Chiari Malformation Community
LIST YOUR SURGERY DATE - PART 2
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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620923_tn?1393294254

  June I have ur date on my list,. let me know if it changes and do ask someone to post updates on ur progress and allow urself to rest post op.
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hey, im 13 and have recently been diagnosed with cm1 (19mm) i also have a syrnix. i will be admitted to alder hey children's hospital (uk) on the 4th September 2012 and will be have decompression and a syrnix shunt the following day - 5th september 2012!
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620923_tn?1393294254

  Thanks for letting us know Rosie, know that we will be thinking about u.....I hope u have someone that can post updates on ur progress while u rest  : )
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620923_tn?1393294254

  Please add ur surgery dates on this list so they r easy to locate : )
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3215453_tn?1345848219
Hi everyone. I have just been diagnosed with chiari and still in shock.What bothers me the most is a have a son that just turned one and most days I just cant take care of him. I have really bad days where I am dizzy all the time and feel like I am living in a differant world. I also have numbness in my arms, feet, and lips. Some lower back pain, neck pain, and muscle burning between my shoulders. Its very depressing. I came on her to find people like me that can relate because I feel nobody understands. I live near pittsburgh and I have an appointment aug 30th with doctor friedlander. I am really scared.:(
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620923_tn?1393294254

  Hi so u do not have ur surgery scheduled yet?

I am in PA but on the other side.

Do u have a CSF obstruction, or a syrinx or ne other related Chiari condition?
This can be a very scary journey and I want u to know u r not alone, there r plenty of us that know just how u feel, some with small children and babies and some of us our children r grown, but have gone thru it, so we r here for u : )
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3052618_tn?1344108635
My surgery (decompression), my first one.. Is Dec 3, 2012 at 7:30am at Piedmont Atlanta. It will be performed by Dr. Wray of Atlanta Brain and Spine.

Crystal Teems
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620923_tn?1393294254

  I have u on my list Crystal....know we will have a prayer thread for u <3
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620923_tn?1393294254

  Please post ur surgical dates here so I have them all in one place and will not forget to post a Prayer Thread for u,

And if possible ask someone to post updates on ur progress so u get rest : )
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1667208_tn?1333111449
Whoops.. you would think I would remember this by now :)  HERE GOES:

Zipper Head x 4 on October 8th, 2012  (and hopefully shunt removal too)

-Zygy
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620923_tn?1393294254

  LOL...gotcha on the list...will have a Prayer Thread for u....keep us posted <3
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620923_tn?1393294254
Please post ur surgical dates here so I have them all in one place and will not forget to post a Prayer Thread for u,

And if possible ask someone to post updates on ur progress so u get rest : )

BTW it can be ne kind of surgery not just Chiari.,.... <3
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3219959_tn?1346010119
My Surgery date is Oct. 9th. I will be having the C1 laminectomy and craniectomy and have a dura patch put in. Keep me in your thoughts, prayers, rituals.
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620923_tn?1393294254

  We will have a Prayer Thread for u.....and if u can have someone post updates on ur progress : )
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620923_tn?1393294254

  Bump
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1589097_tn?1343436712
Im having my Surgery October 18th
Craniectomy, Laminectomy of C1, and dural graft (my own )
Mazie :)
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979826_tn?1389039958
im having surgery tomorrow at 730 to fix the double vision in my eyes caused by the bad hydrocephalus this winter i am sooooo ready!!!!!
molly
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620923_tn?1393294254

  Mazie and Molly I have both of ur dates now thanks : )
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620923_tn?1393294254


   BUMP
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1667208_tn?1333111449
Surgery tomorrow (Thursday 18th) to repair my side, spinal fluid draining from where my lumbar shunt used to be!   -zygy
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620923_tn?1393294254

  WOW...glad they got u in so fast....u said it was leaking fast...so I am glad they took it seriously.....


  I will post a Prayer Thread for u as well....know I am sending u all the best thoughts and prayers <3
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620923_tn?1393294254

  Please post ur surgery dates here...they do not have to be for PFD..ne surgery will be fine...and we will pray for a positive outcome and recovery : )
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620923_tn?1393294254

  Looks like I only have one listed for November....r there others?
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620923_tn?1393294254

  bumping up for Nov and Dec 2012 surgery dates
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Avatar_f_tn
My son's decompression is Dec 3rd
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620923_tn?1393294254

  Thank u for letting us know...I will post a prayer thread for u and I hope u r able to post updates on his progress.....wishing all the best for  him <3
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620923_tn?1393294254

  Do we have ne dates for November? I have 1 on the 16th
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4373747_tn?1354712039
My sister got done with her surgery on 19th Nov 2012.. she is a new Zipperhead..
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Avatar_f_tn
Does she post here?
Give her our regards!
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4373747_tn?1354712039
Thank you so much for the support. My sister doesn't post here, i do it for her instead. She is having a lot pain in her cervical spine, not able to move around her head easily. She had an herniation of 14mm with syrinx but she was asymptomatic.
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4373747_tn?1354712039
The above message is for you.
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620923_tn?1393294254

  Hi and welcome to the Chiari  forum.

U will want ur sister to do neck exercises for those that have had this surgery....it will help the muscles from getting tight which will also cause pain....I have a chart with diff exercises posted on it,. ask me about it....

And do post a new thread so u can get more replies and suggestions for ur sister, I use this thread to post prayer threads for those with up coming surgeries. :  )
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Hi, my name is Mekisha. My decompression surgery is scheduled for December 5th.
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620923_tn?1393294254

  Thanks for letting us know, I will post a prayer thread for u....if u can have someone post updates on ur progress we would love to hear from whomever can do that....I wish u all the best <3
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Thanks! I'd really appreciate your prayers. I'll have someone post an update during my recovery.
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Avatar_n_tn
My surgery is this Thursday -  11/29 @ 8am.  SUPER nervous but ready!  
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620923_tn?1393294254

  Hi and welcome to the Chiari forum.

It is normal to be nervous....but know we r sending prayers and well wishes ur way.....if u can have someone post updates on ur progress : )
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Thank you for the prayers!  what a great group of people you have here!
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979826_tn?1389039958
surgery #18 dec 5th at john hopkins
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620923_tn?1393294254

  Post ne dates here that still fall in 2012...there is a new thread for 2013
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Avatar_f_tn
I wanted to list my surgery date as Dec 27, 2012 w Dr. Oro.
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620923_tn?1393294254

  Sure thanks...got it...I will post a prayer thread for u, and if u have someone that is able to post updates on ur progress please do so...

Best wishes to u.
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3057101_tn?1360377709
Surgery date scheduled for January 16, 2013 with  Dr. Rosner  at Park Ridge Hospital Hendersonville, NC.
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620923_tn?1393294254

  THIS THREAD IS NOW CLOSED PLEASE USE THE NEW ONE FOR 2013


Thanks ceo I saw u did post on the new thread as well : )
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