hey, im 13 and have recently been diagnosed with cm1 (19mm) i also have a syrnix. i will be admitted to alder hey children's hospital (uk) on the 4th September 2012 and will be have decompression and a syrnix shunt the following day - 5th september 2012!
Hi everyone. I have just been diagnosed with chiari and still in shock.What bothers me the most is a have a son that just turned one and most days I just cant take care of him. I have really bad days where I am dizzy all the time and feel like I am living in a differant world. I also have numbness in my arms, feet, and lips. Some lower back pain, neck pain, and muscle burning between my shoulders. Its very depressing. I came on her to find people like me that can relate because I feel nobody understands. I live near pittsburgh and I have an appointment aug 30th with doctor friedlander. I am really scared.:(
Do u have a CSF obstruction, or a syrinx or ne other related Chiari condition?
This can be a very scary journey and I want u to know u r not alone, there r plenty of us that know just how u feel, some with small children and babies and some of us our children r grown, but have gone thru it, so we r here for u : )
Thank you so much for the support. My sister doesn't post here, i do it for her instead. She is having a lot pain in her cervical spine, not able to move around her head easily. She had an herniation of 14mm with syrinx but she was asymptomatic.
U will want ur sister to do neck exercises for those that have had this surgery....it will help the muscles from getting tight which will also cause pain....I have a chart with diff exercises posted on it,. ask me about it....
And do post a new thread so u can get more replies and suggestions for ur sister, I use this thread to post prayer threads for those with up coming surgeries. : )
No worries....just look at the dates on the thread if it is old then you can assume there is a newer one....I know it is hard as the threads get long I create another one, and why I know have a date at the top too...lol...it is confusing for me too....
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