LIST YOUR SURGERY DATE - PART 2

[selmaS]

Hi all,

As you are scheduled for surgery please add it to this thread so we know when it is.Please also have a contact person update us on ur progress until u r up to rejoining us.

[Rahe28]

Hi all. My surgery is scheduled to be at Tulane Medical Center in New Orleans, the week of May 21st. I will post the exact date and time sometime this week :)

[Viva001]

Btw, sometimes my comments aren't posted, then when I think that I need to sign in, medhelp doesn't recognize me.

I've been feeling poorly, but I HAVE to fly to Philly on Saturday to attend my daughter's graduation as a NP from UPenn.  Well, if I'm very sick, at least I'll be surrounded by nurses!

[Viva001]

I'm scheduled for surgery June 27th w/Dr. Rosner.

[selmaS]

  Actually, no, my Drop Attacks did not give ne notice they were coming, I would be standing one minute feeling fine and be midfall the next second...aware I was falling but could not react to stop the fall or call out.

If I had gotten some sort of feeling it was coming it would have been a little easier to deal with, but I felt fine...I would just drop....and one such drop resulted in injuries that required surgery...2 of them one on my knee one on my ankle....all b4 I got my chiari dx.

I understand u questioning surgery, I did as well....but I will say this month I will celebrate my 3 yr post op zipperversary and no drop attacks : )

[SilentSong101]

Yes the drop attacks are AWFUL....I have always feared that I will get when while performing or in a concert or.....many other scenarios run through my head. My drop attacks begin with a sudden rush of pain/pressure in my head, then sometimes my eye site goes out..then I loose control of my limbs, and drop...but most of the time I can get myself to the ground safely before my limbs are completely out of my control because i can recognize when its going to happen. Except that one time it was like a seizure....then i did not have any warning or anything...but i typically remain conscious throughout them....sometimes i can talk, other times i cannot. Does that sound like yours?

The other thing that gets me is weakness in my arms and legs...I play guitar and draw and paint....and love playing sports. It is also the singing - which I feel is a silly really....getting a surgury so I can sing....but it is my love...and one of my gifts....I cant stop doing it even though it leads to black outs, migraines and just overall pain....I just cant....

But drop attacks...yeah....bad. Balance....bad....so bad...I do both kickboxing and yoga...(less and less in the last couple months though :( ) and many it is a site to see.....XD Oh boy....today I have been falling over (but usually able to catch myself) every time i move...its rediculous....ususally that is accompanied by slight amount of pain too...and my eye site...problems there

But surgery is not garunteed to help any of these things...I dont know...

[selmaS]

  I was dealing with the pain too, it was the falling that got to me, not knowing when or where it might happen....and one fall resulted in 2 surgeries....so, I knew I had to do something....the Drop attacks scared me more then the surgery....

  Having pain my whole life I am not sure if I would know what it would be like not to have pain...so I just deal with it....and yes, mine cycled as well, where I had days that were worse then others....and I had times I did not think I was in need of surgery....but those drop attacks, and needing those surgeries for the injuries was the breaking point.