Hey All - I am having some serious issues with my legs and don't know whats going on. I don't have a diagnosis but am working with a few doctors.
I am wondering what are neurological reasons for leg weakness/knee buckling. It doesn't happen everyday and when I do get it its not always along with my other (disequilibrium/vertigo) symptoms. Sometimes it lasts a minute, sometimes a few hours, and sometimes 2-3 days!
Today is a bad bad day. I can barely walk and am taking care of my 13 month old all by myself. Luckily my head/cognition isn't bad so I can at least think clearly.
So basically if I try to walk my knees just give out repeatedly. My legs feel tingly. I can stand if holding onto something or leaning, but not for long.
I just don't know what to do.... who to ask... what questions to ask... and of course when I'm at the Dr. my legs are fine so they don't really understand when I tell them I can't walk!
Hi, so sorry your going through this, I'm currently on / off crotches where my legs buckle so much, have you had a spine MRI done? I only ask cause I have scoliosis, stenosis, nerve and spinal cord impingement which is causing the biomechanics of my lower back to not be very good hence leg weakness and stability. I completely understand it's SO hard never knowing from one day to the next if your gonna be able to walk ok. X
There is no report with it. I got the MRI done at The Chiari Institute yesterday and brought all the images to the Neurologist I met with. He didn't mention anything when looking through all the MRIs....
It is both legs. Today I had shooting pains in my right knee and down my shins... sometimes in my hips. It is not constant just shoots randomly. I haven't had any pins/needles today or numbness, but I have experienced those feelings in my feet and toes. Side note: My left foot almost always goes numb/falls asleep when I drive for an hour or longer.
Ask your neurologist. That's who you need to talk to. If you've got a dr at the Chiari Institute, then you've got a wonderful resource. Call him, make a follow-up appt or something, even if it's just to get clarity of what's going on. You shouldn't be left in the dark. You've got to remember to ask these questions and be your own advocate with doctors.
I have problems with mainly my right leg. I have numbness and tingling on my foot and ankle, and up my calf on bad days. I also have had issues with that leg buckling/giving out on me and spasticity in my muscles. My calf almost always feels like it's going to cramp up/ Charley horse. It's difficult to walk sonetimes and I use a cane, but I've got pretty bad dizziness and vertigo too.
Has anyone yet determined what is happening with your legs? My 14 yr old daughter is having these same problems. We've taken her to many specialists, including a neurologist, but nobody seems to know anything. I'm interested in whatever you found out with your situation.
I have knee buckling as an extremely rare migraine symptom. None of my (many) doctors have ever heard of such a thing, but it is definitely related to my light/noise sensitivity and my mom and sister have it as a migraine symptom as well. Your brain fog and dizziness suggest it could be something similar. Anyone else here have knee buckling with migraines?
I have also recently started to wonder about a vitamin d deficiency affecting it, as a friend said her knees buckled when she had a vitamin d deficiency and my levels are extremely low. Can't tell yet if supplements are helping, but you could give it a shot.
Low levels of vitamins and minerals are always an important place to start with any health condition and especially for those with Chiari as we also tend to have Ehlers-Danlos Syndrome which can cause mal absorption of vitamins and minerals from our food source as well as supplemental....
Chiari in itself can cause many of the symptoms mentioned in your post.
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