks sw and CLF....I have both of ur dates and we will post a Prayer Thread for u the day b4 ur surgery.

I hope u have someone that can post updates on ur progress.

Sending well wishes to u both : )
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620923 tn?1452919248
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620923 tn?1452919248

Bumping up for more May and June dates...does not have to be Chiari surgery, as long as u r a member and having ne surgery let us know : )
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620923 tn?1452919248
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620923 tn?1452919248


Bump
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620923 tn?1452919248
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4515626 tn?1369858514
june 20th looks like the day for my decompression and my spinal fusion
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4515626 tn?1369858514
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620923 tn?1452919248

  Thanks for letting us know....I will post a prayer thread for u, and I hope u have someone that is able to post updates on ur progress : )

All the best <3
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620923 tn?1452919248
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My Chiari decompression is 6-13.
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620923 tn?1452919248

    Thanks for letting us know....I will post a prayer thread for u, and I hope u have someone that is able to post updates on ur progress : )
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620923 tn?1452919248
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620923 tn?1452919248

  BUMP
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Cancelation of surgery date for 6-13-13. Thanks Christina
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620923 tn?1452919248

  Thanks for the update : )

Be sure to re-post when u reschedule.
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620923 tn?1452919248
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620923 tn?1452919248

BUMPING for  JUNE  & JULY  2013 surgical dates
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620923 tn?1452919248
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Surgey scheduled for 6/17/13
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3112631 tn?1356657157
I'm posting for my sister, katherineRSM, whose surgery is scheduled for 6/24/13.

(She signed up on this site and set up a profile, but her login stopped working and she hasn't received any response to her inquiries from MedHelp about it yet.)
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3112631 tn?1356657157
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620923 tn?1452919248

  Hi...I will look into her sign on issue and thank u for sharing her surgery date.....there are instructions on how to correct or change ur password...but right now I can not locate it....did she send an e-mail to MH?
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620923 tn?1452919248
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3112631 tn?1356657157
She sent a couple of requests for a new password but hasn't heard anything.
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620923 tn?1452919248

  I contacted the MODS and they sent her an e-mail,...have her take a look..... and let me know if she gets it resolved <3
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620923 tn?1452919248
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Thanks it's fixed. I got in.  Just in time for my surgery June 24th.
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3112631 tn?1356657157
Yay - she's on! Thanks, Selma!
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620923 tn?1452919248

  Hi and welcome ....I am so glad u finally got on......I hope we r able to help u with ne questions b4 ur upcoming surgery : )
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620923 tn?1452919248

  Hi all please post ne scheduled surgery, chiari or non chiari as we would like to post a prayer thread for u....and please have someone post updates on ur progress....

Looking for End of June, July and Augs dates-
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620923 tn?1452919248
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620923 tn?1452919248

  To locate a thread, all u need to do it click on the magnifying glass icon and type in the topic a list of related threads will show on the screen.
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620923 tn?1452919248
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620923 tn?1452919248

  Do we have neone with a surgery planned for July ?
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620923 tn?1452919248
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620923 tn?1452919248

  BUMP....for ne new surgery dates
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I think this is the thread you were talking about posting my surgery date to. I am slotted for July 18 in Albany with Dr. Adamo.
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620923 tn?1452919248

  Yes this is the thread......also if u do not have someone as of yet ask someone to post updates on ur progress, as we all would love to know how u r doing post op.

All the beat to u.
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620923 tn?1452919248
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Thank you! I will do that ( on the progress updates).should they post here in the other area?
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620923 tn?1452919248

  There will be a prayer thread they can add updates to that .
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620923 tn?1452919248
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620923 tn?1452919248

  We only have one for July so far...ne others?
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3107154 tn?1361921205
My 6 year old Jacob will have a decompression and occipito-cervical fusion down to C3 on August 21st.  He has chiari plus basilar invagination, retroflex odontoid and a lot of anterior brainstem compression as well as 28mm cerebellar tonsils and brainstem herniation going on.  Dr. Rekate at TCI is doing the decompression and Dr Insinga will do the fusion as a team on the same day.
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3107154 tn?1361921205
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620923 tn?1452919248

  Hi....good luck to ur DS Jacob and know I will post a prayer thread, please feel free to post updates on that thread so we all know how he is doing, and the prayers will be for u as well .....I can only imagine how it is to be the parent of a child undergoing this surgery....

BTW= Dr Insinga did my decompression and I really loved him.,...so I know he is in good hands <3
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3107154 tn?1361921205
Glad you loved him!  I've only heard good things too.  

Did you have the decompression at North Shore University Hospital?  I hear it's a HUGE hospital.

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620923 tn?1452919248

  Yes I did, I do recall it was a large campus.....did u set up a place to stay? If not call TCI back and ask about Variety House....the guards from the Hospital will escort u to and from the VH to the Hospital,....and it is a more affordable place to stay.
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620923 tn?1452919248
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620923 tn?1452919248

  Bumping up for more Aug surgery dates.....
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620923 tn?1452919248

  BUMP
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620923 tn?1452919248
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620923 tn?1452919248

  Bump please post ur surgery date and we will post a prayer thread for u.
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620923 tn?1452919248
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620923 tn?1452919248

  Bumping for more Aug surgery dates
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Mine is aug 9th thank you
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620923 tn?1452919248

  Got ur date and will post a prayer thread for u.....if u can ask a friend or family member to post on the prayer thread updates on ur progress.

Wishing u all the best <3
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620923 tn?1452919248
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5745872 tn?1374585163
My daughter's surgery date is September 3rd , 2013
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5745872 tn?1374585163
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620923 tn?1452919248

  Thanks for letting us know....I will post a Prayer thread for her...and I hope u r able to keep us posted on her progress post op.....all the best <3
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620923 tn?1452919248
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I will have decompression surgery on September 20.
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620923 tn?1452919248

  Thanks for letting us know...and please ask a family or friend to post updates on ur prayer thread as to how u progress post op..
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620923 tn?1452919248
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5745872 tn?1374585163
Just to update, My daughters surgery date has been pushed to Sept 10 instead of the 3rd.
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5745872 tn?1374585163
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August 28th 2013 for me.
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620923 tn?1452919248

  Got it...thanks...and I hope u have someone that can post updates on how u r doing : )
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September 20th - sorry for messing that up Selma
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620923 tn?1452919248

  No worries....got the new date now and will post a thread for u then too : )
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4489852 tn?1375757551
Hi all! I'm having an arthroscopic wrist surgery next Friday 8/30. It is from an injury due to EDS, prayers and good thoughts for a speedy and easy recovery would be appreciated!
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620923 tn?1452919248

  Hi...A prayer thread will be posted, wishing u all the best <3
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620923 tn?1452919248

  Please post ne surgeries for Sept, Oct, Nov or...Dec....thanks
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They changed my date without telling me until a few days ago.. sigh. New date is September 18th.. which is super soon :(
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620923 tn?1452919248

  Just saw it on the other thread...thanks for updating here too....

I mentioned in the thread they changed my date to a day later....but I also forgot to say that my surgery or reason or area was changed 2 weeks b4....originally I was going for TC release surgery and 2 weeks b4 I was told they decided that I would benefit more from the decompression surgery...

They were right, but I still need the release, just have not decided to go back for that yet....

((hugs))
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620923 tn?1452919248
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5937468 tn?1386020233
My surgery date is October 10th in a few weeks
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5937468 tn?1386020233
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620923 tn?1452919248

  Got the date, thanks...keep us posted as to ne changes and know u will be in our thoughts and prayers. <3
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My decompression surgery is October 2.
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620923 tn?1452919248

  Thanks ...got it....and I see u have someone here to post updates on ur post op progress...sorry ur DS also is dealing with this condition....
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My decompression surgery has been changed to Sept 26th.
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620923 tn?1452919248

  Thanks for letting me know....and I will get a prayer thread up for u....know u will be in our thoughts and prayers <3
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1891806 tn?1391122637
I think I posted my surgery info on the prayer thread. I can never keep things straight...sorry for the repeat.

I am scheduled for surgery in Dallas on Nov. 6th. I have to fly from Phoenix on the 4th to meet with the doctor and my surgey is on the 6th. I will have to stay in the hospital for 5 days and then a hotel for 3 to 4 days. I will go back for a check-up on Nov.12 and fly home on the 13th.

My surgery is on my spine. Dr. Feigenbaum will be doing surgery on the 2 Tarlov Cysts I have on my sacrum area. I have numerous cysts on my lumbar and cervical spine, but it's too dangerous to remove them all.

So I will be out of commission for at least 4 months.

My neurosurgeon won't do surgery on my Chiari until I tell him I can't take anymore. Sounds pretty crappy to me!!!
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1891806 tn?1391122637
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979826 tn?1389039958
surgery to correct my double vision friday september 27!
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979826 tn?1389039958
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620923 tn?1452919248

  Hi hevenw8s...got it thanks for posting it here, as I must have missed the date....got it now tho.

Got urs Molly Thanks : )
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6013416 tn?1381243891
My surgery date is October 2nd.  I will try to post updates as I can.  

Thanks
Wanda
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620923 tn?1452919248

  Thanks for letting us know, we will post a Prayer Thread for u....if u do not have neone to post updates for u, contact me via a PM and I can help get updates posted for u.
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6013416 tn?1381243891
Thanks selmaS  for prayer thread.  I am hoping my best friend will post for me.  If not I will let pm you.

Wanda
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Hey Selma, my surgery is set for October 15, praying for a great outcome! Prayers to everyone going through surgery soon or recovering now.
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620923 tn?1452919248

  A prayer thread will be posted....wishing u all the best.
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620923 tn?1452919248
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My surgery was September 17th, but just found the forum. Thank you for all of the amazing information!
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620923 tn?1452919248

  Hi and welcome to the Chiari forum.

How are u doing post op....? If u have ne questions feel free to start a new thread so u get noticed and more replies : )

Sending u healing MoJo for a smooth recovery.
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620923 tn?1452919248
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Just booked October 30 in Richmond, Virginia.
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620923 tn?1452919248

  Thanks for letting us know, we will post a Prayer Thread for u, I hope u have someone to post updates on ur progress...wishing u all the best/
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620923 tn?1452919248
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620923 tn?1452919248

  Post surgeries for Oct , Nov and Dec 2013...and please inform us of ne changes......
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4489852 tn?1375757551
Well I get to add yet another one... Portacath placement on November 21 for IV fluids due to POTS and NMH (neurally mediated hypotension).
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620923 tn?1452919248

  Hi...goodness, I wondered if u might need another surgery after the last info u shared....

May I ask how does one of these work? Do u get dehydrated?
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620923 tn?1452919248
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4489852 tn?1375757551
And another one... TCI called back and I a scheduled for consultation on December 16 and cranial cervical fusion on December 19, which is 2 days shy of my 1 year zipperversary!!!! I am beyond excited :D
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4489852 tn?1375757551
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620923 tn?1452919248

  Fantastic......wow they scheduled u b4 they saw u in person, ur  MRI's must have been super clear what is going on.....

Please keep us posted will have a prayer thread for both surgery days : )
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620923 tn?1452919248
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4489852 tn?1375757551
I was so surprised they wanted to schedule it before they saw me! I have never even had an upright MRI or flexion and extension MRIs. I will have to look back at my supine MRI because apparently they saw something significant! Thank you for all of the prayers and positive thoughts!
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4489852 tn?1375757551
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620923 tn?1452919248

  No worries...Let me know which Dr u r assigned to.....

Did u make arrangements to stay at the Housing they offer?...it is less expensive then a hotel, and close to their office and near the Hospital....It is a house and it has a common area as well as a common kitchen....my DD and DH stayed there when I was in the hospital and said it was clean and comfy,....that was in 2009.....but I am sure it is still an ok place to stay.
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